Pediatric Activity Guidelines - HTAAD 5:01-8:43 So in general when we are restricting individuals from activity that is to help them to avoid an aortic event or perhaps disease progression we know aortic dissection is a very rare event. In…

Pediatric Activity Guidelines - HTAAD 1:30-5:00 Why should we be active? Originally the goal was survival so, you know, several decades ago really the main goal was trying to get people to be able to live long because the mortality rates w…

Pediatric Activity Guidelines - HTAAD 0:00-1:29 Hi, I'm Dr. Glenn Ianucci, a pediatric cardiologist at children's health care of Atlanta and director of the aorta and vascular clinic there and on behalf of the GenTAC alliance I'll be prese…

LDS Guidelines: Then vs. Now 1:21:13-1:24:12 Q:Last question for you, Dr Dietz. In terms of exercising what are your suggestions in terms of kind of like heart rate recommendations or kind of what guidelines say and how you think or feel a…

LDS Guidelines: Then vs. Now 27:01-28:55 In terms of cardiovascular management, what we would say and continue to say is that people should be getting at least yearly echocardiograms. Clearly we're doing that a little bit more frequently i…

Exercise and Marfan, LDS, and VEDS: The Latest Research 1:07:14-1:08:58 There are questions about, you know, what about the youngest, the youngest children and physical activity and sports and recreation and things like that and I've learn…

Exercise and Marfan, LDS, and VEDS: The Latest Research 1:04:32-1:07:12 And then some ask about one doing isometric exercise and I've been doing it for years and, and so the person that does push-ups and sit-ups and things like that, you k…

Exercise and Marfan, LDS, and VEDS: The Latest Research 1:03:57-1:04:29 A lot of them have to do with, you know, what if I've had surgery, so I've had my valve replaced or I've had my aorta replaced in part or and what does that mean for e…

Exercise and Marfan, LDS, and VEDS: The Latest Research 1:02:21-1:03:47 Q:Is there anything, any particular blood pressure monitor that you'd recommend people use during exercise? 運動中に血圧を測定する場合、おすすめの方法はありますか？ A:…

Exercise and Marfan, LDS, and VEDS: The Latest Research 1:00:53-1:15:14 Q: So beginning questions are about the studies that you presented early on, talking about the mice because people were putting those questions in while they were list…

Exercise and Marfan, LDS, and VEDS: The Latest Research 57:28-59:47 Okay, Siddharth, thank you, so these are our conclusions. I guess we could read them together but I, I guess I will read the final. First and, we will take any questions t…

Exercise and Marfan, LDS, and VEDS: The Latest Research 49:27--57:20 So again, I think it's a great time now to study this in a prospective manner and gather information that can help prove this sort of information, is not only effective a…

Exercise and Marfan, LDS, and VEDS: The Latest Research 48:09-49:27 I'll end my discussion with just one slide from the 2022 ACC/AHA guidelines on the diagnosis of management of aortic disease, which was published this last week and for th…

Exercise and Marfan, LDS, and VEDS: The Latest Research 34:46-46:06 Great, yes, so the first study I'd like to discuss is a pilot study from the Netherlands, again involving children ages 6 to 18 years old, primarily with the diagnosis of …

Exercise and Marfan, LDS, and VEDS: The Latest Research 27:26-34:46 OK, Siddharth, that was outstanding, very, very informative and to summarize the animal model studies of genetically programmed Marfan-like mice, aorta's benefit from, fro…

Exercise and Marfan, LDS, and VEDS: The Latest Research 26:05-27:22 And then after they completed the protocol we would survey the individuals about their experience. Half of them said they were more confident in their ability to safely co…

Exercise and Marfan, LDS, and VEDS: The Latest Research 25:22-26:02 We, we also looked at the aortic dissection subgroup. I mentioned that was a minority of patients but we wanted to make sure that was safe and effective for them. We did n…

Exercise and Marfan, LDS, and VEDS: The Latest Research 17:48-25:19 So our group has for the last two years studied the safety of exercise for our patients who come to clinic with thoracic aortic disease of all types and we started to do t…

Exercise and Marfan, LDS, and VEDS: The Latest Research 15:15-17:26 Thank you so much, Alan. That was for that excellent introduction. As, as we mentioned there are, there's some growing body of evidence that exercise is actually not only …

Exercise and Marfan, LDS, and VEDS: The Latest Research 13:45-15:14 Finally moving on to the guidelines in competition again intense activities for high schools, college and professional athletes competitive sports when you have an underly…

Exercise and Marfan, LDS, and VEDS: The Latest Research 12:16-13:44 You can kind of get a sense about the blood pressure and heart response to exercise depending upon the level of exercise. The metabolic equivalent of task or MET is one wa…

Exercise and Marfan, LDS, and VEDS: The Latest Research 11:01-12:04 Here's a schematic showing somebody who's doing a jog and you can see the systolic blood pressure, the top number, so at rest is constant. When you have onset of this jog …

Exercise and Marfan, LDS, and VEDS: The Latest Research 9:07-11:00 And those may differ again depending on what condition one has. Imagine somebody with significant eye features versus somebody with skeletal features, so exercise activity …

Exercise and Marfan, LDS, and VEDS: The Latest Research 8:16-9:06 So here are some of the questions that come up commonly about and, and what I think the simple answer is to say is we don't really have great answers for all these things. I…

Exercise and Marfan, LDS, and VEDS: The Latest Research 3:45-6:02 This is kind of an overview of what we're going to share tonight and we'll try to get through. There's a lot of material, so we'll cover some of it more quickly and try to s…

Aortic Disease Research (9/19/22) 10:20-14:10 So there were a number of studies presented in Paris which looked at a quality of life in children who have hereditary thoracic aortic disease and as you might expect in general children who ha…

Marfan Syndrome Management: Back to Basic 42:13-45:13 There are several questions about physical activity and Marfan syndrome and Loeys-Dietz, so Dr. Morris, can you just talk about that from, you know, from diagnosis and while you're moni…

Living with Risk 30:18-30:56 Now this is again, I'm not going to say too much. Dr. lunuchi covered this very well. I agree with him. I, I, I tell patients that they can do physical activity as long as they can talk in a complete sense whil…

Living with Risk 13:00-15:33 But maybe exercise isn't as risky as we think. So in 2017 there were two papers that were published that looked at the effect of moderate exercise on Marfan mice and both of these showed improvement in cardiac …

Living with Risk 10:39-12:58 Currently there are guidelines that help us with Marfan syndrome in terms of what activities might be safe.They are based on adult exercise stress test data that look at metabolic equivalence and which is not s…