海外マルファン情報

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

Entries from 2019-09-06 to 1 day

将来に希望が持てる理由

Why are you hopeful? Man A:I'm hopeful because every year you hear about new advances in the science in the treatment, there are new advances as kids grow, you know, we've seen that the kids over the years who grown up with Marfan and seei…