海外マルファン情報

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

アレルギー

マルファン症候群の基礎 〜運動と血圧の関係〜

Marfan Basics: Taking Care of Your Aorta 1:12:22-1:14:55 So, uh, the other thing to consider is that the type of exercise that you do affects the way your blood pressure responds to exercise and your aorta responds to exercise. So we talk …

好酸球性食道炎の発症タイミングについて

Navigating GI Management in LDS 46:23-47:56 Q: Can EoE be triggered hours after exposure to the allergen? Is that different than a long-term symptom onset? I think I'm not exactly sure how the question... maybe you understand what they're …

ロイス・ディーツ症候群における消化器管理 〜好酸球性消化器疾患〜

Navigating GI Management in LDS 21:54-24:40 Let's talk about some inflammation. So I talked about the fast allergy; there's a slow motion food allergy that can occur in the lining of the intestines. This is eosinophilic GI disease. The mos…

ロイス・ディーツ症候群における消化器管理 〜食物アレルギー〜

Navigating GI Management in LDS 18:39-21:51 I'm gonna take some time to talk about food allergies here, so there's two kinds of food allergies. This first kind of food allergy I'm going to talk about is an anaphylactic or IgE-mediated food…

ロイス・ディーツ症候群における消化器管理 〜栄養補給と栄養療法〜

Navigating GI Management in LDS 5:22-8:23 So when should we think about supplementation? Again, if someone is dropping percentiles, that last graph I showed you, if someone is less than the 10th percentile for their body mass index or thei…

閉経期とアレルギーについて

Women's Health: Beyond Family Planning 54:47-56:47 Q: Robin says, “In the figure I think I saw that menopause can impact allergies. Can you elaborate?” Is there a link to worsening allergies in folks with LDS with menopause or perimenopaus…

LDSガイドラインの改訂に向けて ~アレルギー性疾患~

LDS Guidelines: Then vs. Now 44:57-46:54 So I know Tony is taking notes for us, Dr. Guerrerio and if he has anything to jump in but we do know or we have appreciated, I'm going back to 2014 that there is an increased evidence of allergic d…

エピペン使用の判断基準・食物経口負荷試験について

Loeys-Dietz Gastroenterology and Allergy Q&A 38:57-40:39 Q:We've had a couple of questions. I see Julie, I know Lincoln has tree nut allergies, so asking about a young child a type 2, you know, when would you use an EpiPen, would you not u…

年齢によるアレルギー症状の変化と抗ヒスタミン薬について

Loeys-Dietz Gastroenterology and Allergy Q&A 17:05-18:53 Q:Can allergies, food allergies specifically, change with time in adults and/or children? We've had a couple questions about that. One specifically citing like had, had an allergy to…

小児科で食物アレルギーの検査をしてくれないのはなぜか?

Loeys-Dietz Gastroenterology and Allergy Q&A 15:05-16:54 Q:This one is about an eczema flare. It says the pediatrician will not run a food panel for allergies, only environmental. Any suggestions? じんましんが出ているのに、小児科では食物ア…

食物不耐症と食物アレルギーの違いについて

Loeys-Dietz Gastroenterology and Allergy Q&A 13:24-14:48 Q:At what point does an intolerance become an allergy? 食物不耐症が食物アレルギーに変わるのはどの時点ですか? A:So they're actually very different things. One doesn't necessarily tur…

ロイス・ディーツ症候群におけるアレルギーと消化器疾患 ~好酸球性食道炎~

Loeys-Dietz Gastroenterology and Allergy Q&A 6:00-7:03 So another kind of food allergy, which is more thought of as a slow motion food allergy, so while this is, while this is a food allergy similar to those that can cause hives or trouble…

ロイス・ディーツ症候群におけるアレルギーと消化器疾患 ~食物アレルギー~

Loeys-Dietz Gastroenterology and Allergy Q&A 3:27-5:58 Almost one-third of people with types one and two LDS will have food allergy. It can be really tricky to diagnose food allergy and distinguish it from food intolerances which are also …

ロイス・ディーツ症候群におけるアレルギーと消化器疾患 ~耳鼻科系アレルギー~

Loeys-Dietz Gastroenterology and Allergy Q&A 0:33-2:58 So several years ago we showed that people with Loeys-Dietz syndrome are more likely to have allergic disease than people in the general population but it's important to note that this…

ロイス・ディーツ症候群の遺伝学 ~アレルギー・出産~

What’s in Your LDS Family Tree? Genetics, Variability, Outcomes (September 1, 2020) 28:47-29:58 In terms of variability of allergic and GI disease, this has been observed in types 1 and 2 Loeys-Dietz syndrome. It's really an unknown right …

ロイス・ディーツ症候群とアレルギー

はじめに LDS患者に多いアレルギー症状 ・食物アレルギー ・皮膚炎 ・副鼻腔疾患 ・環境アレルギー ・喘息 ・中耳炎 アレルギーの治療法・管理法 ・食物アレルギー ・皮膚炎 ・副鼻腔疾患および季節性・環境アレルギー ・喘息 ・中耳炎 はじめに Loeys-Dietz…