海外マルファン情報

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

Entries from 2024-10-01 to 1 month

結合組織疾患と加齢 〜56歳LDS女性の不安〜

Aging with a Connective Tissue Condition 2:09-3:25 I'm going to start with just talking about a patient I saw recently in my clinic. This lady is 56 and has Loeys-Dietz syndrome. She feels well. She had imaging of the chest done for anothe…

子どものスポーツへの関わり方について

Scoliosis Management & Surgical Options for Marfan Syndrome 39:09-40:36 Q: So many patients, uh, parents of kids want to ignore scoliosis and not accept the precautions, pushing children for sports. Do you think that is safe? お子さんが側…

マルファン症候群における関節性症状について

Scoliosis Management & Surgical Options for Marfan Syndrome 37:37-39:04 Q: So does Marfan automatically mean a huge risk of arthritis when you age, or does it vary? マルファンであるということは、加齢によって自然と関節炎のリスクが高くなると…

小児において側彎症治療を始めるコブ角と年齢の目安について

Scoliosis Management & Surgical Options for Marfan Syndrome 37:03-37:33 Q: So for pre-teens, at what degree of scoliosis would you recommend any type of treatment? 10歳前後の子どもでは、コブ角がどのくらいになったら側彎症の治療が推奨されま…

逆さぶら下がり健康器の効果について

Scoliosis Management & Surgical Options for Marfan Syndrome 36:08-36:59 Q: So would an inversion table help with pain? Are Marfan patients advised against using an inversion table? 逆さぶら下がり健康器は背中の痛みに効果があるのでしょうか?…

側彎症の新しい治療法について

Scoliosis Management & Surgical Options for Marfan Syndrome 34:42- 36:04 Q: So for severe scoliosis in adults, is there any other way of managing scoliosis other than fusion, and which treatment would you recommend for an adult? 重度の側彎…

マルファン症候群における脳脊髄液漏出症からの回復について

Scoliosis Management & Surgical Options for Marfan Syndrome 33:44-34:38 Q: In the event of a spinal fluid leak, does it take patients with Marfan syndrome a longer time to heal as opposed to somebody who does not have a connective tissue d…

脳脊髄液露出症と側彎症の関係について

Scoliosis Management & Surgical Options for Marfan Syndrome 32:14-33:41 Q: Can you talk a little bit about whether there's a connection between a CSF leak and cases of scoliosis? 脳脊髄液漏出症と側彎症との関係について教えてください。 A: CS…

骨粗しょう症に適した運動について

Scoliosis Management & Surgical Options for Marfan Syndrome 30:48-32:09 Q: For osteoporosis, this patient has been recommended to do some weightlifting, but in Marfan syndrome, it is not recommended. What would you recommend? Do you recomm…

マルファン症候群と骨粗しょう症の関係について

Scoliosis Management & Surgical Options for Marfan Syndrome 28:47-30:43 Q: Osteoporosis, do you see in younger people than, than usual in Marfan syndrome patients and if so why? 骨粗鬆症はマルファン症候群では若い人で多くみられるのでしょう…

成人の側彎症に対するコルセット治療について

Scoliosis Management & Surgical Options for Marfan Syndrome 27:28-28:43 Q: I am in my mid-30s and have some mild scoliosis and get frequent back pain. I'm a little concerned that it will get worse as I continue aging. Is it essentially too…

側彎症に対する非外科的治療法について

Scoliosis Management & Surgical Options for Marfan Syndrome 25:22-27:23 Q: Can you go over a little bit in more detail the types of nonsurgical treatment for scoliosis and maybe when is it time to actually think about surgery then when non…

側彎症手術が推奨される年齢について

Scoliosis Management & Surgical Options for Marfan Syndrome 24:08-25:19 Q: This person is asking, “Is this operation recommended for older patients, say above 20 years old?” I'm assuming they are talking about, you know, the spinal fusion …

側彎症で推奨される理学療法について

Scoliosis Management & Surgical Options for Marfan Syndrome 22:49-24:06 Q: What type of physiotherapy is recommended for scoliosis? 側彎症ではどのような理学療法が推奨されますか? A: Physiotherapy does not control scoliosis as a deformity; …

前方椎体テザリングについて

Scoliosis Management & Surgical Options for Marfan Syndrome 21:39-22:45 Q: Has there been any studies on the newer scoliosis surgery called anterior vertebral body tethering on individuals with Marfan syndrome? マルファン症候群の患者を対象…

ナタリーが遺してくれたもの

2024年9月18日 The Marfan Foundation 注意:この物語では、小児期における致命的な大動脈解離が詳細に描写されています。VEDS(血管型エーラス・ダンロス症候群)が広く認知されることにより、多くの命が救われることを目的として公開されるものです。 「こ…

ロッドを使った治療について

Scoliosis Management & Surgical Options for Marfan Syndrome 20:31-21:35 Q: If the rods work to help children with Marfan strengthen their spine why wouldn't it be used sooner or given as an option to all Marfan patients. They assume that i…

腰椎・仙椎神経圧迫により生じる下肢症状の原因について

Scoliosis Management & Surgical Options for Marfan Syndrome 19:33-20:26 Q: What might cause the L4-S1 nerve root symptoms in the leg when imaging is normal? 第4腰椎、第5腰椎、第1仙椎の神経根が圧迫されることによって生じる脚の症状の原因とし…

脊椎固定術で固定されなかった部分が悪化するリスクについて

Scoliosis Management & Surgical Options for Marfan Syndrome 18:38-19:28 Q: So the first one asks, “does spinal fusion for scoliosis increase the risk of degeneration in the unfused vertebrae below?” では、最初の質問です。側彎症で脊椎固定術…

マルファン症候群における側彎症管理と外科的選択肢 〜脊髄刺激法〜

Scoliosis Management & Surgical Options for Marfan Syndrome 16:04-18:14 What about back pain? Back pain is seen in a lot of people with Marfan syndrome. It can be caused by scoliosis, it can be caused by kyphosis, it can be caused by slipp…

マルファン症候群における側彎症管理と外科的選択肢 〜硬膜拡張〜

Scoliosis Management & Surgical Options for Marfan Syndrome 11:37-16:01 More on dural ectasia. This is present in over half of Marfan patients, same thing in Loeys-Dietz syndrome and Ehlers-Danlos syndrome. What, what is it exactly? It's a…