海外マルファン情報

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

Entries from 2019-06-12 to 1 day

マルファン患者の寿命は?

What is the life expectancy of a person with Marfan syndrome? My experience with Marfan syndrome dates back to the late 1970s. And at that time there was neither a medical nor surgical approach that could really lengthen the life expectanc…