海外マルファン情報

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

運動

経過観察中の運動と術後の運動について

Marfan Syndrome Management: Back to Basic 42:13-45:13 There are several questions about physical activity and Marfan syndrome and Loeys-Dietz, so Dr. Morris, can you just talk about that from, you know, from diagnosis and while you're moni…

リスクと生きる ~運動の目安と運動に関するマウスの研究結果~

Living with Risk 30:18-30:56 Now this is again, I'm not going to say too much. Dr. lunuchi covered this very well. I agree with him. I, I, I tell patients that they can do physical activity as long as they can talk in a complete sense whil…

リスクと生きる ~運動のメリットを示す研究~

Living with Risk 13:00-15:33 But maybe exercise isn't as risky as we think. So in 2017 there were two papers that were published that looked at the effect of moderate exercise on Marfan mice and both of these showed improvement in cardiac …

リスクと生きる ~運動ガイドライン~

Living with Risk 10:39-12:58 Currently there are guidelines that help us with Marfan syndrome in terms of what activities might be safe.They are based on adult exercise stress test data that look at metabolic equivalence and which is not s…

リスクと生きる ~先天性心疾患児の運動に関する研究~

Living with Risk 8:10-10:38 One of the questions that comes up really frequently when we're thinking about taking care of patients with aortic disease is living with risk. How do we do that? And one of the things that really comes up for a…

28歳マルファン男性の経験談

Personal Perspectives Panel: Physical Activity & Exercise 58:50-1:01:58 So do you, I mean, obviously the heart and aortic issues are the biggest concerns but, you know, they also talked about, we have our physical activity guidelines, whic…

結合組織疾患でも筋肉は付くか?

Personal Perspectives Panel: Physical Activity & Exercise 56:38-58:17 Mary, I wanted to ask you because Alan, you know, Alan's talking about all this weight work. A lot of people are worried about, are concerned about building muscle mass …

ウェートを使った運動からエクササイズバンドを使った運動へ

Personal Perspectives Panel: Physical Activity & Exercise 54:37-56:31 So I'm going to go over to Alan Tucker now. I mean, Samantha, we left Samantha off. Samantha was talking a little bit about knowing her body. Somebody is asking, Alan, y…

運動としての性行為

Personal Perspectives Panel: Physical Activity & Exercise 53:50-54:28 The, the one question somebody did ask just about intimacy so I didn't. Before I end I will say that we, we do address this in in our writings. 性行為に関する質問もいた…

水泳のトレーニングで気を付けたこと

Personal Perspectives Panel: Physical Activity & Exercise 51:18-53:09 Samantha, people want to know about your about your swim workouts and how did that change when you were diagnosed? 水泳のトレーニングについて、サマンサさんに質問が寄せら…

子どもの運動についての母親の考え

Personal Perspectives Panel: Physical Activity & Exercise 47:43-51:18 Morgan, can you just build on that? You know, do you, what does your son do in PE class and do you feel like he's getting enough exercise outside of school and maybe tal…

運動に関するオンライン座談会 ~医師による質問への回答~

Personal Perspectives Panel: Physical Activity & Exercise 44:12-46:26 Some of the questions were about, you know, what is an orthopedist, the right person? It might be, it might be a chiropractor, an orthopedist, a physiatrist, a physical …

運動に関するオンライン座談会 ~運動に対するアドバイス~

Personal Perspectives Panel: Physical Activity & Exercise 43:01-44:11 So I think that just hearing how healthy the choices that you guys made, I mean, and it's such great advice but it takes time to get to that and just like Morgan's son i…

運動に関するオンライン座談会 ~Braverman医師の兄~

Personal Perspectives Panel: Physical Activity & Exercise 41:27-43:00 Thank you so much. I do have questions for each of you but I want to kind of take this question to our two doctors. パネリストの皆さん、ありがとうございました。いくつか…

運動に関するオンライン座談会 ~娯楽的運動のガイドライン~

Personal Perspectives Panel: Physical Activity & Exercise 23:37-25:40 So what about recreational exercise? We talked about the guidelines for competitive. 勝ち負けを競うスポーツに関するガイドラインについては紹介しました。では、娯楽目的で行…

運動に関するオンライン座談会 ~大動脈解離後の運動に関する研究~

Personal Perspectives Panel: Physical Activity & Exercise 22:32-23:35 Exercise provides many important benefits. 運動には多くのメリットがあります。 In a survey of 314 survivors of aortic dissection those who exercise regularly experience l…

運動に関するオンライン座談会 ~マルファンマウスでの研究結果~

Personal Perspectives Panel: Physical Activity & Exercise 21:41-22:30 I was alluding to some recent research that has been published. This is from 2017 by Gibson's team. Recent mouse studies has suggested that mild to moderate dynamic exer…

運動に関するオンライン座談会 ~薬の作用~

Personal Perspectives Panel: Physical Activity & Exercise 20:52-21:39 It's important to emphasize also that medications can have a significant impact on physical activity and a lot of times in different ways. 運動に対しては薬も大きな影響を…

運動に関するオンライン座談会 ~マルファン関連疾患アスリートの運動ガイドライン~

Personal Perspectives Panel: Physical Activity & Exercise 18:49-20:51 So looking at the best data that we have available what do the guidelines recommend regarding competitive sports in people with Marfan syndrome and related disorders? Ma…

運動に関するオンライン座談会 ~運動中の大動脈解離の発症率~

Personal Perspectives Panel: Physical Activity & Exercise 16:31-18:40 Thankfully dying suddenly when you're an athlete is very, very rare so it's a rare phenomenon in general and of that rare complication only two percent of death in athle…

運動に関するオンライン座談会 ~アスリートの大動脈に関する研究~

Personal Perspectives Panel: Physical Activity & Exercise 14:45-16:30 What about if I exercise over time? Does it have any impact on my aorta? Next slide. では、長期間にわたって運動を続けた場合はどうなるのでしょうか?大動脈への影響はあるの…

運動に関するオンライン座談会 ~運動による大動脈への影響~

Personal Perspectives Panel: Physical Activity & Exercise 12:45-14:44 I'm going to speak a little bit about a concern that many people have. This is "If I exercise, will that cause harm to my aorta? What do we know about that?" Well, next …

運動に関するオンライン座談会 ~運動強度と衝突リスクに基づくスポーツ分類~

Personal Perspectives Panel: Physical Activity & Exercise 10:55-12:39 In general systolic blood pressure may increase by eight to twelve millimeters of mercury per MET of aerobic activity. Since blood pressure directly impacts aortic wall …

運動に関するオンライン座談会 ~MET~

Personal Perspectives Panel: Physical Activity & Exercise 8:38-9:59 Although we often talk about exercise as a general category it's really important to emphasize that not all types of exercise are the same. Certain activities lead to more…

運動に関するオンライン座談会 ~運動による血圧上昇以外の影響~

Personal Perspectives Panel: Physical Activity & Exercise 6:45-7:30 In some people it's not just the blood pressure response or the aorta that we think about but of course risks to other other parts of the body that can be involved. 運動に…

運動に関するオンライン座談会 ~運動時の心拍数~

Personal Perspectives Panel: Physical Activity & Exercise 5:30-6:43 People ask about a heart rate during exercise. That's really kind of tricky because everybody's heart rate starts at a different level especially if you're on medication y…

運動に関するオンライン座談会 ~安全と考えられる運動~

Personal Perspectives Panel: Physical Activity & Exercise 3:46-5:29 So what do we know about exercise? How much is safe? It really depends, what's the condition, what's the condition of the aorta, what's the age of the individual, what typ…

運動に関するオンライン座談会 ~運動の重要性~

Personal Perspectives Panel: Physical Activity & Exercise 2:20-3:41 Welcome and it's a privilege to be here with everybody today as Eileen said Mary and I are gonna tag team and really just give some basic information and kind of a broad o…

大動脈全置換後の運動について

Open Thoracoabdominal Repair: Surgery Series (2/16/21) 1:01:36-1:02:48 Q:How about in terms of your lifestyle. If somebody has their entire aorta replaced and they have Marfan syndrome does that mean that they can return to "normal" she sa…

大動脈手術後の生活についてのオンライン座談会 ~術後の体の不調への対処法②(医師の解説)~

Personal Perspectives Panel: Life After Aortic Surgery 34:18-36:28 Do you, do you prescribe like PT, cardiac rehab all that afterwards so they have like, like formal exercise after surgery before they get, let on their own and you get reje…