海外マルファン情報

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

Entries from 2019-06-22 to 1 day

マルファン治療医のやりがいとは

How has a patient's experience changed over the course of your career? I have a number of people who I started treating when they were adolescents or younger, who have now had children of their own and I take care of their children. 私には…