海外マルファン情報

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

Q & A

心エコー後のCT検査で僧帽弁逸脱の詳細はわかるか?

Aortic Imaging: Your Questions Answered 49:03-49:39 Q:Does CT provide additional information regarding mitral valve prolapse and regurgitation if an echocardiogram has already been done? 心エコー検査後のCTでは、僧帽弁逸脱や僧帽弁閉鎖不全症…

呼吸同期法による心電図MRAの撮影タイミングについて

47:44-48:52 Q:I'm going to ask about gating again just for some clarification. This, this person watching tonight said he recently had an MRA where a belt was wrapped around his midsection to measure his breathing. It seemed as though imag…

造影剤を使った画像検査の頻度について

Aortic Imaging: Your Questions Answered 45:01-46:36 Q: If MRA is the main method of imaging, how, how often should contrast be used? MRAを画像検査の中心とする場合、造影剤を使った検査はどのくらいの頻度で行うべきでしょうか? A:How often, tha…

上行大動脈・基部の検査間隔について

Aortic Imaging: Your Questions Answered 42:54-44:20 Q:Can you talk about, let's see, what should be the long-term routine surveillance imaging and the interval with somebody who's watching for ascending aorta, aortic enlargement, maybe, yo…

マルファンに似た外見的特徴のある子どもの画像検査について

Aortic Imaging: Your Questions Answered 40:25-41:06 Q:One person says that the doctor says that their child has a marfanoid physique, so they have the outward signs. What tests should be taken to confirm or rule out the aortic enlargement …

放射線による被曝について

Aortic Imaging: Your Questions Answered 38:54-40:21 Q:You mentioned before about the radiation. Can you can you explain the risks associated with exposure to radiation? 放射線による被曝について教えてください。 A:So, you know, repeat imagin…

MRIの代わりとなる検査について

Aortic Imaging: Your Questions Answered 37:43-38:58 Q:If somebody can't have an MRI can the same information be gleaned from an echo and a CT? MRIを受けられない場合、心エコーやCTで代用できますか? A:Yes, from CT. So one thing about MRI I w…

動脈瘤を見つけるにはどの検査がいいか?

Aortic Imaging: Your Questions Answered 36:44-37:43 Q:So somebody with even with, so without the aortic aneurysm and they're just being followed. Should two or three different types of imaging be done, if not, which type gives the clearest…

動脈瘤を見つけるにはどの検査がいいか?

Aortic Imaging: Your Questions Answered 36:44-37:43 Q:So somebody with even with, so without the aortic aneurysm and they're just being followed. Should two or three different types of imaging be done, if not, which type gives the clearest…

動脈瘤のサイズが大きい場合、心エコー検査のみでよいか?

Aortic Imaging: Your Questions Answered 35:48-36:42 Q:Somebody saying they have an ascending aortic aneurysm of 4.8. Is having an echocardiogram enough? Of course they have additional tests. They are having only echocardiogram that that's …

漏斗胸がある場合の画像検査は何を選択するか?

Aortic Imaging: Your Questions Answered 34:35-35:45 Q:Somebody, you know, pectus excavatum is a major finding in Marfan or the indented chest, one, which test should somebody get? One doctor told this person that they should not get an ech…

画像検査の結果に疑問がある場合はどうしたらいいか?

Aortic Imaging: Your Questions Answered 32:06-34:28Q:What, you know, as you can tell from these questions that people in our community are very educated about, about their condition and now after hearing this your presentation they're real…

画像検査データのコピーはもらうべきか?

Aortic Imaging: Your Questions Answered 32:06-33:07 Q:Should patients request copies of their of their results or is this not something patients should do? 画像検査結果のコピーはもらうべきでしょうか? A:I think they should and they should …

どういった医療者が画像検査を行うべきか?

Aortic Imaging: Your Questions Answered 30:24-32:04 Q:And that goes to this other question which is, you know, who should be doing this? Does surgeon recommend the technicians? You and I talked about this a little bit the other day but how…

画像検査で注目すべきポイントはどこか?

29:37-30:22 Q:What specifically is most important on the results that someone with Marfan or a connective tissue condition should pay attention to? 画像検査の結果で、マルファン症候群などの結合組織疾患の患者さんが注目すべき最も重要な点はど…

小児のスポーツについて

Exercise and Marfan, LDS, and VEDS: The Latest Research 1:07:14-1:08:58 There are questions about, you know, what about the youngest, the youngest children and physical activity and sports and recreation and things like that and I've learn…

筋トレは必要か?

Exercise and Marfan, LDS, and VEDS: The Latest Research 1:04:32-1:07:12 And then some ask about one doing isometric exercise and I've been doing it for years and, and so the person that does push-ups and sit-ups and things like that, you k…

大動脈手術後の運動について

Exercise and Marfan, LDS, and VEDS: The Latest Research 1:03:57-1:04:29 A lot of them have to do with, you know, what if I've had surgery, so I've had my valve replaced or I've had my aorta replaced in part or and what does that mean for e…

運動中の血圧測定について

Exercise and Marfan, LDS, and VEDS: The Latest Research 1:02:21-1:03:47 Q:Is there anything, any particular blood pressure monitor that you'd recommend people use during exercise? 運動中に血圧を測定する場合、おすすめの方法はありますか? A:…

マルファンマウスの運動に関する研究について

Exercise and Marfan, LDS, and VEDS: The Latest Research 1:00:53-1:15:14 Q: So beginning questions are about the studies that you presented early on, talking about the mice because people were putting those questions in while they were list…

機械弁でも出産は可能か?

Family Planning and Pregnancy: US and Europe Perspectives 1:05:26-1:07:51 Q: Do you have any women with Marfan who have also received a mechanical heart valve and are on blood thinners carrying a baby to term? You want to take that? Julie …

ロサルタン以外のARBの効果について

Aortic Disease Research (9/19/22) 51:42-53:41 Q: Karen, who we know, she wants to know is Valsartan as effective as Losartan in diminishing growth of the aorta. Eileen: 大動脈の拡張を抑えるという点では、バルサルタンでもロサルタンと同じくら…

大動脈手術の将来について

Advances in the Treatment of Aortic Dissection 58:00-1:00:10 Q: How do you feel about this the state of aortic surgery right now. What are you looking forward to in the future? What do patients have to look forward to? Eileen:大動脈手術の…

大動脈解離が外科手術なしで治ることがあるか?

Advances in the Treatment of Aortic Dissection 56:12-57:53 Q: Does the dissection ever heal so that surgery isn't necessary or does it stabilize, does it ever heal? Eileen: 大動脈解離が自然に治って手術が不要になったり、安定するということは…

大動脈解離手術後の画像検査について

Advances in the Treatment of Aortic Dissection 54:46-56:09 Q: And I'm on the other end, Dr. Ohman, you talked about long-term surveillance after the surgery, so how frequently with what kind of imaging, you know, what do you recommend for …

大動脈解離の前兆はあるか?

Advances in the Treatment of Aortic Dissection 53:56-54:46 Q: People want to know, I mean, they see obviously that it's better to have surgery prophylactically than emergently. Besides the size, which they would know themselves, are there …

10代の大動脈手術について

Advances in the Treatment of Aortic Dissection 52:29-53:56 Q:So I know you you both do a surgery on adults, correct? and so some people are asking about some of this information pertains to children as well. Obviously in Marfan and Loeys-D…

PEARSについて教えてください

Advances in the Treatment of Aortic Dissection 48:50-52:29 Q: I have a few questions about PEARS procedure, which we didn't talk about. So Alan, come back. I see you want to answer one of these but is there anything new on the PEARS proced…

AATS 2021 の最大の変更点について

Advances in the Treatment of Aortic Dissection 42:25-44:02 Q:Let's start with a question for Dr. Moon. You mentioned the new AATS guidelines.What, what were the, were big three big changes that came out of that? Eileen: では、最初の質問はM…

SMAD2遺伝子単体の遺伝子検査は推奨されるか?

What’s in Your LDS Family Tree? Genetics, Variability, Outcomes (September 1, 2020) 1:06:12-1:12:10 So last question because we're running up on time and this is actually a question I've been struggling with as well. Knowing that testing p…