血管型エーラス・ダンロス症候群（vEDS）
Vascular Surgery 12:15-13:18 And this is just a comment on access sites because as I said you go through the femoral artery when we do these and so we have to be careful with the way we close the femoral artery so that we don't have pseudo…
Vascular Surgery 10:10-13:18 So when we talk about endovascular repair you've heard two terms. You've heard embolization and you've heard stenting but basically these are what we call minimally invasive procedures. We perform them through …
動脈瘤・解離の管理Vascular Surgery 3:29-5:23 You've seen this picture. This is from Gustavo Oderich's paper where a few years ago he talked about the distribution of arteriopathy in vascular EDS and then on the right hand side is our paper…
New ACC/AHA Aortic Disease Management Guidelines: What do they mean for you? 58:58-59:50 Q:Here's a question when my husband and children go to their cardiology appointments do they need an MR, CT as well as an echo? 夫と子供が循環器内科で…
New ACC/AHA Aortic Disease Management Guidelines: What do they mean for you? 38:08-40:48 Moving on to vascular Ehlers-Danlos syndrome in, and in vEDS. In imaging the aorta and the branches is very important because it may identify arterial…
Family Planning and Pregnancy: US and Europe Perspectives 56:04-57:40 Now cervical instability is another, another spiral manifestation that has an increased risk in Loeys-Dietz syndrome. This can be assessed with an x-ray of the cervical …
血管型エーラス・ダンロス症候群の別名 血管型エーラス・ダンロス症候群の患者数 血管型エーラス・ダンロス症候群の臨床的特徴 血管型エーラス・ダンロス症候群の原因 血管型エーラス・ダンロス症候群の診断 血管型エーラス・ダンロス症候群の寿命 血管型エ…
Aortic Disease Research (9/19/22) 32:19-34:52 So vascular Ehlers-Danlos represents a really important effort of the foundation and of scientists around the world and I would like to suggest that in some ways with vascular EDS we're just be…
Diagnosis and Treatment of Aortic Dissection in the ER (Parts 1 and 2) 9:49-10:55 Vascular Ehlers-Danlos syndrome is one of the rarer causes of familial aneurysm disorder, affecting about one in fifty to a hundred thousand individuals due …
COVID-19 Q & A (April 2022) はじめに BA.2 変異株について BA.2 変異株の影響 ワクチンについて ワクチンの追加接種について 小児のワクチン接種について 小児のワクチン接種に関する研究からわかること マルファン関連疾患に対するCOVID-19の影響 はじめ…
What’s in Your LDS Family Tree? Genetics, Variability, Outcomes (September 1, 2020) 21:20-24:50 So in terms of variability we do know that there are variable systemic manifestations that are suggestive of Loeys-Dietz syndrome. Things that …
Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 56:52-1:00:18 What is the most important thing to consider when raising children with Marfan or Loeys-Dietz or vEDS? Marfan症候群やLoeys-Dietzs症候群、血管型Ehlers-Danlos症候…
Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 17:55-19:24 Well, what about vEDS and LDS? You know, of course, this is a condition, these conditions are much less prevalent than Marfans, I think it's probably 25 to 50 perc…
Personal Perspectives Panel: Physical Activity & Exercise 30:07-31:44 We have another perspective now and this is Morgan's perspective as a parent of a, of a son with more with, with vEDS so go ahead, Morgan. 最後はモーガンさんです。モーガ…
Personal Perspectives Panel: Physical Activity & Exercise 18:49-20:51 So looking at the best data that we have available what do the guidelines recommend regarding competitive sports in people with Marfan syndrome and related disorders? Ma…
Open Thoracoabdominal Repair: Surgery Series (2/16/21) 51:51-53:58 Q:Does the relative size of the true and false lumen have any impact on surgical thresholds and surgical outcomes? 大動脈での真腔と偽腔の大きさの比率は、手術を検討する基準…
Open Thoracoabdominal Repair: Surgery Series (2/16/21) 51:51-53:58 Q:Does the relative size of the true and false lumen have any impact on surgical thresholds and surgical outcomes? 大動脈での真腔と偽腔の大きさの比率は、手術を検討する基準…
Covid and Aortic Conditions: The Latest Research 16:19-18:59 You know, several of our other genetic aortic conditions do have other issues that may put them at a higher risk. So Enid, do you want to go over that? I think some of these are …
The Role of the Genetic Counselor - Empowerment Series - 3/14/19 29:43-34:04 So our next case, we have a 16-year-old boy, who is very tall, very slim. He has notably long fingers and toes and he also has a very mild curvature or scoliosis …
Children's Heart Issues in Marfan, Loeys Dietz, and vEDS - Virtual Symposium Series (4/9/19) 51:56-53:42 Q:So what about the scheduling of MRI monitoring from head to pelvis, is different from Marfan, Loeys-Dietz, vEDS? MRI検査はどのくらい…
Children's Heart Issues in Marfan, Loeys Dietz, and vEDS - Virtual Symposium Series (4/9/19) 32:43-35:34 In terms of physical activity and exercise, there are many benefits to exercise. We all realize that and I think that exercise can be …
Children's Heart Issues in Marfan, Loeys Dietz, and vEDS - Virtual Symposium Series (4/9/19) 31:17-32:19j There's not very much information about medical therapy for patients with vascular EDS. This is a result of a study that was publishe…
Children's Heart Issues in Marfan, Loeys Dietz, and vEDS - Virtual Symposium Series (4/9/19) 14:38-16:27 We already mentioned arterial tortuosity and here again are the pictures of the vertebral arteries in patients with Loeys-Dietz. We di…
Children's Heart Issues in Marfan, Loeys Dietz, and vEDS - Virtual Symposium Series (4/9/19) 12:10-14:37 So just some basic cardiac anatomy. This is simple and what most people already know this but I wanted everybody to understand that. …
Children's Heart Issues in Marfan, Loeys Dietz, and vEDS - Virtual Symposium Series (4/9/19) 10:30-12:09 I want to make a point about all of these connective tissue, syndromes. All of these pieces apply but I want to focus right now on two…
Children's Heart Issues in Marfan, Loeys Dietz, and vEDS - Virtual Symposium Series (4/9/19) 9:16-10:29 In terms of vascular Ehlers-Danlos, here's a picture of Dr. Ehlers and Dr. Danlos. This, in contrast, is a syndrome that's caused by mu…
