Q & A
Staying Healthy & Exercising Safely 31:16-32:43 Q: This is a recurring theme, so um, there seems to be a lot of guidance around pre-surgery. What about post-surgery? Does surgery significantly reduce the likelihood of adverse events? 繰り…
marfan.org 上記サイトから英語で質問する際のテンプレート例です。英訳は生成AIを使うことをお勧めします。 Subject: Inquiry from Japan regarding [Marfan syndrome / aortic disease / your condition] Question: Dear Help Center Team, My name is [Yo…
Marfan Basics: Taking Care of Your Aorta 1:19:43-1:20:47 Q: We have somebody on who is 28 years old with Marfan and says he's fit. Um, he's going to be going to Machu Picchu, so he's wondering, um, is altitude pose a higher risk for Marfan…
Marfan Basics: Taking Care of Your Aorta 59:00-1:00:01 Q: What are the recommendations for intervention regarding uncomplicated type B aortic dissection in Marfan, what diameter does it need to be open surgery or endovascular work as well.…
LDS患者はCPR（心肺蘇生法）を受けるべきでしょうか？CPRが推奨されないような状況はありますか？ LDSは「活動停止中」だと言われました。どういう意味ですか？ 表現型と遺伝子型についてですが、目立った外見的な特徴がない場合でも、LDSのことを心配しなけ…
結合組織疾患における全般的な消化器の懸念 結合組織疾患患者で最も一般的な消化器の問題とは？ 診断と治療法 専門医にかかるべきタイミング、サイン、専門知識のある医師や医療機関を受診することの重要性について 標準的な消化器の薬（例 プロトンポンプ阻…
Marfan Basics: Taking Care of Your Aorta 40:37-43:30 Q: Somebody is asking, what advice would you give a person whose aorta does not yet measure 4.5 cm? Like, how often should they follow up imaging? They obviously want to prevent an emerg…
Marfan Basics: Taking Care of Your Aorta 21:12-23:02 Q: Somebody's asking me if you could just briefly clarify again the difference between a dissection and an aneurysm, so like for example like, you know, this person's doctor said that he…
Managing HTAD: Key Insights from the 2024 ESC Guidelines 1:07:34-1:10:43 Q: Is the use of ARBs recommended in Marfan patients whose blood pressure is normal to low and this person has a abdominal aneurysm which is followed annually and the…
Managing HTAD: Key Insights from the 2024 ESC Guidelines 1:05:34-1:07:24 Q: What’s the difference between a Type B and a Type A dissection and how is it related to pregnancy? A型解離とB型解離の違いについて教えてください。また、妊娠との関係…
Managing HTAD: Key Insights from the 2024 ESC Guidelines 1:03:09-1:05:28 Q: Are there side effects that come from losartan? Julie? ロサルタンの副作用はありますか？ A: Yeah, I can go on. Side effects from the main... the main concern is tha…
Managing HTAD: Key Insights from the 2024 ESC Guidelines 59:57-1:03:02 Q: There is a question here about Celiprolol not being available in the United States, but currently, you can go into a trial with Celiprolol within the United States. …
Managing HTAD: Key Insights from the 2024 ESC Guidelines 57:36-59:55 Q: This family has genetic testing and they are in the VUS category, but they have been affected by aortic aneurysm for three generations, having, aortic aneurysm repair …
Managing HTAD: Key Insights from the 2024 ESC Guidelines 53:52-57:21 Q: Can you speak to the pros and cons of MRA versus gated CT for measurements of the aortic root in LDS or whether there is a case for both, for both tests in surveillanc…
Managing HTAD: Key Insights from the 2024 ESC Guidelines 51:58-53:39 Q: For ascending aortic aneurysms, do the ESC guidelines take us back from as 5 cm threshold for high-volume regional centers towards 5.5 cm as a recommended threshold, e…
Managing HTAD: Key Insights from the 2024 ESC Guidelines 45:34-51:49 Q: So this patient is a newly diagnosed with vEDS at 51 years of age and she's asking whether the condition lies dormant or has she had it since birth because she didn't …
Tromsø Aorta 2024 Recap with Dr. Kim Eagle 59:25-1:00:40 Q: Was there any discussion about the benefits of different *-sartans for Marfan at the conference? マルファン症候群に対する、ARB（ロサルタン以外）の効果に関する発表はありましたか？ …
Tromsø Aorta 2024 Recap with Dr. Kim Eagle 58:19-59:21 Q: Can you explain again treatment or surgery possibilities for patients with a stable type B dissection? I have been stable for 20 years now but worry about what, if anything, should …
Tromsø Aorta 2024 Recap with Dr. Kim Eagle 48:08-50:56 Q: Typically in a hub and spoke model in the ER makes a diagnosis and the type A aortic patients are seen primarily by CT-surgery service and not Cardiology. So how do you ensure that …
Tromsø Aorta 2024 Recap with Dr. Kim Eagle 46:07-48:02 Q: There was concern about performing any surgery via the leg catheter for those with Marfan syndrome. So, is anyone doing a descending aortic repair in the U.S. yet, and what are your…
Tromsø Aorta 2024 Recap with Dr. Kim Eagle 44:10-45:49 Q: After surgery, are the symptoms of vascular disease diminished? 心臓や血管の手術をした後では、心血管系の症状が出ても感じにくくなるのですか？ A: Oh, that's an interesting question. S…
Tromsø Aorta 2024 Recap with Dr. Kim Eagle 42:10-44:04 Q: As clinicians interpret findings for aortic dissection, how do they think about risk or treatment with other vessel dissections that patients experience? 大動脈解離を診断する際には…
Tromsø Aorta 2024 Recap with Dr. Kim Eagle 38:45-39:18 Q: There's a question here about would warfarin change D-dimer levels. ワーファリンはDダイマーに影響しますか？ A: Well, that's a great question. Anti-coagulation, by virtue of the fact…
Tromsø Aorta 2024 Recap with Dr. Kim Eagle 36:20-37:52 Q: What are your views on the PEARS procedure? PEARSについてのお考えをお聞かせください。 A: Great question. I can say with, I guess, clarity that before I saw the volume of patients an…
Q1 マルファン症候群の特徴があります。どうしたらいいですか？ Q2 検査のためには何科を受診すればいいですか？ Q3 検査を受けなければなりませんか？ Q4 今から診断を受けるのは遅すぎませんか？ Q4 遺伝子検査は必要ですか？ Q5 ロイス・ディーツ症候群で…
Applying AHA's 2024 Scientific Statement: Navigating Diagnosis & Management of Pediatric Aortopathy 58:51-1:01:05 Q: How often do you see complications in the aortic arch? 大動脈弓部の合併症はどのくらいの頻度でみられますか？ A: I can start…
Applying AHA's 2024 Scientific Statement: Navigating Diagnosis & Management of Pediatric Aortopathy 54:55-58:37 Q: Here's a question that touches on the ethics of disclosing diagnosis. If an adult has genetically confirmed heritable thorac…
Applying AHA's 2024 Scientific Statement: Navigating Diagnosis & Management of Pediatric Aortopathy 52:50-54:51 Q: In the statement, you mentioned dual therapy if tolerated. What does "if tolerated" mean? What are indicators to change medi…
Applying AHA's 2024 Scientific Statement: Navigating Diagnosis & Management of Pediatric Aortopathy 51:52-52:44 Q: Is atenolol the preferred treatment for children four and under? 4歳以下の小児については、アテノロールのほうが好ましいですか…
Applying AHA's 2024 Scientific Statement: Navigating Diagnosis & Management of Pediatric Aortopathy 48:09-51:48 Q: Does the statement include specifics on baseline imaging when newly diagnosed? ステートメントには、診断が付いてから最初に行…
