海外マルファン情報

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

後部硝子体剥離について

Insights on Ocular Management for Marfan Syndrome 49:52-50:42 Q: This person recently had a posterior vitreous detachment. She's 57 and she has Marfan syndrome. “My retina was fine at the time and six weeks later, so is PVD more common in …

補助的な眼内レンズの挿入について

Insights on Ocular Management for Marfan Syndrome 47:42-49:33 Q: This person is 34 years old and had both lenses removed when they were 15 or 16. They wear high-powered contacts and glasses to see. Unfortunately their vision is so much bet…

白内障手術後の網膜剥離発症リスクについて

Insights on Ocular Management for Marfan Syndrome 45:36-47:32 Q: What is the chance of a retinal detachment after lens replacement surgery? Is there anything that can be done to prevent it? 水晶体の交換手術の後に網膜剥離を発症する可能性は…

網膜剥離手術後も浮遊物や光が見えるのですが…

Insights on Ocular Management for Marfan Syndrome 44:09-45:34 Q: This person has had a retinal detachment a few years ago but she's still having, dealing with floaters and flashers. Her specialist said that it would go away after surgery b…

眼内レンズを入れなくてもいいのでは?

Insights on Ocular Management for Marfan Syndrome 42:37-44:06 Q: Since putting a lens back into your eye is very tricky do you think it's best not even to put a lens back into the eye after cataract surgery? 眼内レンズを入れるのはすごく大…

水晶体が硝子体内に落下したらどうするか?

Insights on Ocular Management for Marfan Syndrome 41:16-42:35 Q: If the lens falls into the vitreous then does the surgery become much more complicated? 手術中に水晶体が硝子体に落ちてしまったら、手術はもっと大変になりますか? A: If the len…

水晶体偏位に対する手術法について

Insights on Ocular Management for Marfan Syndrome 40:07-41:13 Q: What type of surgery is best for the dislocated lenses? They, they've heard of the iris claw, etc., but how do you choose? 水晶体がズレた場合には、どの手術法がベストなのでし…

ロイス・ディーツ症候群の白内障手術におけるリスクについて

Insights on Ocular Management for Marfan Syndrome 38:38-40:04 Q: Are there any risk factors for cataract surgery for people with Loeys-Dietz syndrome? ロイス・ディーツ症候群の白内障手術では、どのようなリスク因子がありますか? A: Yeah, it’s…

円錐角膜とマルファン症候群の関連について

Insights on Ocular Management for Marfan Syndrome 37:11-38:36 Q: This one says I have keratoconus and which I've been told is basically the opposite of a subluxed lens issue with Marfans. Is this just an unrelated eye condition or do you k…

白内障手術でドライアイは悪化するか?

Insights on Ocular Management for Marfan Syndrome 35:40-37:07 Q: I already have quite dry eyes. Will lens replacement aggravate this? I haven't found any eye drops that helps. Do you have any suggestions? ドライアイがひどいのですが、白内障…

白内障手術を片目だけしてもいいか?

Insights on Ocular Management for Marfan Syndrome 33:52-35:35 Q: Is it possible for me to have lens replacement surgery just for my right eye, which is a much weaker one. The vision in my left eye is not too bad, so I'd like to leave it al…

マルファン症候群における眼科的管理の考察 〜眼科的管理の目標〜

Insights on Ocular Management for Marfan Syndrome 32:10-33:38 So the goal in the end whatever condition you have is to maintain the excellent and equal vision in both eyes. では最後に、眼科管理の目標を説明して終わりたいと思います。まず、ど…

マルファン症候群における眼科的管理の考察 〜弱視・斜視〜

Insights on Ocular Management for Marfan Syndrome 29:27-32:08 Amblyopia, layman term is just lazy eye. This is specifically for children and when you're adult you have a lazy eye nothing we can do about it. You pass that developmental stag…

マルファン症候群における眼科的管理の考察 〜近視・乱視〜

Insights on Ocular Management for Marfan Syndrome 26:07-29:26 Now we get into some quote unquote minor problems. Those can be visually significant as well, so do keep those things in mind. Myopia meaning being nearsighted and this is the n…

マルファン症候群における眼科的管理の考察 〜緑内障〜

Insights on Ocular Management for Marfan Syndrome 21:45-26:05 Another really vicious threatening condition is glaucoma. This is again, is a schematic of the eye. Glaucoma by definition is optic nerve damage. Optic nerve is right here. It's…

マルファン症候群における眼科的管理の考察 〜網膜剥離〜

Insights on Ocular Management for Marfan Syndrome 14:24-21:44 Detached retina, that is a very fearful condition. I hear this from Marfan patient all the time simply because the, this occurrence is much higher than the general population. G…

マルファン症候群における眼科的管理の考察 〜白内障手術〜

Insights on Ocular Management for Marfan Syndrome 8:51-14:23 We get into that a little bit more, so this is the real patient and they do have another condition not, other than dislocated lens. You can get this called a presenile cataract. …

マルファン症候群における眼科的管理の考察 〜水晶体偏位〜

Insights on Ocular Management for Marfan Syndrome 4:53-8:48 What are the Marfan conditions, ocular conditions, so this is a cartoon basically showing the diagram of the schematic of the eye. This is only the front part and if you will and …

マルファン症候群における眼科的管理の考察 〜トピックの紹介〜

Insights on Ocular Management for Marfan Syndrome 2:21-4:53 My plan is to go over the conditions and it's about 25 minutes or so. I hope I've have enough time, plenty time to answer some questions that you may have, so this is the list of …

LDSガイドラインの改訂に向けて ~眼の疾患~

LDS Guidelines: Then vs. Now 57:36-58:37 In terms of eye disease we do see retinal detachment. I know some of your questions are, what's common, what's not, what's rare, what do I have to be worried about. 眼の疾患については、一般的な眼の…

ロイス・ディーツ症候群と眼の疾患

What’s in Your LDS Family Tree? Genetics, Variability, Outcomes (September 1, 2020) 56:57-58:04 What type, this is kind of a clinical question, but we'll take a detour. Is there any specific type of eye muscle disorder present in LDS, spec…

マルファン症候群をはじめから ~心臓以外の所見のフォロー・治療~

Marfan Syndrome Management: Back to Basic 19:14-20:23 And what about non-cardiac surveillance and treatment? 心臓以外の所見に関する検査と治療について説明します。 We recommend serial ophthalmology evaluations in children. It's every year. I…

マルファン症候群をはじめから ~眼の所見~

Marfan Syndrome Management: Back to Basic 10:23-11:39 So what about the eyes in Marfan syndrome? So this is the second most affected besides skeleton and so the eye is the most common finding or the most, the most pathognomonic finding is …

変性近視の治療は可能か?

Eye Issues and Treatment in Marfan Syndrome, Stickler Syndrome, and Other Related Conditions 1:01:11-1:02:24 Q:Somebody with Marfan syndrome has myopic degeneration caused by severe elongation of the eye. Do you have any new treatments to …

閃輝暗点について

Eye Issues and Treatment in Marfan Syndrome, Stickler Syndrome, and Other Related Conditions 1:00:04-1:00:58Q:What does the term, "eye migraine" mean and why does it occur? 閃輝暗点とは何でしょうか?原因は何ですか?A:That is a million-doll…

人工レンズ装着後の再手術について

Eye Issues and Treatment in Marfan Syndrome, Stickler Syndrome, and Other Related Conditions 58:56-59:59 Q:If you had secondary ocular implants and the lens moves after 10 years or so, should you fix it or leave it? 2度目に入れた人工レンズ…

強膜バックリング術について

Eye Issues and Treatment in Marfan Syndrome, Stickler Syndrome, and Other Related Conditions 57:17-58:52 Q:Can you talk about scleral, scleral buckle? Have you seen young patients have to get a second buckle later in life? 強膜バックリング…

虹彩切開術について

Eye Issues and Treatment in Marfan Syndrome, Stickler Syndrome, and Other Related Conditions 56:28-57:15 Q:From somebody with stickler. His retina surgeon placed the small hole at the bottom of his iris. Is this useful to prevent glaucoma?…

マルファン症候群では角膜の所見はあるか?

Eye Issues and Treatment in Marfan Syndrome, Stickler Syndrome, and Other Related Conditions 55:00-56:26 Q:Is there, is there also a connection between Marfan syndrome and cornea presentation? マルファン症候群と角膜の症状との関連はあります…

マルファン患者が水晶体亜脱臼を発症しやすい年齢はあるか?

Eye Issues and Treatment in Marfan Syndrome, Stickler Syndrome, and Other Related Conditions 53:58-54:58 Q:In general, is there a time of life that Marfan patients experience ectopia lentis, you know, when they're young, middle aged, or is…