Personal Perspectives Panel: Life After Aortic Surgery 24:39-31:16 So that's great. Let's, let's see how it looks in real life. So Peter, let's go to you, so tell us about what you do and if it's and if it's really bad don't say it out lou…

Personal Perspectives Panel: Life After Aortic Surgery 21:42-24:39 I want to go to David for the next question. A lot of people asked about going back to exercise after their operation and after recovery or during recovery or what could th…

2021年5月13日 Bridget Porter (Metz) はじめに ニックの使命 希望の光に 将来の目標 はじめに 2020年12月3日の午前中のこと。カリフォルニア州に住む16歳のニック・メッツは、同世代の若者たちと同様、自宅でオンライン授業を受けていました。そんな彼を無…

Personal Perspectives Panel: Life After Aortic Surgery 19:07-21:41 Now there's another part of the mental part and Lauren and I were talking about it on the phone yesterday because you still have to watch the rest of your aorta and be moni…

Personal Perspectives Panel: Life After Aortic Surgery 14:29-19:06 You know, so some people asked about the mental, the mental process as well. It's not just physical recovery and also as you move on in your life but, you know, during this…

Personal Perspectives Panel: Life After Aortic Surgery 11:35-14:28 Everybody sounds pretty similar. David, what do you tell patients about what to expect and what they can do to help their recovery? 皆さん、術後については同じような経験をさ…

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 1:07:34-1:12:01 Q:In Canada they are delaying the second vaccine for Pfizer and Moderna for four months, up to four months. Is it risky for conditions that have cardiac, that …

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 1:03:38-1:05:23 Q:When do you think there will be a vaccine for children? 子供を対象としたワクチン接種はいつ始まるのですか？ A:I actually think that the recommendations will, …

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 1:02:37-1:03:34 Q:There's a question here about whether they can take Tylenol or Advil after having a vaccine? COVIDワクチン接種後は、アセトアミノフェンやイブプロフェンを飲ん…

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 1:01:03-1:02:34 Q:So we have some questions about, you know, getting infected with COVID and we've heard about a multisystem inflammatory syndrome response after recovering fr…

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 57:44-1:01:00 Q:So they have another, there's another question here by Alex. That is similar, saying that Israel is examining 62 cases where people experience inflammation of …

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 55:45-57:41 Q:Do we know yet if there is a more common reaction to COVID-19 for people with vascular connective tissue disorders and we saw that we had a small NIH study of ma…

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 54:30-55:31 Q:He has a question about being on warfarin therapy for about 40 years. Should he be concerned about potential clotting or related events upon vaccination? 40年間…

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 51:48-54:01 Joe, could I just add a couple of points and one of these is Dr. Nunez, kind of mentioned but I, I wanted to reinforce the fact that the recommendation currently i…

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 49:32-51:31 And, and these are, this is a slide that I, I simply wanted to show the audience. You, you hear on the news these various types of variants and where they've come …

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 47:57-49:21 Some of my patients are asking me, "Can I get infected if I've been vaccinated?" and this really gets at the question of how effective are the vaccines and can a p…

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 46:34-47:56 I want to just comment on one one aspect of Enid's presentation that I think is, is relevant to us. 先ほどのEnid先生の説明に付け加えたいことがあります。 This, she …

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 43:12-46:14 So does that mean the vaccine is unsafe? No, that does not mean the vaccine is unsafe では、J&Jワクチンは危険かというとそうではありません。 So the number that you …

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 41:30-43:09 So many people who had already received the J & J vaccine or who were planning to receive the J & J vaccine were alarmed several days ago when the FDA asked for a …

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 38:53-41:27 So some people have asked, "Well, what makes the Johnson and Johnson vaccine different?" and I explained earlier that it was generated using a platform that we're …

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 35:28-38:48 So one of the, the questions that constantly comes up is what type of response should one expect after they've gotten the vaccine and what is normal and what is no…

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 33:42-34:52 Now the other kind of aspects of these vaccines as you look in the literature and as you hear kind of various things in the media is to recognize that they all hav…

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 31:05-33:41 This slide kind of depicts the current vaccines that are available and I want you to kind of look at the Moderna vaccine and the Pfizer vaccine as the two that wer…

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 29:56-31:04 Well, thank you so much for kind of inviting us back to talk with this incredibly savvy community. The, the first thing that, you know, I want to mention is that o…

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 27:58-29:30 We've also gone through the, the stages of asking how effective are convalescent plasma transfusions from individuals who've had the virus and volunteered to give …

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 27:04-27:57 You know, we've gone through a lot in terms of therapeutics, haven't we? The whole hydroxychloroquine story was we went full circle and it turned out that hydroxyc…

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 25:33-26:59 This is a very interesting survey that the NIH did looking at the question, "Does it look like COVID-19 has a predilection to cause worse outcomes in individuals w…

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 24:22-25:28 This is actually an important topic that came up in one of my patients recently, who was a young person with Marfan syndrome, who was preparing to have an aortic o…