海外マルファン情報

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

Entries from 2019-07-26 to 1 day

診断が確定しない場合はどうするか?

What if my diagnosis is unclear? That's really challenging for patients because they want to know yes or no that they have it and sometimes as kids are growing older, their features are evolving that they might not have the scoliosis or cu…