Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 23:49-24:48Going to transition here now to quality of life and listed on the left are many or a few of the many concerns related to Marfan syndrome. ここからはQOL…

22:41-23:47 With regards to the ankle when the ankle gives out after sufficient injuries or sprains, which are tears in the ligaments, we need to find better measures because again repairing tissue paper to tissue paper is not successful a…

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 21:07-22:41 As this begins to fail or this does not necessarily work, that's when we would then begin to look into alternative measures. Now unfortunately this pa…

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 18:15-21:07 So the classic foot of someone with this syndrome is as seen here. The foot is flat. The arch is no longer maintained. The digits are extremely long a…

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 17:15-18:14 So, why is the foot and ankle so, so vital? Well, there really isn't any other area of the body that can withstand roughly 10,000 steps each day for 1…

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 16:00-17:14 Good evening, everyone, thank you for joining us. My goal is to focus mainly on the lower extremity and also on some important details surrounding qua…

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 14:24-15:24 I think those are the things I'd like to cover and I'd like to stimulate people to think about some of the unanswered questions you have in Marfan syn…

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 13:26-14:23 The bigger thing with Marfan hips is they deep in their hip socket called protrusio and this is where the pressure of the bone against the body weight…

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 12:41-13:25 I like to briefly touch about some of the hip issues in Marfan syndrome as well. Going from childhood to adulthood and the neonate, you can have hip d…

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 11:59-12:39 In some cases, dural estasia is kind of refractory to pain so after various physical modality, strengthening, ???, there is kind of a final option for…

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 10:55-11:58 Does dural estasia gets worse over time? We tried to study this with an 11-year follow up with a dozen patients and we had pinned some in 2002 and we …

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 10:02-10:54 And dural ectasia causes pain. In most cases it does, although there are some patients who have dural ectasia don't have any pain. We don't know why t…

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 9:01-12:40 Dural estasia is probably a term you've heard because it can cause symptoms and also cause concern in many people with Marfan syndrome. Some would say …

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 7:57-9:00 We also found that some people with Marfan syndrome will have slippage of the spine or spondylolisthesis. This is common in general population but a per…

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 4:43-7:57 A common question is whether bracing will help scoliosis and to certain degree it will. They won't straighten the curve but it may hold it. When we stud…

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 3:51-4:42 On the spine, I'd like to cover scoliosis, kyphosis and slipping, spondylolisthesis. I think that these are all things you've probably heard of, but I'l…

Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions 3:04-3:50 The topic of my talk is to talk about their healthy limb, feet and spine and cooperating with Adam, we, the thing I'd like to focus on would be the spin…

Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 54:33-55:09 Q:If you have pectus excavatum, pectus excavatum, how might that affect your experience while pregnant? Does it? 漏斗胸がある場合、妊娠に影響はありますか？ A:It's s…

はじめに マルファン症候群に共通する骨や関節の問題の種類 体型 背骨の弯曲（側弯症） 猫背（後弯症） 胸部（胸郭）の問題 足の問題 その他の問題 マルファン症候群に多い骨や関節の問題の治療法 背骨の弯曲（側弯症） マルファン症候群での側弯症の治療に…

はじめに マルファン症候群の硬膜拡張で一般的にみられる症状は？ マルファン症候群の硬膜拡張の治療法は？ はじめに The nervous system—the brain and spinal column—are surrounded by fluid contained in a membrane called the dura, which is primaril…

Taking Care of Your Aorta 10/15/18 (Virtual Medical Symposium Series) 55:53-56:58 Q:So just severe scoliosis or pectus excavatum affect the aorta? 重度の側弯症や漏斗胸があると大動脈に影響がありますか？ A:No, so the having a thoracic deform…

Aging with Marfan and Related Conditions (VIrtual Medical Symposium Series, 5/6/19) 50:43-52:59 Q:Here's, a here's a great question for back pain. Would you talk about which doctor you go to the orthopedist, neurologist, is another doctor?…

Aging with Marfan and Related Conditions (VIrtual Medical Symposium Series, 5/6/19) 18:15-20:43 Now in the general population, the spine and the joints, of course, age and it's common to have spinal degenerative arthritis. I'm not talking …

Aging with Marfan and Related Conditions (VIrtual Medical Symposium Series, 5/6/19) 6:21-7:11 And on the left panel here you can see her image. This is a side view and I think you can see my pointer, so these are the vertebral bodies and t…

Lung Issues in Marfan Syndrome 20:45-21:21 So the take-home message is that with restrictive lung disease in persons with Marfan syndrome, serial pulmonary function tests to follow the progression of restriction are needed and there should…

Lung Issues in Marfan Syndrome 19:02-20:45 And here I've summarized kind of the causes of restrictive lung disease in persons with Marfan syndrome. このスライドでは、マルファン症候群における拘束肺疾患の原因をまとめました。 And the points a…

Lung Issues in Marfan Syndrome Many of you are familiar with the interventions that are used for scoliosis and they range from observation to casting embracing, if you have more severe curvatures, and finally, the surgical options that I'v…

Lung Issues in Marfan Syndrome 16:26-18:06And so it's very important that if there is going to be an intervention for scoliosis that a pulmonary evaluation is performed and this should include a full set of pulmonary function tests with a …

Lung Issues in Marfan Syndrome 15:15-16:25 On this slide, we see kind of how we actually measure the cobb angle and we also see an equation that suggests that we can predict the lung capacity based on the severity of the curvature. このス…

Lung Issues in Marfan Syndrome Now we move to scoliosis, which again is very common in Marfan syndrome, and I'm certain that many of the people who are listening now have encountered this particular complication. On this slide I've listed …