Managing Pain 8:55-10:27 So in some other research that, that I did with the survey on the Marfan website, we kind of separated individuals by when their pain started or how their pain was experienced throughout the course of their illness.…

Managing Pain 7:27-8:53 So why is it important to talk about pain? And for any individual that's experienced it, one may understand that pain is really associated with so many other factors and that can be hopelessness, feeling that that p…

Managing Pain 5:28-7:26 So there's a small body of research in pain in Marfan syndrome and this screen highlights two studies: one was done by Dr. Nelson based out in Chicago and she was one of the first people to show that pain is occurri…

Managing Pain 4:51-5:26 And again when we talk about pain, it's often related to some type of maladaptive signaling that's happening in the brain. 繰り返しになりますが、痛みがある場合、脳の中の信号伝達に問題があることが多いです。 So years …

Managing Pain 3:25-4:46 So as researchers or clinicians, we often think about pain in terms of numbers or where it might be happening, so oftentimes when you go to a clinician or provider, we ask what type of pain you're experiencing on a …

Managing Pain 1:41-3:24 So when we refer to pain, we are thinking about pain in two different ways; it's both a sensory experience that has associated with the physical manipulation, but it's also an emotional response to the distress and …