New ACC/AHA Aortic Disease Management Guidelines: What do they mean for you? 54:38-55:36 Another section of the paper was talking about quality of life both in the importance of regular mild to moderate physical activity and if you're not …

Living with Risk 44:21-45:38 And these last few thoughts I have them listed as considerations for kids but honestly they're really appropriate for all of us. Learning and practicing different calming and relaxation skills, facilitating con…

Living with Risk 41:54-44:18 All right, so I'm gonna try to go through these pretty quickly and we can save a little time for it in the Q&A but a few thoughts that I have on considerations for supporting our little people in coping with th…

Living with Risk 38:14-41:51 So just a couple notes on strategies for coping with risk. First and foremost, we, we need to be looking for opportunities for support and validation. We need to find that in our families and friend groups and …

Living with Risk 34:55-38:12 All right, so tonight's presentation is all about talking about risk and the impact that risk has on our emotional health and I want to really name that our awareness of risk although it can negatively impact o…

Living with Risk 32:54-34:52 So I'm gonna talk a little bit about the emotional impact of living with chronic risk and I'm going to try to fly through this. I feel like this is a huge topic to try to cover in a short period of time so I'm …

Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 51:12-56:46 So I think I have a question, I think this goes along with role modeling that you were talking about, Allan, where like a parent wants to, once, wants to know how …

Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 49:54-51:12 Mark, can you explain more about the visuospatial versus verbally you talked about? I think people want specific examples of what you mean by visuospatial. Mark先…

Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 47:22-49:53 So can we just talk a little bit about social development because people want to know, like when, when a child's diagnosed, then they transition into adolescence, …

Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 43:09-45:16 Now as also Alan kind of talked about there's very, very little in the way of studies on a group level looking at Marfan syndrome and so there's one good, there's …

Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 41:01-43:07 So more to the point of why we're here. As I said I work not just in the connective tissue disorder clinic here but also amongst the few cardiac populations and th…

38:10-40:58 So this is a fairly common task that both kids and adults would get in a neuropsych test. このスライドでは、子ども・成人問わず受ける可能性がある、ごく一般的な脳機能検査を紹介しています。 It's, we give them blocks like this. Tha…

Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 35:50-37:08 Now process of, if you're not familiar just and you're curious about neuropsych functioning or neuroscience testing we'll just go through it real quick. では、神経…

Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 34:43-35:48 So yeah, just real quickly kind of going through the domains of what is assessed in general and any, ideally in any neuropsych function. It won't necessarily be al…

Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 32:51-34:42 Now really kind of what do, I do and what is neuropsychology. I suspect if you ask my family and a lot of my friends they really wouldn't have an idea of what I do…

Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 29:03-32:50 So, I'm Mark Beidelman. As we kind of mentioned before my quick, just a quick little thing about my background because I will be probably talking about this a litt…

Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 27:50-28:45 So last two slides I would say when you're thinking about intervention in particular don't get discouraged as the first thing that you try is not working because s…

Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 24:05-27:49 All right, so what can you do? Here's, this is just kind of an outline and again in the Q&A we will get into more details. ではストレスへの対処法についてお話したい…

Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 22:48-24:03 The potential mental health issues of both the primary connective tissue disorder as well as pandemic that we see commonly in our patients include anxiety, depress…

Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 19:44-22:46 Okay so, I promised we would get to this medical associated stressors. This is, this is a big issue as, as you folks know in our population. では、お約束していたよ…

Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 15:09-17:53 So does Marfan syndrome increase risk for neuropsychiatric or learning disorders? I don't know. I have absolutely no definitive idea at this point but we can answe…

Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 12:03-15:06 Let's get to it now. In terms of connective tissue disorder so is there genetic risk for brain effects in Marfan syndrome? では結合組織疾患、特にMarfan症候群では遺…

Personal Perspectives Panel: Physical Activity & Exercise 10:51-12:02 Okay, some of you may have heard about DSM disorders or ICD-10, DSM-5 disorders. This is diagnostic and statistical manual. This is what people in the field use to make …

Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 8:10-10:50 Okay, so along those lines let's talk about some important concepts about genes, environment and what we call G x E or that's genes by environment interaction. では…

Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 6:32-8:09 Okay, so it's, it's a pleasure to be here and be able to talk to the folks who have registered for this webinar about what the current state of the knowledge is with…

Open Thoracoabdominal Repair: Surgery Series (2/16/21) 50:10-51:40 Q:What's your experience, somebody's asking about PTSD, grief, depression after this surgery. Now that's less than the mechanical part that you're doing but that's definite…

Personal Perspectives Panel: Life After Aortic Surgery 45:01-46:53 David, is there anything else that you tell your patients ahead of time before they go into surgery? You're on mute. では、David先生、手術前に患者さんに知っておいてもらいた…

Personal Perspectives Panel: Life After Aortic Surgery 45:01-46:53 David, is there anything else that you tell your patients ahead of time before they go into surgery? You're on mute. では、David先生、手術前に患者さんに知っておいてもらいた…

Personal Perspectives Panel: Life After Aortic Surgery 19:07-21:41 Now there's another part of the mental part and Lauren and I were talking about it on the phone yesterday because you still have to watch the rest of your aorta and be moni…

Personal Perspectives Panel: Life After Aortic Surgery 14:29-19:06 You know, so some people asked about the mental, the mental process as well. It's not just physical recovery and also as you move on in your life but, you know, during this…