海外マルファン情報

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

運動

小児のスポーツについて

Exercise and Marfan, LDS, and VEDS: The Latest Research 1:07:14-1:08:58 There are questions about, you know, what about the youngest, the youngest children and physical activity and sports and recreation and things like that and I've learn…

筋トレは必要か?

Exercise and Marfan, LDS, and VEDS: The Latest Research 1:04:32-1:07:12 And then some ask about one doing isometric exercise and I've been doing it for years and, and so the person that does push-ups and sit-ups and things like that, you k…

大動脈手術後の運動について

Exercise and Marfan, LDS, and VEDS: The Latest Research 1:03:57-1:04:29 A lot of them have to do with, you know, what if I've had surgery, so I've had my valve replaced or I've had my aorta replaced in part or and what does that mean for e…

運動中の血圧測定について

Exercise and Marfan, LDS, and VEDS: The Latest Research 1:02:21-1:03:47 Q:Is there anything, any particular blood pressure monitor that you'd recommend people use during exercise? 運動中に血圧を測定する場合、おすすめの方法はありますか? A:…

マルファンマウスの運動に関する研究について

Exercise and Marfan, LDS, and VEDS: The Latest Research 1:00:53-1:15:14 Q: So beginning questions are about the studies that you presented early on, talking about the mice because people were putting those questions in while they were list…

運動に関する最新研究 ~まとめ~

Exercise and Marfan, LDS, and VEDS: The Latest Research 57:28-59:47 Okay, Siddharth, thank you, so these are our conclusions. I guess we could read them together but I, I guess I will read the final. First and, we will take any questions t…

運動に関する最新研究 ~大動脈解離後の運動に関する臨床試験~

Exercise and Marfan, LDS, and VEDS: The Latest Research 49:27--57:20 So again, I think it's a great time now to study this in a prospective manner and gather information that can help prove this sort of information, is not only effective a…

運動に関する最新研究 ~ 2022 ACC/AHA 大動脈ガイドライン~

Exercise and Marfan, LDS, and VEDS: The Latest Research 48:09-49:27 I'll end my discussion with just one slide from the 2022 ACC/AHA guidelines on the diagnosis of management of aortic disease, which was published this last week and for th…

運動に関する最新研究 ~子どもを対象とした運動プログラムに関する研究~

Exercise and Marfan, LDS, and VEDS: The Latest Research 34:46-46:06 Great, yes, so the first study I'd like to discuss is a pilot study from the Netherlands, again involving children ages 6 to 18 years old, primarily with the diagnosis of …

運動に関する最新研究 ~小児の運動に関する研究(Science in Paris 2022)~

Exercise and Marfan, LDS, and VEDS: The Latest Research 27:26-34:46 OK, Siddharth, that was outstanding, very, very informative and to summarize the animal model studies of genetically programmed Marfan-like mice, aorta's benefit from, fro…

運動に関する最新研究 ~大動脈疾患患者の運動に関する研究のまとめ~

Exercise and Marfan, LDS, and VEDS: The Latest Research 26:05-27:22 And then after they completed the protocol we would survey the individuals about their experience. Half of them said they were more confident in their ability to safely co…

運動に関する最新研究 ~大動脈解離を発症した集団の運動に関する結果~

Exercise and Marfan, LDS, and VEDS: The Latest Research 25:22-26:02 We, we also looked at the aortic dissection subgroup. I mentioned that was a minority of patients but we wanted to make sure that was safe and effective for them. We did n…

運動に関する最新研究 ~大動脈疾患患者の運動に関する研究~

Exercise and Marfan, LDS, and VEDS: The Latest Research 17:48-25:19 So our group has for the last two years studied the safety of exercise for our patients who come to clinic with thoracic aortic disease of all types and we started to do t…

運動に関する最新研究 ~マウスモデルでの研究結果~

Exercise and Marfan, LDS, and VEDS: The Latest Research 15:15-17:26 Thank you so much, Alan. That was for that excellent introduction. As, as we mentioned there are, there's some growing body of evidence that exercise is actually not only …

運動に関する最新研究 ~各種ガイドライン~

Exercise and Marfan, LDS, and VEDS: The Latest Research 13:45-15:14 Finally moving on to the guidelines in competition again intense activities for high schools, college and professional athletes competitive sports when you have an underly…

運動に関する最新研究 ~MET(代謝当量)~

Exercise and Marfan, LDS, and VEDS: The Latest Research 12:16-13:44 You can kind of get a sense about the blood pressure and heart response to exercise depending upon the level of exercise. The metabolic equivalent of task or MET is one wa…

運動に関する最新研究 ~血圧と運動の関係~

Exercise and Marfan, LDS, and VEDS: The Latest Research 11:01-12:04 Here's a schematic showing somebody who's doing a jog and you can see the systolic blood pressure, the top number, so at rest is constant. When you have onset of this jog …

運動に関する最新研究 ~運動の分類~

Exercise and Marfan, LDS, and VEDS: The Latest Research 9:07-11:00 And those may differ again depending on what condition one has. Imagine somebody with significant eye features versus somebody with skeletal features, so exercise activity …

運動に関する最新研究 ~運動に関する質問への回答~

Exercise and Marfan, LDS, and VEDS: The Latest Research 8:16-9:06 So here are some of the questions that come up commonly about and, and what I think the simple answer is to say is we don't really have great answers for all these things. I…

運動に関する最新研究 ~トピックの紹介~

Exercise and Marfan, LDS, and VEDS: The Latest Research 3:45-6:02 This is kind of an overview of what we're going to share tonight and we'll try to get through. There's a lot of material, so we'll cover some of it more quickly and try to s…

大動脈疾患に関する研究報告(Science in Paris) ~小児の運動~

Aortic Disease Research (9/19/22) 10:20-14:10 So there were a number of studies presented in Paris which looked at a quality of life in children who have hereditary thoracic aortic disease and as you might expect in general children who ha…

経過観察中の運動と術後の運動について

Marfan Syndrome Management: Back to Basic 42:13-45:13 There are several questions about physical activity and Marfan syndrome and Loeys-Dietz, so Dr. Morris, can you just talk about that from, you know, from diagnosis and while you're moni…

リスクと生きる ~運動の目安と運動に関するマウスの研究結果~

Living with Risk 30:18-30:56 Now this is again, I'm not going to say too much. Dr. lunuchi covered this very well. I agree with him. I, I, I tell patients that they can do physical activity as long as they can talk in a complete sense whil…

リスクと生きる ~運動のメリットを示す研究~

Living with Risk 13:00-15:33 But maybe exercise isn't as risky as we think. So in 2017 there were two papers that were published that looked at the effect of moderate exercise on Marfan mice and both of these showed improvement in cardiac …

リスクと生きる ~運動ガイドライン~

Living with Risk 10:39-12:58 Currently there are guidelines that help us with Marfan syndrome in terms of what activities might be safe.They are based on adult exercise stress test data that look at metabolic equivalence and which is not s…

リスクと生きる ~先天性心疾患児の運動に関する研究~

Living with Risk 8:10-10:38 One of the questions that comes up really frequently when we're thinking about taking care of patients with aortic disease is living with risk. How do we do that? And one of the things that really comes up for a…

28歳マルファン男性の経験談

Personal Perspectives Panel: Physical Activity & Exercise 58:50-1:01:58 So do you, I mean, obviously the heart and aortic issues are the biggest concerns but, you know, they also talked about, we have our physical activity guidelines, whic…

結合組織疾患でも筋肉は付くか?

Personal Perspectives Panel: Physical Activity & Exercise 56:38-58:17 Mary, I wanted to ask you because Alan, you know, Alan's talking about all this weight work. A lot of people are worried about, are concerned about building muscle mass …

ウェートを使った運動からエクササイズバンドを使った運動へ

Personal Perspectives Panel: Physical Activity & Exercise 54:37-56:31 So I'm going to go over to Alan Tucker now. I mean, Samantha, we left Samantha off. Samantha was talking a little bit about knowing her body. Somebody is asking, Alan, y…

運動としての性行為

Personal Perspectives Panel: Physical Activity & Exercise 53:50-54:28 The, the one question somebody did ask just about intimacy so I didn't. Before I end I will say that we, we do address this in in our writings. 性行為に関する質問もいた…