海外マルファン情報

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

Entries from 2024-11-01 to 1 month

ロイス・ディーツ症候群における消化器管理 〜骨〜

Navigating GI Management in LDS 8:24-12:23 So how does nutrition feed into bone health? People with Loeys-Dietz Syndrome have weak bones, we think. This is part of the Loeys-Dietz syndrome. About one-third of adults and about two-thirds of…

ロイス・ディーツ症候群における消化器管理 〜栄養補給と栄養療法〜

Navigating GI Management in LDS 5:22-8:23 So when should we think about supplementation? Again, if someone is dropping percentiles, that last graph I showed you, if someone is less than the 10th percentile for their body mass index or thei…

ロイス・ディーツ症候群における消化器管理 〜BMIグラフ〜

Navigating GI Management in LDS 1:53-5:18 In terms of nutrition, growth is frequently impaired in people with LDS. There's an increased baseline caloric expenditure if the person has significant food allergies, but those food allergies may…

血圧・アルコールと心房細動の関係について

Aging with a Connective Tissue Condition 49:41-50:09 Q: Can lifestyle changes reduce the risk of blood clots and atrial fibrillation? 生活習慣の改善によって、血栓や心房細動のリスクを下げることはできますか? A: Yes, it's a little hard to pr…

血管の石灰化について

Aging with a Connective Tissue Condition 49:10-49:38 Q: What are the options when the heart has calcified? 心臓の石灰化に対しては、どのような治療選択肢がありますか? A: Well, so calcification of blood vessels is an expected change with agi…

VEDSにおけるカテーテルアブレーションについて

Aging with a Connective Tissue Condition 48:24-49:08 Q: Are cardiac ablation safe for individuals with VEDS? カテーテルアブレーションはVEDS(血管型エーラス・ダンロス症候群)の患者でも安全にできますか? A: Well, that's a good question. That…

サプリメントについて

Aging with a Connective Tissue Condition 47:06-48:19 Q: Dr. Bowen, I know that I've come to you a number of times about the supplements for people because that is a question that comes up regularly from people whether to improve their heal…

加齢による認知機能低下への対処法

Aging with a Connective Tissue Condition 45:53-47:08 Q: For those who maybe aren't feeling as sharp as they used to be or are feeling a decline in their executive functioning, is there advice that you could offer on how to slow that progre…

心筋梗塞と大動脈解離の痛みの違いについて

Aging with a Connective Tissue Condition 44:03-45:11 Q: Could you please elaborate on how a heart attack and a dissection might feel different for someone? 心筋梗塞の痛みと大動脈解離の痛みの感じ方に違いはあるのでしょうか?詳しい説明をお願…

結合組織疾患と加齢 〜まとめ〜

Aging with a Connective Tissue Condition 25:12-26:45 So in summary we talked about self-care and I said that's about half of the benefit, so please do that and then these are the components of … Primary care can help you to reduce your can…

結合組織疾患と加齢 〜結合組織疾患と心臓病およびがんの関連〜

Aging with a Connective Tissue Condition 20:10-25:11 Now let's talk just a little bit about Marfan syndrome and related conditions. Dr. Pyeritz wrote this editorial some years ago, how research does pay off and does lead to improvements in…

結合組織疾患と加齢 〜医療との関わり方〜

Aging with a Connective Tissue Condition 19:04-21:09 Now Jan is going to say more about mental health, but as all of us know, there are many mental health problems in the population consisting of usually this list. メンタルヘルスに関しては…

結合組織疾患と加齢 〜がん〜

Aging with a Connective Tissue Condition 18:03-19:04 Now, so that’s heart disease, but as we said earlier, the other half of us are probably going to die of cancer. And you can't affect your, your oncogenes, you’re born with these, but man…

結合組織疾患と加齢 〜大動脈の変化〜

Aging with a Connective Tissue Condition 17:07-18:02 Let's switch to the aorta because many of you have problems with your aorta. This is a normal thoracic aorta with a lot of elastic tissue, which appears yellow here, and nice, normal pul…

結合組織疾患と加齢 〜弁膜症〜

Aging with a Connective Tissue Condition 14:28-17:06 Now talking about heart valve aging, one of the most common heart valve problems in the world that affects not only people with Marfan syndrome and related conditions but also the genera…

結合組織疾患と加齢 〜心房細動(不整脈)〜

Aging with a Connective Tissue Condition 12:39-14:27 We’re going to talk next about atrial fibrillation, which many of you have had where your nice, a cardiac rhythm, which is you can see down here, becomes disorganized because the upper c…

結合組織疾患と加齢 〜高血圧〜

Aging with a Connective Tissue Condition 11:42-12:38 Now, we’ll shift gears and talk about hypertension, which can harm you through eventually producing heart failure, eventually causing a stroke, and eventually wearing out your kidneys. S…

結合組織疾患と加齢 〜心臓発作(心筋梗塞)〜

Aging with a Connective Tissue Condition 8:56-11:41 Now let's take a minute and just look at the big factors in heart disease because we're going to experience these ourselves. So heart attack is a big cause of death, complications of high…

結合組織疾患と加齢 〜老化とは〜

Aging with a Connective Tissue Condition 3:25-8:55 Now I'm going to say a few words about the science of aging, which is a word senescence is used a lot, and then we're going to talk about diseases, what you can do to reduce your risks, an…