海外マルファン情報

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

Entries from 2023-04-01 to 1 month

大動脈疾患の診断と管理に関するACC/AHAガイドライン2022 ~予防的外科手術の目安~

New ACC/AHA Aortic Disease Management Guidelines: What do they mean for you? 20:53-25:55 Dr. DeAnda is going to talk about some of the surgical thresholds. では、DeAnda先生から外科手術のしきい値についてお話いただきます。 Some of this has c…

大動脈疾患の診断と管理に関するACC/AHAガイドライン2022 ~遺伝学的推奨事項~

New ACC/AHA Aortic Disease Management Guidelines: What do they mean for you? 17:08-20:51 The recommendations are written like this, so I won't go over every single one but it emphasizes again in somebody, in a patient who has thoracic aort…

大動脈疾患の診断と管理に関するACC/AHAガイドライン2022 ~遺伝子検査~

New ACC/AHA Aortic Disease Management Guidelines: What do they mean for you? 14:07-17:03 So what we're going to do over the next half hour or so is we're going to review some of the topics that are encompassed in the new guidelines based o…

大動脈疾患の診断と管理に関するACC/AHAガイドライン2022 ~共同での意思決定に関する医師の見解~

New ACC/AHA Aortic Disease Management Guidelines: What do they mean for you? 10:57-14:08 So this is not a new concept but I think what's so important about the document is how all these various numbers and sizes and things that we talk abo…

大動脈疾患の診断と管理に関するACC/AHAガイドライン2022 ~患者と医師による共同の意思決定~

New ACC/AHA Aortic Disease Management Guidelines: What do they mean for you? 9:03-10:48 Maya Brown Zimmerman is going to talk to us about one of the most important aspects of the guidelines, the concept of shared decision making. では、ガ…

大動脈疾患の診断と管理に関するACC/AHAガイドライン2022 ~大動脈径の計測方法~

New ACC/AHA Aortic Disease Management Guidelines: What do they mean for you? 7:10-9:00 One of the most important parts of the guidelines is really a whole section on emphasizing how to measure the aorta. Everyone who sees individuals and, …

大動脈疾患の診断と管理に関するACC/AHAガイドライン2022 ~大動脈の構造~

New ACC/AHA Aortic Disease Management Guidelines: What do they mean for you? 3:56-7:06 This is the front page of the document that Maya and Abe and I are going to review. Some of the information on updates in genetic aortic disease, its ev…

栄養チューブについて

Loeys-Dietz Gastroenterology and Allergy Q&A 42:34-45:52 Q:At what point do you decide a child needs a feeding tube? In this example as a seven-year-old that's really struggling to put on weight. 栄養チューブが必要となるのはどの時点でしょ…

エピペン使用の判断基準・食物経口負荷試験について

Loeys-Dietz Gastroenterology and Allergy Q&A 38:57-40:39 Q:We've had a couple of questions. I see Julie, I know Lincoln has tree nut allergies, so asking about a young child a type 2, you know, when would you use an EpiPen, would you not u…

慢性的な嘔吐について

Loeys-Dietz Gastroenterology and Allergy Q&A 35:55-37:00 Q:Would you say the same for chronic or even like periodic vomiting? 慢性的な嘔吐や周期的な嘔吐の対処法を教えてください。 A:Absolutely, so, if, if, if you have chronic vomiting that …