海外マルファン情報

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

Entries from 2020-01-01 to 1 year

大動脈手術の前に知っておきたかった5つのこと

2020年12月1日 Dominga Noe はじめに 快適さを犠牲にしない 味覚が変わった?! とにかく忍耐 ニューノーマル 遠慮せずに助けを求める はじめに 私が大動脈手術を受けたのは2014年夏ですが、当時は訊きたいことはそれほどありませんでした。なるべく早く終わ…

外反母趾の対策を教えて下さい

55:28-56:25 Q:Are there exercises to purge early juvenile bunions, Dr. Bitterman? She has semi-custom orthotics and are there, so what else would you do to combine with that? 思春期の患者さんの外反母趾に効果がある運動はありますか?この女性…

マルファン患者の外反母趾手術について

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 51:52-52:49 Q:Dr. Bitterman, what about bunion surgery in people with Marfan syndrome? Are the outcomes similar to the regular population or are they worse outcom…

重度の回内足の治療法について

ううKeeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 47:53-48:53 Q:Here's another foot question, Dr. Bitterman, the four-year-old is with Marfan syndrome has pretty severe pronation. One advice less is more and …

肩の疾患について教えて下さい

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 43:56-45:05 Q:Here's a question about shoulder health. Is there anything that you'd recommend to preserve shoulder health? ??? Dr. Sponseller ??? 肩を健康に保つた…

鳩胸のコルセット治療について

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 42:55-43:53 Q:Dr. Sponseller, there's a question about pectus carinatum, or protruding chest bone. How successful is bracing for that? 鳩胸の治療にコルセットは有…

DEXAスキャンについて教えて下さい

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 42:23-42:52 Q:Dr. Sponseller, at what age does someone have a DEXA scan, if you tell us what that is and what age do they have? Sponseller先生へ、DEXAスキャンは何…

マルファン女性向けのおすすめの靴ブランドはありますか?

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 40:22-41:19 Q:And also Dr. Bitterman, any suggested brands for women, who have long thin Marfan feet other than New Balance? Apparently New Balance is popular but…

足へのステロイド注射と夜間の足首サポーターについて

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 39:30-40:20 Q:Are steroid injections and foot night brace okay with Marfan patients in conjunction with PT, physical therapy? マルファン患者では、足へのステロイド…

足関節の固定術について教えて下さい

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 37:13-38:49 Q: It's a question I don't want to go into the specifics of this person's personal situation, but she's basically asking about a procedure called HyPr…

高齢でも整形外科手術は可能か?

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 33:22-34:59 Q:I guess for Dr. Sponseller to start with. How successful is back surgery, insertion of rods and screws for adult Marfan patients 60 and over? How wo…

新型コロナウイルスワクチンとマルファン関連疾患について

はじめに アレルギーの既往のある患者はどうするか? ARB、βブロッカー、ACE阻害薬と新型コロナウイルスワクチン 新型コロナウイルス拡散に対する注意喚起 はじめに The Marfan Foundation の専門家委員会(PAB)は、接種を認められたすべての集団が、 新型…

マルファン関連疾患における整形外科的所見 ~最後に~

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 30:51-31:48 So overall everybody needs to be on the lookout and that's across the board within the medical realm. では、最後のまとめです。医療関係者は誰であれ、患…

マルファン関連疾患における整形外科的所見 ~スポーツについて~

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 28:16-30:50 With regards to athletic participation, this is a huge one, has there's been some, you know, famous athletes recently in the past five or so years, wh…

マルファン関連疾患における整形外科的所見 ~QOLに影響する疲労~

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 27:15-28:15 Fatigue obviously is extremely important regardless of age because it can affect multiple aspects of your life. 疲労は、QOLに影響する要因としては、年…

マルファン関連疾患における整形外科的所見 ~QOLに関する研究~

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 25:54-25:53 So Dr. Sponseller in 2016 with his group out of Johns Hopkins, they published an important paper on the quality of life and they sent out surveys to 2…

マルファン関連疾患における整形外科的所見 ~QOLに影響する痛み~

OLKeeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 24:49-25:53 So pain. Unfortunately as good as we are like, Dr. Sponseller said, we don't have a great understanding on exactly the true cause of pain because th…

マルファン関連疾患における整形外科的所見 ~QOLに影響するもの~

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 23:49-24:48Going to transition here now to quality of life and listed on the left are many or a few of the many concerns related to Marfan syndrome. ここからはQOL…

マルファン関連疾患における整形外科的所見 ~足首の治療法~

22:41-23:47 With regards to the ankle when the ankle gives out after sufficient injuries or sprains, which are tears in the ligaments, we need to find better measures because again repairing tissue paper to tissue paper is not successful a…

マルファン関連疾患における整形外科的所見 ~足の外科手術~

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 21:07-22:41 As this begins to fail or this does not necessarily work, that's when we would then begin to look into alternative measures. Now unfortunately this pa…

マルファン関連疾患における整形外科的所見 ~足の所見と装具による治療~

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 18:15-21:07 So the classic foot of someone with this syndrome is as seen here. The foot is flat. The arch is no longer maintained. The digits are extremely long a…

マルファン関連疾患における整形外科的所見 ~足の所見に入る前に~

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 17:15-18:14 So, why is the foot and ankle so, so vital? Well, there really isn't any other area of the body that can withstand roughly 10,000 steps each day for 1…

マルファン関連疾患における整形外科的所見 ~長寿がもたらした問題~

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 16:00-17:14 Good evening, everyone, thank you for joining us. My goal is to focus mainly on the lower extremity and also on some important details surrounding qua…

マルファン関連疾患における整形外科的所見 ~未解決の問題~

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 14:24-15:24 I think those are the things I'd like to cover and I'd like to stimulate people to think about some of the unanswered questions you have in Marfan syn…

マルファン関連疾患における整形外科的所見 ~寛骨臼突出症と股関節置換~

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 13:26-14:23 The bigger thing with Marfan hips is they deep in their hip socket called protrusio and this is where the pressure of the bone against the body weight…

マルファン関連疾患における整形外科的所見 ~股関節脱臼~

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 12:41-13:25 I like to briefly touch about some of the hip issues in Marfan syndrome as well. Going from childhood to adulthood and the neonate, you can have hip d…

マルファン関連疾患における整形外科的所見 ~脊髄刺激療法~

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 11:59-12:39 In some cases, dural estasia is kind of refractory to pain so after various physical modality, strengthening, ???, there is kind of a final option for…

マルファン関連疾患における整形外科的所見 ~硬膜拡張の経過~

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 10:55-11:58 Does dural estasia gets worse over time? We tried to study this with an 11-year follow up with a dozen patients and we had pinned some in 2002 and we …

マルファン関連疾患における整形外科的所見 ~硬膜拡張の痛み~

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 10:02-10:54 And dural ectasia causes pain. In most cases it does, although there are some patients who have dural ectasia don't have any pain. We don't know why t…

マルファン関連疾患における整形外科的所見 ~硬膜拡張の原理~

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 9:01-12:40 Dural estasia is probably a term you've heard because it can cause symptoms and also cause concern in many people with Marfan syndrome. Some would say …