海外マルファン情報

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

Entries from 2021-04-01 to 1 month

Marfan関連疾患におけるCOVID最新情報 ~ACEI・ARBの服用~

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 23:11-24:19 As you know early on there was a lot of concern among individuals on ACEIs and ARBs about whether this might be a problem and the reason for that is that the, the …

Marfan関連疾患におけるCOVID最新情報 ~人から人への感染~

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 20:34-23:06 So I'm going to ask Dr. Kim Eagle to start discussing our first study, which is on transmission. では、Kim先生に最初のトピックの「人から人への感染」について説明し…

Marfan関連疾患におけるCOVID最新情報 ~トピック~

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 19:36-20:33 Since our last webinar we're going to review some of the recent studies that have been published in areas that are specific for our community. このオンラインセミナ…

大動脈手術後の生活についてのオンライン座談会 ~回復までの経過~

Personal Perspectives Panel: Life After Aortic Surgery 8:32-11:34 So let me, let me get to our panelists, so what was, what was let's start with right after surgery, what was recovery like for you, were you, were you tired for a long time,…

大動脈手術後の生活についてのオンライン座談会 ~手術年齢について(医師の解説)~

Personal Perspectives Panel: Life After Aortic Surgery 5:58-8:26 Now we're going to go to David and I'm not going to ask you how old you are but we want to get a little we're going to lay the foun... では、David先生に話を伺いたいと思います…

大動脈手術後の生活についてのオンライン座談会 ~手術と年齢~

Personal Perspectives Panel: Life After Aortic Surgery 3:49-5:56 So Hi, everyone. I'm Peter. I am, I had my first surgery planned a month after I graduated high school, so I was 18 at the time. I had it down at Boston Children's Hospital. …

大動脈手術後の生活についてのオンライン座談会 ~パネリスト紹介~

Personal Perspectives Panel: Life After Aortic Surgery 2:37-3:48 So tonight we have five panelists, who are amazing. では、今夜参加していただく5名の素晴らしいパネリストの方をご紹介します。 As Michael said, we have Dr. David Liang, who's a …

マルファン症候群やロイス・ディーツ症候群では必ず大動脈の手術が必要か?

Aortic Root Surgery in Connective Tissue Conditions - Surgery Series (2/10/21) 1:05:42-1:06:33 Q:So do all, do all patients with Marfan or Loeys-Dietz need aortic surgery? マルファン症候群やロイス・ディーツ症候群の患者さんは必ず大動脈の手…

低侵襲手術およびステントについて

Aortic Root Surgery in Connective Tissue Conditions - Surgery Series (2/10/21) 1:04:17-1:05:41 Q:What about but you mentioned stents, what about stents or minimally invasive surgery with the connective tissue patients that we're talking ab…

PEARSの可能性について

Aortic Root Surgery in Connective Tissue Conditions - Surgery Series (2/10/21) 1:02:05-1:04:17 Q:We did talk about the PEARS up to here a little bit. Before Helene did put in the chat box a link to a big presentation that we had last year …

人工弁の種類について

Aortic Root Surgery in Connective Tissue Conditions - Surgery Series (2/10/21) 1:00:10-1:02:04 Q:I know you talked about the different types of valves what's the lifespan of the different valve type, what lasts the longest and what would y…

大動脈全体で置換できるの割合はどのくらいか?

Aortic Root Surgery in Connective Tissue Conditions - Surgery Series (2/10/21) 59:30-1:00:10 Q:Is there a limit to how much of the aorta can be replaced in both the ascending and/or descending? 大動脈全体のうち、置換できるのはどのくらいの…

大動脈全体で置換できるの割合はどのくらいか?

Aortic Root Surgery in Connective Tissue Conditions - Surgery Series (2/10/21) 59:30-1:00:10 Q:Is there a limit to how much of the aorta can be replaced in both the ascending and/or descending? 大動脈全体のうち、置換できるのはどのくらいの…

結合組織疾患では心臓手術からの回復は遅れるか?

Aortic Root Surgery in Connective Tissue Conditions - Surgery Series (2/10/21) 58:12-58:44 Q:Is the, is the recovery harder for patients with connective tissue conditions as opposed to patients who don't have connective tissue problems? 結…

急性心疾患とPTSDについて(2)

Aortic Root Surgery in Connective Tissue Conditions - Surgery Series (2/10/21) 53:21-56:34 And so we sent a survey and we're not the first ones to do surveys, ask people about sort of quality of life and lifestyle stuff after aortic dissec…

急性心疾患とPTSDについて(1)

Aortic Root Surgery in Connective Tissue Conditions - Surgery Series (2/10/21) 50:10-56:34 Q:So somebody asked a question about PTSD after surgery and I have to know that you're interested in this so or you have some data on it so... 手術…

心臓手術後の合併症について

Aortic Root Surgery in Connective Tissue Conditions - Surgery Series (2/10/21) 48:50-50:09 Q:Anyway during that post-surgery time what are the complicated, what are potential complications? What do you say if there are complications? 術後…

心臓手術、大動脈解離手術後の経過について

Aortic Root Surgery in Connective Tissue Conditions - Surgery Series (2/10/21) 46:56-48:20 Q:What's, what's the recovery rate for patients who have the surgery? 心臓手術後の回復経過について教えて下さい。 A:So the typical hospital stay in a…

大動脈基部に異変が生じた時の症状は?

Aortic Root Surgery in Connective Tissue Conditions - Surgery Series (2/10/21) 45:48-46:55 Q:What does it feel like for the patient if they're having an aortic root problem? Can they feel that something is wrong? 大動脈基部に異変が起きた場…

大動脈の最適な造影法は?

Aortic Root Surgery in Connective Tissue Conditions - Surgery Series (2/10/21) 44:45-45:47 Q: Which is, what is the best type of imaging to see that part of the aorta? 大動脈を検査するにあたっての最適な造影法は何でしょうか? A:CAT scan. CA…

大動脈解離と病院への搬送時間について

Aortic Root Surgery in Connective Tissue Conditions - Surgery Series (2/10/21) 42:46-44:44 Q:If it does dissect how long does somebody have to get to the hospital if it's an emergency situation? 大動脈解離を起こした場合、何時間以内に病院に…

動脈瘤と大動脈解離ではどちらが先に生じるか?

Aortic Root Surgery in Connective Tissue Conditions - Surgery Series (2/10/21) 41:23-42:44 Q:What typically happens first an aneurysm or a dissection? 通常、動脈瘤と解離ではどちらが先に生じるのですか? A:I'm gonna say aneurysm and although…

重度の漏斗胸がある場合、大動脈の手術に影響はあるか?

Aortic Root Surgery in Connective Tissue Conditions - Surgery Series (2/10/21) 39:21-41:18 Q:If a patient with Marfan has a deep pectus excavatum does that have any impact on how you do the aortic ...? マルファン症候群で重度の漏斗胸がある…

大動脈手術とCOVIDワクチン接種のどちらを先にしたらいいか?

Aortic Root Surgery in Connective Tissue Conditions - Surgery Series (2/10/21) 58:50-59:15 Q:If somebody's facing elective aortic surgery should they get the vaccine first or should they hold off getting having the surgery? 大動脈手術とCOV…

結合組織疾患の大動脈基部手術について ~大動脈解離B型~

Aortic Root Surgery in Connective Tissue Conditions - Surgery Series (2/10/21) 34:24-37:33 Well, what about beyond the root? では、大動脈基部から先の部位についてお話します。 Dr. Crawford, who is one of the real pioneers from Houston, who t…

結合組織疾患の大動脈基部手術について ~今後の展望~

Aortic Root Surgery in Connective Tissue Conditions - Surgery Series (2/10/21) 33:00-34:23 So what's next? What's next for how we're going to treat aortic roots and aortic valves? 大動脈基部や大動脈弁の治療に関して、今後期待できることを紹…