整形外科
LDS Guidelines: Then vs. Now 1:17:49-1:20:45 Q:If anyone has any thoughts on just osteoporosis or joint degradation we might see in Loeys-Dietz syndrome and any type of supplement in terms of calcium or things like that? LDSで見られる骨粗…
LDS Guidelines: Then vs. Now 40:04-42:13 In terms of orthopedics, again when we were focused and had our knowledge mainly about Loeys-Dietz types one and two. We did see that many patients had cervical spine instability, so their spine and…
Loeys-Dietz Gastroenterology and Allergy Q&A 7:05-9:06 Also in connective tissue disorders and in some people with Loeys-Dietz syndrome they can have weight gain, can be problematic, so this is also seen in Marfan syndrome as well. It can …
Aortic Imaging: Your Questions Answered 34:35-35:45 Q:Somebody, you know, pectus excavatum is a major finding in Marfan or the indented chest, one, which test should somebody get? One doctor told this person that they should not get an ech…
Family Planning and Pregnancy: US and Europe Perspectives 56:04-57:40 Now cervical instability is another, another spiral manifestation that has an increased risk in Loeys-Dietz syndrome. This can be assessed with an x-ray of the cervical …
Family Planning and Pregnancy: US and Europe Perspectives 54:59-56:03 The spinal anatomy, which differs based on the genetic aortopathy that a person might have, can impact the anesthetic choice and these are a few examples: dural ectasia …
はじめに なぜ骨の健康が重要か？ ロイス・ディーツ症候群における骨に関するリスク因子 DEXA法（骨密度検査） 食事と運動による骨の管理 丈夫な骨を保つためのアドバイス はじめに ロイス・ディーツ症候群（LDS）の患者さんの中には、骨がもろいことにより…
Marfan Syndrome Management: Back to Basic 19:14-20:23 And what about non-cardiac surveillance and treatment? 心臓以外の所見に関する検査と治療について説明します。 We recommend serial ophthalmology evaluations in children. It's every year. I…
Personal Perspectives Panel: Physical Activity & Exercise 44:12-46:26 Some of the questions were about, you know, what is an orthopedist, the right person? It might be, it might be a chiropractor, an orthopedist, a physiatrist, a physical …
Pediatric Gastrointestinal Issues in LDS (August 27, 2020) E3 Summit 58:43-1:01:09 Q:Could you speak to the effects of connect, connective tissue disorders on the pelvic floor? This person specifically asked about Marfan but maybe broadly …
Living a Life with LDS (September 12, 2020) E3 Summit 31:29-33:50 Q:Next question, we'll toss to you Dr. Loeys. How often should you get a next, neck flexion x-ray to check for instability? 次の質問はLoeys先生にお願いします。頚椎不安定症を…
Personal Perspectives Panel: Life After Aortic Surgery 31:17-34:17 So David, some people actually asked, I mean, a lot of great questions but some people said, "Well what if you don't listen to your doctor's orders and what if you don't do…
Aortic Root Surgery in Connective Tissue Conditions - Surgery Series (2/10/21) 58:12-58:44 Q:Is the, is the recovery harder for patients with connective tissue conditions as opposed to patients who don't have connective tissue problems? 結…
Aortic Root Surgery in Connective Tissue Conditions - Surgery Series (2/10/21) 39:21-41:18 Q:If a patient with Marfan has a deep pectus excavatum does that have any impact on how you do the aortic ...? マルファン症候群で重度の漏斗胸がある…
Dental Concerns of Marfan Syndrome (Virtual Medical Symposium Series - 01-16-2020) 28:40-31:30 And we also get craniofacial measurements, so not just photographs we did measurements, and we looked at the width between the eyes, the width o…
Dental Concerns of Marfan Syndrome (Virtual Medical Symposium Series - 01-16-2020) 26:45-28:39 So we wanted to take an opportunity with so many patients and experts while, at the various meetings, that we we use that opportunity to evaluat…
Dental Concerns of Marfan Syndrome (Virtual Medical Symposium Series - 01-16-2020) 25:26-26:44 So there are a lot of studies that have already looked at this. They're studies by Ting et al. and they use photographs and they found that all …
Dental Concerns of Marfan Syndrome (Virtual Medical Symposium Series - 01-16-2020) 24:14-25:25 So we actually examined craniofacial characteristics in a Marfan cohort by coming to several annual meetings in addition to serving in the clini…
55:28-56:25 Q:Are there exercises to purge early juvenile bunions, Dr. Bitterman? She has semi-custom orthotics and are there, so what else would you do to combine with that? 思春期の患者さんの外反母趾に効果がある運動はありますか？この女性…
Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 51:52-52:49 Q:Dr. Bitterman, what about bunion surgery in people with Marfan syndrome? Are the outcomes similar to the regular population or are they worse outcom…
ううKeeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 47:53-48:53 Q:Here's another foot question, Dr. Bitterman, the four-year-old is with Marfan syndrome has pretty severe pronation. One advice less is more and …
Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 43:56-45:05 Q:Here's a question about shoulder health. Is there anything that you'd recommend to preserve shoulder health? ??? Dr. Sponseller ??? 肩を健康に保つた…
Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 42:55-43:53 Q:Dr. Sponseller, there's a question about pectus carinatum, or protruding chest bone. How successful is bracing for that? 鳩胸の治療にコルセットは有…
Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 42:23-42:52 Q:Dr. Sponseller, at what age does someone have a DEXA scan, if you tell us what that is and what age do they have? Sponseller先生へ、DEXAスキャンは何…
Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 40:22-41:19 Q:And also Dr. Bitterman, any suggested brands for women, who have long thin Marfan feet other than New Balance? Apparently New Balance is popular but…
Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 39:30-40:20 Q:Are steroid injections and foot night brace okay with Marfan patients in conjunction with PT, physical therapy? マルファン患者では、足へのステロイド…
Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 37:13-38:49 Q: It's a question I don't want to go into the specifics of this person's personal situation, but she's basically asking about a procedure called HyPr…
Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 33:22-34:59 Q:I guess for Dr. Sponseller to start with. How successful is back surgery, insertion of rods and screws for adult Marfan patients 60 and over? How wo…
Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 25:54-25:53 So Dr. Sponseller in 2016 with his group out of Johns Hopkins, they published an important paper on the quality of life and they sent out surveys to 2…
OLKeeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 24:49-25:53 So pain. Unfortunately as good as we are like, Dr. Sponseller said, we don't have a great understanding on exactly the true cause of pain because th…
