Managing Pain 32:40-33:59 So lastly, I just want to also mention that self-efficacy is really important and that's that belief that when you're investing in your your own care and you're investing in your own rehabilitation, that, it can b…

Managing Pain 31:47-32:39 And another strategy is progressive muscle relaxation and this strategy involves kind of tensing and then relaxing the muscles progressing throughout the body and I usually ask patients to start with their feet an…

Managing Pain 31:03-32:39 Of course, something that's more straightforward is just deep breathing itself and to be honest, most patients I talk to in clinic about using deep breathing for relaxation tell me that it's not always really help…

Managing Pain 29:37-31:03 As I pointed out earlier, biofeedback is a technique that is less commonly used and might be due to your kind of lack of education about it as well as lack of availability. 少し前に出ましたが、バイオフィードバック…

Managing Pain 28:21-29:36 So in terms of research, unfortunately there's no specific studies within Marfan syndrome, about which techniques may be best, but in general, if we think about chronic pain patients, we know that relaxes, relaxat…

はじめに ファッションガイド ファッションアドバイス 女性向け 男性向け 側湾の方向け メディカルアクセサリーのサイト はじめに 世の中には様々な体型の人がいます。マルファンの方も同様ですが、体型には共通点があります。まず第一は、長い四肢と高身長…

腕とか脚に筋肉を付けるにはどうしたらいいですか？ スポーツ禁止って言われました。どうしたらいいですか？ 友達にマルファンのことを伝えた方がいいですか？どのように伝えればいいですか？ 腕とか脚に筋肉を付けるにはどうしたらいいですか？ 自分が他の…

Managing Pain 27:34-28:19 And of course, relaxation definitely has a role in chronic pain, so different relaxation strategies include kind of guided imagery and the overall arching theme of relaxation is to help consciously kind of allevia…

Managing Pain 26:07-27:32 So my personal favorite approach to managing chronic pain is technique called cognitive behavioral therapy and for those who are unaware of that, it is a therapy that is revolved around the idea that our thoughts,…

2019年2月15日 Ken.M 昨年、40歳の大台を迎えました。あっという間だったと感じています。成長、遊び、テレビを見る、通学する―振り返ってみると、ほんのわずかな歳月だったように思います。 学校生活 適応する 診断と安堵 早期の遺伝子検査を 学校生活 学校…

Managing Pain 25:21-26:06 And I also ask patients to kind of collect a toolbox of different tricks and different therapies because there's times when one approach may be really effective and then there's another time when the pain is reall…

Managing Pain 23:25-25:18 And often, in order to do that, we need a team. So just like our superheroes these days are fighting their arch-nemesis using groups and people with different skill sets, we need to think about that same kind of a…

Managing Pain 22:33-23:22 And of course, we definitely need to focus on non-pharmacological approaches to manage pain as well. And again a lot of it about kind of educating about how these approaches can help manage pain. 痛みに関しては薬…

はじめに マルファン症候群に共通する骨や関節の問題の種類 体型 背骨の弯曲（側弯症） 猫背（後弯症） 胸部（胸郭）の問題 足の問題 その他の問題 マルファン症候群に多い骨や関節の問題の治療法 背骨の弯曲（側弯症） マルファン症候群での側弯症の治療に…

Managing Pain 21:38-22:27 And the first-line treatments, in addition to the over-the-counter treatments, when they're appropriate, that I tend to use for pain are medications that we call neuromodulators and that's a fancy word for saying …

はじめに マルファン症候群の硬膜拡張で一般的にみられる症状は？ マルファン症候群の硬膜拡張の治療法は？ はじめに The nervous system—the brain and spinal column—are surrounded by fluid contained in a membrane called the dura, which is primaril…

Managing Pain 20:17-21:36 So when thinking about medications, there's lots of different ways to target pain and again oftentimes individuals with chronic pain are experiencing pain because of different signaling pathways in their body and …

2017年8月26日 Barbara Miller どんなに食べても太れない―どんなにプロテインシェイクを飲んでも、胃がむかつくだけ―10代前半ではさほどではありませんでしたが、思春期に突入すると言葉によるいじめが激しくなりました。健康上の問題はありませんでした。で…

Managing Pain 19:05-20:14 Now one of the important things to think about in pain management is, like I said before, there's not just one pill or one treatment strategy that can usually manage chronic pain, so it really does take a multi-mo…

Managing Pain 17:36-18:59 And again, there's very limited research on kind of opioid use in Marfan syndrome. So this was some other data that we've recently published and this shows that of the patients who, at the time of the survey, said…

はじめに マルファン症候群でよくみられる眼の疾患は？ 水晶体亜脱臼 網膜剥離 重度近視 乱視 弱視 斜視 緑内障 初老性白内障 マルファン小児の眼について マルファン症候群で一般的にみられる眼の疾患の治療法は？ 水晶体亜脱臼 眼鏡をかけても視力が改善し…

Managing Pain 16:51-17:32 Now, of course, we're in the middle of what we classify or call the opioid epidemic and so this is currently a very hot topic for individuals with chronic pain. 私達は現在、いわゆるオピオイド蔓延問題の真っ只中にい…

Managing Pain 15:20-16:47 And then, this is a subsequent study, follow-up study that I completed with my colleagues at Johns Hopkins where it was a smaller survey of only 218 people, but essentially individuals did say that if you look at …

Managing Pain 13:09-15:17 So as we're thinking about kind of the clinical assessment and what these diagnoses are, that we want to treat, as well as the psychosocial factors that are affecting pain, the goals then become how to develop a t…

Managing Pain 12:25-13:04 Kind of going along with thinking about all of those conditions, as a clinician, what we talk about is kind of formulating the diagnosis or formulating the individuals' susceptibilities to pain. When I say that, I…

Managing Pain 10:28-12:22 So, we all know that chronic pain is difficult; it has a lot of consequences and certainly affects one's quality of life, so the next question is how do we address this and where do we begin? 慢性痛は辛いもので、…

Managing Pain 8:55-10:27 So in some other research that, that I did with the survey on the Marfan website, we kind of separated individuals by when their pain started or how their pain was experienced throughout the course of their illness.…

Managing Pain 7:27-8:53 So why is it important to talk about pain? And for any individual that's experienced it, one may understand that pain is really associated with so many other factors and that can be hopelessness, feeling that that p…

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