海外マルファン情報

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

Entries from 2021-05-01 to 1 day

Marfan関連疾患におけるCOVID最新情報 ~アジスロマイシン~

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 27:04-27:57 You know, we've gone through a lot in terms of therapeutics, haven't we? The whole hydroxychloroquine story was we went full circle and it turned out that hydroxyc…

Marfan関連疾患におけるCOVID最新情報 ~遺伝性希少疾患におけるCOVIDの影響~

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 25:33-26:59 This is a very interesting survey that the NIH did looking at the question, "Does it look like COVID-19 has a predilection to cause worse outcomes in individuals w…

Marfan関連疾患におけるCOVID最新情報 ~COVID感染後の心血管手術~

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 24:22-25:28 This is actually an important topic that came up in one of my patients recently, who was a young person with Marfan syndrome, who was preparing to have an aortic o…