Personal Perspectives Panel: Life After Aortic Surgery
8:32-11:34
So let me, let me get to our panelists, so what was, what was let's start with right after surgery, what was recovery like for you, were you, were you tired for a long time, how long until you felt like normal and let's go to Victoria first.
では、術後の経過について伺います。回復までの経過はどうだったのか、疲れやすさは長く続いたのか、手術前の状態まで回復するにはどのくらいかかったのか、など教えて下さい。では、Victoriaからお願いします。
So I just want to say thank you to Dominga. She was kind of my surgery expert besides my obviously my amazing cardiologist and surgeon. You know, asking questions to other people and getting the honest feedback about how you actually feel was a huge thing, especially with recovery it takes it takes a while. You know, I got married two months almost to the date after my surgery, which was remarkable but if you really try hard you can be somewhat recovered by then by that time but I would say I was probably tired for three or four months after surgery.
私の場合は、なんといってもDomingaに感謝ですね。循環器内科とか心臓外科の先生が手術に詳しいのは当然ですが、手術の専門家がもうひとり増えた感じでした。手術を経験した他の人達に質問して、実際に感じたことについての率直なフィードバックをもらえたことが大きいですね。特に回復に関しては時間がかかりますから。私の場合は手術から約2ヶ月後に結婚しました。そのことはすごくうれしいことだったんですけど、頑張って努力すれば、そのくらいの時期にはある程度回復すると思います。私の場合は、術後3～4ヶ月は疲れやすかったですね。
Peter, what about you?
Peterはどう？
Yeah, so kind of like Victoria or I didn't get married to about two months after I had surgery. I started college. I started my freshman year of college so, you know, it was definitely, it was definitely a grind at the start, to just get back. I spent most of that summer just getting myself back into being able to walk, being able to do stuff, being able to live on my live, live on campus, so it was definitely a grind by three, four maybe three four maybe five months before I actually was in this before I actually felt like I was prior to I had before having the surgery.
Victoriaと似たような感じだった。でも手術から2ヶ月後に結婚はしていなかったけどね。僕の場合は大学に入学して、徐々に体を慣らしていた時期で、本当につまらなかった。大学一年の夏は、元の生活を取り戻そうとして、歩いたり、身の回りのことをしたり、自分の力で大学生活を送れるように頑張っていたんだ。だから、本当に大変で、手術前の状態に戻れるようになったのは、多分3ヶ月とか4ヶ月、5ヶ月くらいかかったと思う。
Dominga, do you ever, did you think at one point, "Okay, oh wow I feel like myself again" Did that like hit you at a certain point?
Domingaは元の自分に戻れたって感じた瞬間はあった？
I, honestly, I don't think it hit me at any particular point. I think it was something that was very much gradual and just every, every now and again it was like okay this feels good or this feels normal or normal. What is normal? But it felt right, it felt better, it felt better. I think for me I was in a similar situation to Peter where I was focusing on making sure I could get back for my senior year of college, so I had a goal and I think that definitely helped me because it was something to look forward to, Victoria your wedding. It's something to look forward to. It's something to work towards and that definitely helped but even when I got back to school there were still moments of fatigue. There was like it wasn't as easy. I went to school in New York. it wasn't as easy to run for the subway at all but so there was still a lot of recovery time even every now and again you think when you think you're at a good space sometimes, sometimes you just have to step back and take that breath again.
正直そんな瞬間はなかったの。本当に少しずつ、少しずつだった。時々体調がいいって思ったし、これが普段の自分だって思うこともあったんだけど。でも普段の自分って何？まあ、とにかく徐々に良くなっていったってこと。Peterと同じような状況だったけど、私の場合は大学4年になるまでには、手術前の自分に戻れるように頑張っていたわね。目標があったから頑張れたんだと思う。将来の希望があったから。Victoriaにとっては結婚だったでしょ。復学してからも疲れを感じたことはやっぱりあって、そんな簡単には行かないなぁって思った。ニューヨークの大学だったんだけど、地下鉄に乗ろうして走るのだって全然楽じゃなかったわ。回復には本当に時間がかかるの。未だに、ここなら大丈夫って思う場所だったら、休んで息を整えなきゃいけない時があるんだから。
Lauren, what what about you? Yours was emergency, so was your situation similar to everybody else?
Laurenの場合は緊急手術だったけど、回復までは皆と同じ？
Yeah, just about the similar timeline. My biggest, when I felt normal, was when I drove like I was like I can drive again okay like freedom but I would say like enter normal energy level probably three, four months.
そうね。大体同じ。私が手術前の自分に戻れたって一番思うのは、ドライブの時ね。「またドライブできるわ。私は自由、自由よ～」って思うの。まあ、元通り元気になるには、3、4ヶ月だと思う。
The Marfan Foundation did not participate in the translation of these materials and does not in any way endorse them. If you are interested in this topic, please refer to our website, Marfan.org, for materials approved by our Professional Advisory Board.
The Marfan Foundation は、当翻訳には関与しておらず、翻訳内容に関してはいかなる承認も行っておりません。このトピックに興味をお持ちの方は、Marfan.org にアクセスし、当協会の専門家から成る諮問委員会が承認した内容をご参照ください。
