海外マルファン情報

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

Entries from 2024-07-01 to 1 month

心臓手術に向けた肺気腫の治療について

Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 34:58-36:23 Q: For someone who is anticipating upcoming cardiac surgery, what kind of treatment is available for Marfan emphysema? 心臓の手術を控えているマルファン患者さん…

気胸発症後の飛行機移動について

Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 33:35-34:55 Q: Will flying on a plane with a bleb cause it to increase? Should I consider imaging before and after to see if it did? ブレブがある状態で飛行機に乗ると、ブレ…

マルファン症候群における肺気腫・睡眠時無呼吸の研究 〜睡眠時無呼吸とDダイマーの関係〜

Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 28:43-32:45 And the last study that we did was that we wanted to know whether we could identify a blood biomarker that could select the patients with sleep apnea that had …

マルファン症候群における肺気腫・睡眠時無呼吸の研究 〜睡眠時無呼吸と大動脈拡張の関係〜

Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 19:37-28:42 And now I want to transition to sleep apnea which our group has done a lot of work on and many of you have contributed to the studies that we've conducted and …

マルファン症候群における肺気腫・睡眠時無呼吸の研究 〜ECSODによる肺気腫の改善〜

Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 13:35-19:36 Now the other pathway we pursued for the airspace is what we call the oxidative stress pathway and some of you I'm sure have heard of oxidative stress because …

マルファン症候群における肺気腫・睡眠時無呼吸の研究 〜PPARγ経路とロサルタン〜

Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 9:36-13:34 Now several years ago when I was working in the Dietz’s lab we showed that the enlarged airspaces in the Marfan lung was caused by developmental perturbations o…

マルファン症候群における肺気腫・睡眠時無呼吸の研究 〜肺気腫・気胸〜

Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 2:47-9:35 So I want to start with kind of a slide that I used to show that there are many lung-specific manifestations of Marfan syndrome and these range from what we see …

マインドフルネスについて 〜呼吸の役割〜

Mindfulness Series: Breathing Into Peaceful Awareness 9:35-19:52 My name is Sarah Schain. I'm a breath coach. I'm a yoga therapist and I'm a sound healer, so I use somatic techniques to teach people to build the awareness between their bod…

月経時における出血過多の治療薬について

Women's Health: Beyond Family Planning 56:36-1:00:00 Q: I hope I say this right, is Amicar okay to use to stop heavy bleeding? Amicarは重度の月経出血に効果がありますか? A: I actually had to look it up because Amicar is aminocaproic acid, …

閉経期の長期化について

Women's Health: Beyond Family Planning 57:19-58:28 Q: Is there any evidence that menopause lasts longer in women with Loeys-Dietz? My mom is 80 years old and still having hot flashes. I've had menopause eight years and I'm still hot flashi…

閉経期とアレルギーについて

Women's Health: Beyond Family Planning 54:47-56:47 Q: Robin says, “In the figure I think I saw that menopause can impact allergies. Can you elaborate?” Is there a link to worsening allergies in folks with LDS with menopause or perimenopaus…