Managing Pain 5:28-7:26 So there's a small body of research in pain in Marfan syndrome and this screen highlights two studies: one was done by Dr. Nelson based out in Chicago and she was one of the first people to show that pain is occurri…

Managing Pain 4:51-5:26 And again when we talk about pain, it's often related to some type of maladaptive signaling that's happening in the brain. 繰り返しになりますが、痛みがある場合、脳の中の信号伝達に問題があることが多いです。 So years …

Managing Pain 3:25-4:46 So as researchers or clinicians, we often think about pain in terms of numbers or where it might be happening, so oftentimes when you go to a clinician or provider, we ask what type of pain you're experiencing on a …

Managing Pain 1:41-3:24 So when we refer to pain, we are thinking about pain in two different ways; it's both a sensory experience that has associated with the physical manipulation, but it's also an emotional response to the distress and …

Taking Care of Your Aorta 10/15/18 (Virtual Medical Symposium Series) 55:53-56:58 Q:So just severe scoliosis or pectus excavatum affect the aorta? 重度の側弯症や漏斗胸があると大動脈に影響がありますか？ A:No, so the having a thoracic deform…

Taking Care of Your Aorta 10/15/18 (Virtual Medical Symposium Series) 54:00-55:47 Q:What is your take on personalized external aortic root support or PEARS? PEARSについてどのようにお考えでしょうか？ A:I think the PEARS is, a still, is stil…

Taking Care of Your Aorta 10/15/18 (Virtual Medical Symposium Series) 52:36-53:59 Q: So, do people with Marfan syndrome have a lower recommended maximum heart rate than somebody who does not have Marfan? マルファン患者さんの脈拍についてで…

Taking Care of Your Aorta 10/15/18 (Virtual Medical Symposium Series) 49:43-52:35 Q:How about fluoroquinolones? What's somebody asked is that fluoroquinolones and the aorta. I know that's been in the news lately. 最近、フルオロキノロンと大…

Taking Care of Your Aorta 10/15/18 (Virtual Medical Symposium Series) 47:10-49:42 Q:I knew this was gonna come up, physical activity. What do you tell somebody who is restricted, they can't play the sports they really want to play, they're…

Taking Care of Your Aorta 10/15/18 (Virtual Medical Symposium Series) 44:57-47:02 Q:There's somebody, who has three concerns for his doctor: aortic dissection, abdominal aneurysm, and arterial dissection, all less than action level. I'm no…

本編 用語集 マルファン症候群とは？ マルファン症候群の原因は？ マルファン症候群の特徴とは？ 骨と関節 眼 心臓および血管 その他 マルファン症候群の診断方法は？ 本編 作：エリアス・クラーク・ターナー 絵：アレクサンドラ・デュボー その日、マービン…

Taking Care of Your Aorta 10/15/18 (Virtual Medical Symposium Series) 44:01-44:54 Q:So here's one question, right off the bat, If somebody does not have the aortic problem, does that mean the patient's not have Marfan? 早速質問が寄せられて…

2018年10月22日Dawn Knowles 私は常に新しい場所を散策することを夢見てきました。旅の空想の中では、私の身体は丈夫で自由に動き、やりたいことは何でもできるのです。でもこれは現実とは異なります。 私にとっての現実は、マルファン症候群による不自由と…

Aging with Marfan and Related Conditions (VIrtual Medical Symposium Series, 5/6/19) 53:00-53:42 A: Yeah, here's a great question. As you get older, how do you distinguish between what is Marfan and what is getting older? Can you help guide…

Aging with Marfan and Related Conditions (VIrtual Medical Symposium Series, 5/6/19) 50:43-52:59 Q:Here's, a here's a great question for back pain. Would you talk about which doctor you go to the orthopedist, neurologist, is another doctor?…

Aging with Marfan and Related Conditions (VIrtual Medical Symposium Series, 5/6/19) 49:44-50:43 Q:So here's a question, medication question. So people with Marfan are on either beta blocker or losartan. On this particular person said he ha…

Aging with Marfan and Related Conditions (VIrtual Medical Symposium Series, 5/6/19) 48:03-49:42 Q:Okay next, question, okay neuropathy, I know you mentioned. Is it more common in Marfan or is that one of those things that's common in the g…

Aging with Marfan and Related Conditions (VIrtual Medical Symposium Series, 5/6/19) 44:30-48:01 Q:Here, this is an interesting question and somebody just posted, you know. He's having aorta repair and corrective chest surgery in August at …

Aging with Marfan and Related Conditions (VIrtual Medical Symposium Series, 5/6/19) 42:51-44:24 Q:I'm just going onto another question about exercise. I mean, somebody else is well bit older, 50 on disability has a physical, mental issues,…

Aging with Marfan and Related Conditions (VIrtual Medical Symposium Series, 5/6/19) 40:48-42:47 Q:So Dr. Bowen, one question is what about lifestyle choices for somebody's son who was 14, choices that they make now, that can help him age a…

Aging with Marfan and Related Conditions (VIrtual Medical Symposium Series, 5/6/19) 35:56-38:25 And in the end, you know, somebody like me has all this literature and publications and you see them as well and how do we make sense of this? …

はじめに マルファン症候群の特徴とは？ マルファン症候群の原因は？ マルファン症候群になるのはどんな人？ マルファン症候群患者の生活はどのようなものか？ マルファン症候群が疑われる場合、どうすればいいか？ マルファン症候群の診断は？ はじめに Mar…

Aging with Marfan and Related Conditions (VIrtual Medical Symposium Series, 5/6/19) 34:53-35:55 I am showing this slide simply because all of us are going to be having this challenge of, you know, several or even many medications and then …

Aging with Marfan and Related Conditions (VIrtual Medical Symposium Series, 5/6/19) 33:51-34:52 And how do you deal with it well a lot of their problems? We solve ourselves and we should and so we have to have self-care skills. We have, we…

Aging with Marfan and Related Conditions (VIrtual Medical Symposium Series, 5/6/19) 32:18-33:50Now we I have to discuss mental health, problems extremely common in the general population. High rates of depression and anxiety, chronic pain …

Aging with Marfan and Related Conditions (VIrtual Medical Symposium Series, 5/6/19) 30:23-32:17 So a critical problem in the body is how does our blood system age. We are unaware of it but our bone marrow is cranking out gazillions of red …

Aging with Marfan and Related Conditions (VIrtual Medical Symposium Series, 5/6/19) 28:12-30:22 Moving on to the GI system. A lot of us have acid reflux and take antacids, constipation, particularly as a problem as people age. The nervous …

Aging with Marfan and Related Conditions (VIrtual Medical Symposium Series, 5/6/19) 26:16-28:11 Now the endocrine system is critical because I think it's one in seven Americans will develop type 2 diabetes. Thyroid disease affects 15% of n…

Aging with Marfan and Related Conditions (VIrtual Medical Symposium Series, 5/6/19) 23:27-26:15 Now all of us care about the way our nervous system functions and right around the age of 75 or 80, normal people begin to notice that they're …

Aging with Marfan and Related Conditions (VIrtual Medical Symposium Series, 5/6/19) 20:44-23:26 Now the respiratory system ages in all of us. Even though the Marfan patient will have a worse lung function because of the impairment of lung …