海外マルファン情報

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

消化器

ロイス・ディーツ症候群と消化器疾患

はじめに ロイス・ディーツ症候群で多くみられる消化器疾患 ・食物アレルギー ・好酸球性消化器疾患(好酸球性食道炎/胃腸炎/大腸炎) ・炎症性腸疾患(IBD) ・便秘 消化器疾患の診断法 ・臨床検査 ・内視鏡検査 ・レントゲン・CT・MRI 消化器疾患の管理・…

結合組織疾患が腸に与える影響

Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 1:02:16-1:04:22 Q:This is another one specifically from a Marfan patient but I'm going to guess it's got cross, cross applicability again, so he says can severe constipat…

好酸球性食道炎の治療法について

Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 54:23-55:49 Q:Are there any new treatments for, I'm just gonna go ahead and use the abbreviation EoE so I don't butcher the, the words here, except diet, steroids, and PP…

LDSでBMIが低い状態が続いている場合はどうするか?

Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 51:47-54:19 Q:What are the main nutritional concerns with a consistently low BMI for LDS children? My 15-year-old has struggled with weight gain and his type Loeys-Dietz …

LDSでの嘔吐について

Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 49:50-51:33 Q:Next question my son with Loeys-Dietz gets sick or vomits at least a couple times a week. Should he be seeing a gastroenterologist or is this common? LDSの…

ミララックスの長期服用について

Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 46:18-48:01 Q:Next question is taking Miralax daily twice a day okay and does it cause malnutrition and/or low potassium? ミララックスを毎日2回服用しても問題ないでしょう…

LDS小児の消化器疾患 ~まとめ~

Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 38:55-40:30 So to summarize your body mass index or if you're less than two your weight for length should be plotted at every visit and if it is low dropping or a surgery…

LDS小児の消化器疾患 ~炎症性大腸炎の所見・診断・治療~

Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 37:51-38:54 Symptoms of inflammatory bowel disease include poor growth, diarrhea, blood in the stool and blood tests that show hidden inflammation, anemia or low red bloo…

LDS小児の消化器疾患 ~炎症性大腸炎~

Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 35:53-37:48 What I'm going to be spending some more time I'm talking about is another form of intestinal inflammation called inflammatory bowel disease or IBD. 次に炎症性…

LDS小児の消化器疾患 ~好酸球性食道炎~

Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 34:46-38:54 Lastly I'm going to talk about intestinal inflammation in Loeys-Dietz syndrome. 最後はLDSにおける炎症性腸疾患についてお話します。 The first kind of intestinal…

LDS小児の消化器疾患 ~便秘が改善しない場合の追加検査など~

Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 32:41-34:44 Other things to consider if you're not responding as expected to a daily stool softener and or a stimulant is additional testing. 便軟化剤や刺激薬を毎日服用し…

LDS小児の消化器疾患 ~長期間続く便秘の影響~

Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 30:44-32:39 With long-term constipation we can see some other issues. 長期間続く便秘に関しては他にもいくつかの問題があります。 So having a bowel movement requires coordin…

LDS小児の消化器疾患 ~便秘と便軟化剤~

Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 28:21-30:42 We're going to shift gears and talk about constipation for a little bit now. では、便秘の話に移りたいと思います。 So for this talk I'm going to use a definiti…

LDS小児の消化器疾患 ~経鼻胃チューブ・胃ろうチューブ~

Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 24:26-27:06 So sometimes however people just aren't able to eat and or drink enough, sometimes dietary exclusions due to allergies make that difficulty. People with Loeys…

LDS小児の消化器疾患 ~フォーミュラ(調製粉乳)~

Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 22:00-23:15 Sometimes calorie packing is not the best way to proceed with some patients and so in those cases we may use formulas. Formulas exist in many different forms.…

LDS小児の消化器疾患 ~はじめに~

Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 18:11-18:54 Hi, my name is Anthony Guerrerio. I'll be talking about pediatric gastrointestinal issues in Loeys-Dietz syndrome today. I'm a pediatric gastroenterologist at…

新型コロナウイルス感染症と大動脈疾患についての最新研究 ~その他の高リスク疾患について~

Covid and Aortic Conditions: The Latest Research 16:19-18:59 You know, several of our other genetic aortic conditions do have other issues that may put them at a higher risk. So Enid, do you want to go over that? I think some of these are …

ロイス・ディーツ症候群で体重が増えない場合はどうするか?

47:38-48:53 Q:There another medical question about Loeys-Dietz syndrome and GI issues and difficult, difficulty gaining weight. ロイス・ディーツ症候群と消化器疾患、体重が増えないことについての質問です。 The question is, "Is it best that pa…