海外マルファン情報

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

Entries from 2020-04-01 to 1 month

Marfan患者がCOVID-19に感染した場合、CPAPの利用は可能か?

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 57:25-58:54 I'll step in with the CPAP question. The general consensus among the pulmonologist and intensivist about CPAP with COVID is that it's probably not an ideal choice and that i…

COVID-19の治療に結合組織疾患の患者が使うべきではない薬はあるか?

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 52:14-57:28 "Are there any medications given to treat this virus that patients with connective tissue disorders should not be given?" So we talked about a few of those. Are there anythi…

マルファン関連疾患では、人工呼吸器の圧力設定はどのくらいがいいのか?

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 48:38-52:07 "If we need to be in the hospital or on a ventilator, do we need higher or lower ventilator pressures?" 「病院で人工呼吸器を使うことになったら、人工呼吸器の圧力は高いほうが…

ストレッチマークについて

はじめに マルファン症候群でのストレッチマークの治療について はじめに 皮膚のストレッチマーク(萎縮性皮膚線条)は、誰にでも生じる可能性があり、特に思春期の急激な成長、妊娠、著しい体重の増減の結果として現れます。マルファン症候群の方のストレッ…

ロイス・ディーツ症候群では、COVID-19の治療に通常とは異なる治療法が必要か?

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 47:54-48:37 "Does someone with Loeys-Dietz syndrome or require any different treatment?" 「ロイス・ディーツ症候群では、通常とは異なる治療法が必要となるか?」という質問に回答します。 Now…

Marfan患者はCOVID-19を乗り越えられるのか?

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 45:11-47:53 So we'll go over a few of them one of the first one is "Can an individual with Marfan receive treatment and survive COVID-19?" So, Hal, do you want to take that? 最初の質問…

COVID-19とマルファン関連疾患 ~対症療法について~

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 39:53-45:07 Great, thanks. Let's have the next slide, so Enid you want to talk about some of these pain relievers and other ways to relieve nasal congestion. 次のスライドは痛み止めの薬…

COVID-19とマルファン関連疾患 ~抗菌薬について~

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 34:35-39:50 Okay, can we have a next slide? Hal, do you want to take this one with the antibiotic clip? 次のスライドは抗菌剤についてです。Dietz先生お願いします。 Sure, um so COVID-19 is…

COVID-19とマルファン関連疾患 ~市販薬について~

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 32:09-34:34 Now in terms of the medications to take, I think over-the-counter medications are fairly safe except for the decongestants that have sudafed or pseudoephedrine-related compo…

COVID-19とマルファン関連疾患 ~気を付けるべき症状~

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 29:51-33:04 Can we have the next slide? So the next couple of slides is just go over some important points on how to treat yourself if you do get some kind of flu or cold or virus such …

COVID-19 ハイリスク患者と人工呼吸器

肺疾患および心疾患の基礎疾患のある患者はハイリスクか? ハイリスク肺疾患 ハイリスク循環器疾患 その他のハイリスク疾患 人工呼吸器の使用 肺疾患および心疾患の基礎疾患のある患者はハイリスクか? マルファン症候群、血管型エーラス・ダンロス症候群(V…

COVID-19とマルファン関連疾患 ~ハイリスクとは考えられない循環器疾患~

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 26:33-29:48 Hal, do you want to take the other cardiovascular items listed here on the list? Dietz先生、このリストにある心血管疾患について説明をお願いします。 Sure, one thing I would me…

COVID-19とマルファン関連疾患 ~ハイリスクな肺疾患~

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 21:49-26:31 So you know, many patients even though we have all of these subgroups of whom is at higher risk are asking about certain features that they have, so maybe we can just go thr…

COVID-19とマルファン関連疾患 ~気になる疾患がある場合はどうするか~

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 20:43-21:48 We have the next slide. So as you said, Hal, you did make the point that if a patient only cardiovascular feature is an isolated aortic root enlargement or aneurysm and real…

COVID-19とマルファン関連疾患 ~肺に関する注意事項~

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 19:21-20:42 I share one other point before we move on. 私の方から一点補足したいと思います。 So as Enid was mentioning, people with many of these diagnoses can be at risk for a pneumotho…

COVID-19とマルファン関連疾患 ~呼吸器・循環器以外の疾患~

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 13:41-17:56 So Dr. Dietz, there's a few of the other disorders that may also have a higher risk for severe complications that are listed on this slide, you know, that mainly deal with L…

COVID-19とマルファン関連疾患 ~循環器~

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 9:30-13:25 And so this slide outlines those about cardiovascular diagnosis that may lead to somebody having a more severe reaction to the virus, so Dr. Dietz, can you go over some of th…

COVID-19とマルファン関連疾患 ~肺疾患~

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 7:12-9:20 So let's go over some of those characteristics that the high-risk features that the PAB has put together and the first part that we'regoing to look at is those that affect the…

マルファン関連疾患の場合、COVID-19の感染リスクと重症化リスクのどちらが高くなるのか?

COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 5:20-7:10 Q:So Dr. Dietz, we'd like to ask you whether what does "increase from COVID" mean? Does it mean you have an increased risk for contracting COVID or does it mean that you have …