Medical Management of Marfan Syndrome 10:18-15:56 So what, what issue am I trying to resolve now? Marfan syndrome obviously is a multisystem disorder. It affects the eyes, it affects the spine, it affects the muscular-skeletal system. In f…

ACC Aortic Disease Guidelines: Pregnancy 4:02-5:52 Regarding cardiovascular counseling so as I mentioned this is important for, the for, the ladies, it, they should be informed that the risk for aortic dissection increases during pregnancy…

Vascular Surgery 8:50-9:42 I do follow people with vascular surveillance. You heard about that from Dr. Young who talked about the surveillance for the aortic root. Similarly for the rest of the vasculature I like to get a baseline CT scan…

LDS Guidelines: Then vs. Now 24:14-24:39 Some questions have come up about well what about in your legs, what about aneurysms there? They have been reported in the literature, especially aneurysms kind of behind your knees called popliteal…

LDS Guidelines: Then vs. Now 21:49-24:13 In terms of vascular imaging guidelines these have generally remained the same. In the very beginning we are recommending head to pelvis imaging at baseline as well as imaging about every two years.…

New ACC/AHA Aortic Disease Management Guidelines: What do they mean for you? 1:04:10-1:05:06 Q:Here's a question my daughter was diagnosed with Loeys-Dietz but dad and I were tested and don't have it. Should we get an echo to check the aor…

New ACC/AHA Aortic Disease Management Guidelines: What do they mean for you? 1:00:51-1:01:29 Q:When to start aortic, how old to start aortic screening relatives? 家系に結合組織疾患患者がいるのですが、その者の親族に対して大動脈の検査を行う…

New ACC/AHA Aortic Disease Management Guidelines: What do they mean for you? 59:51-1:00:45 Q:One person asked the important question. Is there a recommended age cutoff for peripheral aneurysms when considering genetic testing? 末梢の動脈瘤…

New ACC/AHA Aortic Disease Management Guidelines: What do they mean for you? 58:58-59:50 Q:Here's a question when my husband and children go to their cardiology appointments do they need an MR, CT as well as an echo? 夫と子供が循環器内科で…

New ACC/AHA Aortic Disease Management Guidelines: What do they mean for you? 38:08-40:48 Moving on to vascular Ehlers-Danlos syndrome in, and in vEDS. In imaging the aorta and the branches is very important because it may identify arterial…

New ACC/AHA Aortic Disease Management Guidelines: What do they mean for you? 14:07-17:03 So what we're going to do over the next half hour or so is we're going to review some of the topics that are encompassed in the new guidelines based o…

New ACC/AHA Aortic Disease Management Guidelines: What do they mean for you? 7:10-9:00 One of the most important parts of the guidelines is really a whole section on emphasizing how to measure the aorta. Everyone who sees individuals and, …

Loeys-Dietz Gastroenterology and Allergy Q&A 38:57-40:39 Q:We've had a couple of questions. I see Julie, I know Lincoln has tree nut allergies, so asking about a young child a type 2, you know, when would you use an EpiPen, would you not u…

Loeys-Dietz Gastroenterology and Allergy Q&A 35:55-37:00 Q:Would you say the same for chronic or even like periodic vomiting? 慢性的な嘔吐や周期的な嘔吐の対処法を教えてください。 A:Absolutely, so, if, if, if you have chronic vomiting that …

Loeys-Dietz Gastroenterology and Allergy Q&A 19:00-24:14 Q:Inflammation of the colon, is this common a common part of LDS? What is a solution and then this person is saying, "I've had two scopes, both just showed inflammation", so wonderin…

Aortic Imaging: Your Questions Answered 55:55-56:22 Q:How much change in dimension is too much? 大動脈について、どの程度のサイズ変化であれば大きいと考えられますか？ A:So, that my understanding is about three millimeters every year or less.…

Aortic Imaging: Your Questions Answered 52:04-53:35 Q:Somebody says every time I get an echo and they're post-surgery they have a quote-unquote increased gradient pressure. Can you explain what that is, why, how it affects, what's the effe…

Aortic Imaging: Your Questions Answered 50:01-51:59 Q:You know, I had a, we got a couple of questions in advance about looking at the thickness or thinness of the aortic wall, so can you talk about that a little bit like, are you looking a…

Aortic Imaging: Your Questions Answered 49:03-49:39 Q:Does CT provide additional information regarding mitral valve prolapse and regurgitation if an echocardiogram has already been done? 心エコー検査後のCTでは、僧帽弁逸脱や僧帽弁閉鎖不全症…

47:44-48:52 Q:I'm going to ask about gating again just for some clarification. This, this person watching tonight said he recently had an MRA where a belt was wrapped around his midsection to measure his breathing. It seemed as though imag…

Aortic Imaging: Your Questions Answered 45:01-46:36 Q: If MRA is the main method of imaging, how, how often should contrast be used? MRAを画像検査の中心とする場合、造影剤を使った検査はどのくらいの頻度で行うべきでしょうか？ A:How often, tha…

Aortic Imaging: Your Questions Answered 42:54-44:20 Q:Can you talk about, let's see, what should be the long-term routine surveillance imaging and the interval with somebody who's watching for ascending aorta, aortic enlargement, maybe, yo…

Aortic Imaging: Your Questions Answered 40:25-41:06 Q:One person says that the doctor says that their child has a marfanoid physique, so they have the outward signs. What tests should be taken to confirm or rule out the aortic enlargement …

Aortic Imaging: Your Questions Answered 38:54-40:21 Q:You mentioned before about the radiation. Can you can you explain the risks associated with exposure to radiation? 放射線による被曝について教えてください。 A:So, you know, repeat imagin…

Aortic Imaging: Your Questions Answered 37:43-38:58 Q:If somebody can't have an MRI can the same information be gleaned from an echo and a CT? MRIを受けられない場合、心エコーやCTで代用できますか？ A:Yes, from CT. So one thing about MRI I w…

Aortic Imaging: Your Questions Answered 36:44-37:43 Q:So somebody with even with, so without the aortic aneurysm and they're just being followed. Should two or three different types of imaging be done, if not, which type gives the clearest…

Aortic Imaging: Your Questions Answered 36:44-37:43 Q:So somebody with even with, so without the aortic aneurysm and they're just being followed. Should two or three different types of imaging be done, if not, which type gives the clearest…

Aortic Imaging: Your Questions Answered 35:48-36:42 Q:Somebody saying they have an ascending aortic aneurysm of 4.8. Is having an echocardiogram enough? Of course they have additional tests. They are having only echocardiogram that that's …

Aortic Imaging: Your Questions Answered 34:35-35:45 Q:Somebody, you know, pectus excavatum is a major finding in Marfan or the indented chest, one, which test should somebody get? One doctor told this person that they should not get an ech…

Aortic Imaging: Your Questions Answered 32:06-34:28Q:What, you know, as you can tell from these questions that people in our community are very educated about, about their condition and now after hearing this your presentation they're real…