Q & A
Applying AHA's 2024 Scientific Statement: Navigating Diagnosis & Management of Pediatric Aortopathy 33:50-35:47 Q: There are parts of the world where skiing is a way of life. What are your thoughts around counseling families with aortopath…
Applying AHA's 2024 Scientific Statement: Navigating Diagnosis & Management of Pediatric Aortopathy 30:46-33:47 Q: Any tips for discussing the exercise at the preschool age and also with a child but also with the school? What recommendatio…
Applying AHA's 2024 Scientific Statement: Navigating Diagnosis & Management of Pediatric Aortopathy 28:21-30:41 Q: Can you clarify what determines low versus high risk on the exercise table? ステートメントの表にあるハイリスク（ダークブルー…
Applying AHA's 2024 Scientific Statement: Navigating Diagnosis & Management of Pediatric Aortopathy 25:30-28:18 Q: What would be considered “Early-onset Marfan syndrome”? 早期発症型マルファン症候群（eoMFS:Early-onset Marfan syndrome）と考…
Navigating GI Management in LDS 49:38-51:39 Q: You mentioned that steroids could be harmful for bones. Do the benefits outweigh risks if using steroids to treat asthma or EoE? ステロイドを服用すると骨への悪影響の可能性があるというお話があ…
Navigating GI Management in LDS 46:23-47:56 Q: Can EoE be triggered hours after exposure to the allergen? Is that different than a long-term symptom onset? I think I'm not exactly sure how the question... maybe you understand what they're …
Navigating GI Management in LDS 45:06-46:21 Q: This question is about planning an endoscopy and a colonoscopy. If you see evidence of IBD on an endoscopy alone, would you see that or do you need a colonoscopy to take a look at that? 胃や大…
Navigating GI Management in LDS 42:52-45:03 Q: Is there a correlation between LDS and malabsorption? LDSと吸収不良との間に関連はありますか？ A: Malabsorption is when your body cannot appropriately absorb all the nutrients you're eating. Th…
Navigating GI Management in LDS 41:49-42:46 Q: Do you have a recommended NSAID that we could keep on hand for general use and if there's a recommendation for pediatrics versus adult patients? 日常的にそばに置いておくNSAIDのお勧めはあります…
Navigating GI Management in LDS 39:40-41:46 Q: Doctors are quick to recommend NSAIDs for different problems related to inflammation that is seen in people with connective tissue conditions, people with LDS. However, we understand that chro…
Navigating GI Management in LDS 35:31-39:28 Q: I will say that there are a couple of themes coming up. One is about medication management and EoE, another's on like EoE. So I'm going to just try and sort through these and go through them i…
Aging with a Connective Tissue Condition 49:41-50:09 Q: Can lifestyle changes reduce the risk of blood clots and atrial fibrillation? 生活習慣の改善によって、血栓や心房細動のリスクを下げることはできますか？ A: Yes, it's a little hard to pr…
Aging with a Connective Tissue Condition 49:10-49:38 Q: What are the options when the heart has calcified? 心臓の石灰化に対しては、どのような治療選択肢がありますか？ A: Well, so calcification of blood vessels is an expected change with agi…
Aging with a Connective Tissue Condition 48:24-49:08 Q: Are cardiac ablation safe for individuals with VEDS? カテーテルアブレーションはVEDS（血管型エーラス・ダンロス症候群）の患者でも安全にできますか？ A: Well, that's a good question. That…
Aging with a Connective Tissue Condition 47:06-48:19 Q: Dr. Bowen, I know that I've come to you a number of times about the supplements for people because that is a question that comes up regularly from people whether to improve their heal…
Aging with a Connective Tissue Condition 45:53-47:08 Q: For those who maybe aren't feeling as sharp as they used to be or are feeling a decline in their executive functioning, is there advice that you could offer on how to slow that progre…
Aging with a Connective Tissue Condition 44:03-45:11 Q: Could you please elaborate on how a heart attack and a dissection might feel different for someone? 心筋梗塞の痛みと大動脈解離の痛みの感じ方に違いはあるのでしょうか？詳しい説明をお願…
Scoliosis Management & Surgical Options for Marfan Syndrome 39:09-40:36 Q: So many patients, uh, parents of kids want to ignore scoliosis and not accept the precautions, pushing children for sports. Do you think that is safe? お子さんが側…
Scoliosis Management & Surgical Options for Marfan Syndrome 37:37-39:04 Q: So does Marfan automatically mean a huge risk of arthritis when you age, or does it vary? マルファンであるということは、加齢によって自然と関節炎のリスクが高くなると…
Scoliosis Management & Surgical Options for Marfan Syndrome 37:03-37:33 Q: So for pre-teens, at what degree of scoliosis would you recommend any type of treatment? 10歳前後の子どもでは、コブ角がどのくらいになったら側彎症の治療が推奨されま…
Scoliosis Management & Surgical Options for Marfan Syndrome 36:08-36:59 Q: So would an inversion table help with pain? Are Marfan patients advised against using an inversion table? 逆さぶら下がり健康器は背中の痛みに効果があるのでしょうか？…
Scoliosis Management & Surgical Options for Marfan Syndrome 34:42- 36:04 Q: So for severe scoliosis in adults, is there any other way of managing scoliosis other than fusion, and which treatment would you recommend for an adult? 重度の側彎…
Scoliosis Management & Surgical Options for Marfan Syndrome 33:44-34:38 Q: In the event of a spinal fluid leak, does it take patients with Marfan syndrome a longer time to heal as opposed to somebody who does not have a connective tissue d…
Scoliosis Management & Surgical Options for Marfan Syndrome 32:14-33:41 Q: Can you talk a little bit about whether there's a connection between a CSF leak and cases of scoliosis? 脳脊髄液漏出症と側彎症との関係について教えてください。 A: CS…
Scoliosis Management & Surgical Options for Marfan Syndrome 30:48-32:09 Q: For osteoporosis, this patient has been recommended to do some weightlifting, but in Marfan syndrome, it is not recommended. What would you recommend? Do you recomm…
Scoliosis Management & Surgical Options for Marfan Syndrome 28:47-30:43 Q: Osteoporosis, do you see in younger people than, than usual in Marfan syndrome patients and if so why? 骨粗鬆症はマルファン症候群では若い人で多くみられるのでしょう…
Scoliosis Management & Surgical Options for Marfan Syndrome 27:28-28:43 Q: I am in my mid-30s and have some mild scoliosis and get frequent back pain. I'm a little concerned that it will get worse as I continue aging. Is it essentially too…
Scoliosis Management & Surgical Options for Marfan Syndrome 25:22-27:23 Q: Can you go over a little bit in more detail the types of nonsurgical treatment for scoliosis and maybe when is it time to actually think about surgery then when non…
Scoliosis Management & Surgical Options for Marfan Syndrome 24:08-25:19 Q: This person is asking, “Is this operation recommended for older patients, say above 20 years old?” I'm assuming they are talking about, you know, the spinal fusion …
Scoliosis Management & Surgical Options for Marfan Syndrome 22:49-24:06 Q: What type of physiotherapy is recommended for scoliosis? 側彎症ではどのような理学療法が推奨されますか？ A: Physiotherapy does not control scoliosis as a deformity; …
