海外マルファン情報

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

Entries from 2025-01-01 to 1 year

スキーについて

Applying AHA's 2024 Scientific Statement: Navigating Diagnosis & Management of Pediatric Aortopathy 33:50-35:47 Q: There are parts of the world where skiing is a way of life. What are your thoughts around counseling families with aortopath…

就学前および小学校における運動についてのアドバイス

Applying AHA's 2024 Scientific Statement: Navigating Diagnosis & Management of Pediatric Aortopathy 30:46-33:47 Q: Any tips for discussing the exercise at the preschool age and also with a child but also with the school? What recommendatio…

ハイリスクな運動とは?

Applying AHA's 2024 Scientific Statement: Navigating Diagnosis & Management of Pediatric Aortopathy 28:21-30:41 Q: Can you clarify what determines low versus high risk on the exercise table? ステートメントの表にあるハイリスク(ダークブルー…

早期発症型マルファン症候群(Early-onset Marfan syndrome)とは?

Applying AHA's 2024 Scientific Statement: Navigating Diagnosis & Management of Pediatric Aortopathy 25:30-28:18 Q: What would be considered “Early-onset Marfan syndrome”? 早期発症型マルファン症候群(eoMFS:Early-onset Marfan syndrome)と考…