呼吸器
Staying Healthy & Exercising Safely 31:16-32:43 Q: This is a recurring theme, so um, there seems to be a lot of guidance around pre-surgery. What about post-surgery? Does surgery significantly reduce the likelihood of adverse events? 繰り…
Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 49:53-53:09 Q: We often hear about the CPAP masks they're not comfortable, they don't fit well but that's what insurance provides for me. Do you have any recommendations f…
Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 48:04-49:05 Q: For someone with a history of bronchiectasis and history of pneumothoraces as well if you're experiencing a lot of shortness of breath you use an inhaler wh…
Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 41:44-43:05 Q: For parents and guardians how can they tell if their children have sleep apnea? 子どもが睡眠時無呼吸かどうかわかる方法はありますか？ A: Typically for kids t…
Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 40:27-41:41 Q: Does sleep apnea always occur with snoring? 睡眠時無呼吸では、必ずイビキがみられますか？ A: That's really interesting because we, one of the kind of almost …
Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 37:23-39:56 Q: How often should sleep studies be happening for someone with obstructive sleep apnea? 閉塞性睡眠時無呼吸の患者では、睡眠検査はどのくらいの頻度で受ければいい…
Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 36:26-37:20 Q: Is back bracing for scoliosis or kyphosis more detrimental to lungs if they are already compromised with lung issues? 肺に問題がある場合、側彎症や後彎症向け…
Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 34:58-36:23 Q: For someone who is anticipating upcoming cardiac surgery, what kind of treatment is available for Marfan emphysema? 心臓の手術を控えているマルファン患者さん…
Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 33:35-34:55 Q: Will flying on a plane with a bleb cause it to increase? Should I consider imaging before and after to see if it did? 気胸を起こして肺嚢胞がある状態で飛行機…
Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 28:43-32:45 And the last study that we did was that we wanted to know whether we could identify a blood biomarker that could select the patients with sleep apnea that had …
Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 19:37-28:42 And now I want to transition to sleep apnea which our group has done a lot of work on and many of you have contributed to the studies that we've conducted and …
Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 13:35-19:36 Now the other pathway we pursued for the airspace is what we call the oxidative stress pathway and some of you I'm sure have heard of oxidative stress because …
Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 9:36-13:34 Now several years ago when I was working in the Dietz’s lab we showed that the enlarged airspaces in the Marfan lung was caused by developmental perturbations o…
Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 2:47-9:35 So I want to start with kind of a slide that I used to show that there are many lung-specific manifestations of Marfan syndrome and these range from what we see …
Women's Health: Beyond Family Planning 42:14-43:56 Q:So the question is, is there any relation between recurrent pneumothoraces during menses and LDS? 月経中に再発を繰り返す気胸はLDSと関連がありますか？ A:I, I don't know that there’s, I do…
LDS Guidelines: Then vs. Now 58:37-59:43 From a lung, pulmonary perspective we know, do know that there is restrictive lung disease, that sleep apnea may be underdiagnosed in our population, so again in terms of like general fatigue and pe…
Marfan Syndrome Management: Back to Basic 19:14-20:23 And what about non-cardiac surveillance and treatment? 心臓以外の所見に関する検査と治療について説明します。 We recommend serial ophthalmology evaluations in children. It's every year. I…
Living with Risk 28:32-30:17 Here's a patient who has vEDS and Loeys-Dietz, VUS. So this is a not exactly a disease-causing mutation has had a pneumothorax and so what imaging does this person need. vEDSとLoeys-Dietz症候群両方の遺伝子検査…
Covid and Aortic Conditions: The Latest Research 57:17-58:18 Q:Somebody's asking if they have R-A-D, RAD would that put them at risk, so what is RAD?RADでは高リスクとなるか、という質問です。RADとは何ですか？ A:I, I think they're talking ab…
Covid and Aortic Conditions: The Latest Research 54:00-55:01 Q:Would you say that those with recurrent pneumothoracies, or spontaneous, spontaneous lung collapse, so people with recurrent pneumothoracies, are they at high risk regardless o…
Covid and Aortic Conditions: The Latest Research 8:13-12:31 So to get started, let's, you know, tackle the question about who is at high risk of bad outcomes if they get COVID-19. So having Marfan, LDS or vEDS or most of the other genetic …
Children's Heart Issues in Marfan, Loeys Dietz, and vEDS - Virtual Symposium Series (4/9/19) 44:26-46:07 Q:This is not about the heart but close to the heart and cardiovascular system. Can you just talk briefly about lung problems in Marfa…
はじめに マルファン症候群に多い肺疾患 拘束性肺疾患 突然の肺虚脱（自然気胸） 肺気腫 喘息 睡眠時無呼吸 マルファン症候群での肺疾患の治療法 拘束性肺疾患 肺虚脱（気胸） 肺気腫 喘息 睡眠時無呼吸 日常的にできること はじめに マルファン症候群および…
COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 1:15:08-1:16:30 "Is there anything that we can do now to strengthen our lungs to prevent a worse outcome with this virus and in general just for us and our children?" 「COVID-19の重症化…
COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 1:11:34-1:12:27 The third question is "Will the use of a ventilator increased the risks of lung collapse and fragile lungs?" 「人工呼吸器を使用することで、気胸になったり肺が弱くなるリス…
COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 1:11:02-1:11:33 So the second question is "How will the lungs be affected if you already had COPD or another restrictive lung disease?" 「COPDなどの拘束性肺疾患がある場合、COVID-19に感…
COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 1:07:51-1:11:07 So these are questions that deal with lung issues and this virus, so Enid? このスライドの質問は肺に関するものですので、Enid先生お願いします。 Yeah, these we covered some…
COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 58:54-1:00:40 And the last issue, "if you use an inhaler that contains a steroid can you still use it if you have COVID-19 symptoms?" では、このスライドの最後の「COVID-19の症状があって…
COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 57:25-58:54 I'll step in with the CPAP question. The general consensus among the pulmonologist and intensivist about CPAP with COVID is that it's probably not an ideal choice and that i…
肺疾患および心疾患の基礎疾患のある患者はハイリスクか？ ハイリスク肺疾患 ハイリスク循環器疾患 その他のハイリスク疾患 人工呼吸器の使用 肺疾患および心疾患の基礎疾患のある患者はハイリスクか？ マルファン症候群、血管型エーラス・ダンロス症候群（V…
