海外マルファン情報

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

Entries from 2023-01-01 to 1 month

小児のスポーツについて

Exercise and Marfan, LDS, and VEDS: The Latest Research 1:07:14-1:08:58 There are questions about, you know, what about the youngest, the youngest children and physical activity and sports and recreation and things like that and I've learn…

筋トレは必要か?

Exercise and Marfan, LDS, and VEDS: The Latest Research 1:04:32-1:07:12 And then some ask about one doing isometric exercise and I've been doing it for years and, and so the person that does push-ups and sit-ups and things like that, you k…

大動脈手術後の運動について

Exercise and Marfan, LDS, and VEDS: The Latest Research 1:03:57-1:04:29 A lot of them have to do with, you know, what if I've had surgery, so I've had my valve replaced or I've had my aorta replaced in part or and what does that mean for e…

運動中の血圧測定について

Exercise and Marfan, LDS, and VEDS: The Latest Research 1:02:21-1:03:47 Q:Is there anything, any particular blood pressure monitor that you'd recommend people use during exercise? 運動中に血圧を測定する場合、おすすめの方法はありますか? A:…

マルファンマウスの運動に関する研究について

Exercise and Marfan, LDS, and VEDS: The Latest Research 1:00:53-1:15:14 Q: So beginning questions are about the studies that you presented early on, talking about the mice because people were putting those questions in while they were list…

運動に関する最新研究 ~まとめ~

Exercise and Marfan, LDS, and VEDS: The Latest Research 57:28-59:47 Okay, Siddharth, thank you, so these are our conclusions. I guess we could read them together but I, I guess I will read the final. First and, we will take any questions t…

運動に関する最新研究 ~大動脈解離後の運動に関する臨床試験~

Exercise and Marfan, LDS, and VEDS: The Latest Research 49:27--57:20 So again, I think it's a great time now to study this in a prospective manner and gather information that can help prove this sort of information, is not only effective a…

運動に関する最新研究 ~ 2022 ACC/AHA 大動脈ガイドライン~

Exercise and Marfan, LDS, and VEDS: The Latest Research 48:09-49:27 I'll end my discussion with just one slide from the 2022 ACC/AHA guidelines on the diagnosis of management of aortic disease, which was published this last week and for th…

運動に関する最新研究 ~大動脈解離後の運動に関する研究~

Exercise and Marfan, LDS, and VEDS: The Latest Research 46:08-48:06 Now we're going to move on to the last part of our discussion before we open up the questions and this is a topic that's very unique and something that we're all very inte…

運動に関する最新研究 ~子どもを対象とした運動プログラムに関する研究~

Exercise and Marfan, LDS, and VEDS: The Latest Research 34:46-46:06 Great, yes, so the first study I'd like to discuss is a pilot study from the Netherlands, again involving children ages 6 to 18 years old, primarily with the diagnosis of …