海外マルファン情報

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

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結合組織疾患と加齢 〜結合組織疾患と心臓病およびがんの関連〜

Aging with a Connective Tissue Condition 20:10-25:11 Now let's talk just a little bit about Marfan syndrome and related conditions. Dr. Pyeritz wrote this editorial some years ago, how research does pay off and does lead to improvements in…

結合組織疾患と加齢 〜がん〜

Aging with a Connective Tissue Condition 18:03-19:04 Now, so that’s heart disease, but as we said earlier, the other half of us are probably going to die of cancer. And you can't affect your, your oncogenes, you’re born with these, but man…

LDSガイドラインの改訂に向けて ~消化器疾患とがんの発症リスク~

LDS Guidelines: Then vs. Now 46:57-50:15 Same thing for gastroenterology and nutrition for Loeys-Dietz syndrome. We do follow the growth of our patients, especially our young kiddos very closely, especially if someone is looking at a surge…