海外マルファン情報

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

COVID-19(新型コロナウイルス感染症)

COVID-19 最新情報(2022/04/22)

COVID-19 Q & A (April 2022) はじめに BA.2 変異株について BA.2 変異株の影響 ワクチンについて ワクチンの追加接種について 小児のワクチン接種について 小児のワクチン接種に関する研究からわかること マルファン関連疾患に対するCOVID-19の影響 はじめ…

COVID-19に関するQ&A(2021/09)

COVID-19 Questions & Answers - September 2021 はじめに COVID-19の予防および治療に関する最新の研究結果はあるか? Marfan症候群・Loeys-Dietz症候群・血管型Ehlers-Danlos症候群患者にとって安全性の高いワクチンはどれか? Marfan症候群・Loeys-Dietz…

【2021/09/01更新】マルファン症候群・血管型エーラス・ダンロス症候群・ロイス・ディーツ症候群および類縁の遺伝性大動脈・血管疾患患者向けCOVID-19およびワクチンに関する最新情報

はじめに デルタ株と結合組織疾患 ブースター接種 マスクによる保護 はじめに The Marfan Foundation の専門家からなる諮問委員会(以下、専門家委員会)は、COVID-19のワクチン接種が望ましいとされる全ての方に、引き続きワクチン接種を推奨します。この中…

二回目のCOVIDワクチン接種が遅れてもいいか?

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 1:07:34-1:12:01 Q:In Canada they are delaying the second vaccine for Pfizer and Moderna for four months, up to four months. Is it risky for conditions that have cardiac, that …

子供へのCOVIDワクチン接種の見通しについて

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 1:03:38-1:05:23 Q:When do you think there will be a vaccine for children? 子供を対象としたワクチン接種はいつ始まるのですか? A:I actually think that the recommendations will, …

COVIDワクチン接種後に解熱鎮痛薬を飲んでもいいか?

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 1:02:37-1:03:34 Q:There's a question here about whether they can take Tylenol or Advil after having a vaccine? COVIDワクチン接種後は、アセトアミノフェンやイブプロフェンを飲ん…

COVID感染後の多系統炎症性症候群について

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 1:01:03-1:02:34 Q:So we have some questions about, you know, getting infected with COVID and we've heard about a multisystem inflammatory syndrome response after recovering fr…

ワクチン接種後の副反応をどう捉えるべきか?

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 57:44-1:01:00 Q:So they have another, there's another question here by Alex. That is similar, saying that Israel is examining 62 cases where people experience inflammation of …

COVID-19による大動脈への影響はあるか?

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 55:45-57:41 Q:Do we know yet if there is a more common reaction to COVID-19 for people with vascular connective tissue disorders and we saw that we had a small NIH study of ma…

ワーファリンを服用しているが、COVIDワクチンを接種してもいいか?

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 54:30-55:31 Q:He has a question about being on warfarin therapy for about 40 years. Should he be concerned about potential clotting or related events upon vaccination? 40年間…

Marfan関連疾患におけるCOVID最新情報 ~妊婦・子供へのワクチン接種および3度目のワクチン接種~

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 51:48-54:01 Joe, could I just add a couple of points and one of these is Dr. Nunez, kind of mentioned but I, I wanted to reinforce the fact that the recommendation currently i…

Marfan関連疾患におけるCOVID最新情報 ~変異型ウイルス~

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 49:32-51:31 And, and these are, this is a slide that I, I simply wanted to show the audience. You, you hear on the news these various types of variants and where they've come …

Marfan関連疾患におけるCOVID最新情報 ~ワクチンの効果を示すデータ~

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 47:57-49:21 Some of my patients are asking me, "Can I get infected if I've been vaccinated?" and this really gets at the question of how effective are the vaccines and can a p…

Marfan関連疾患におけるCOVID最新情報 ~mRNAワクチン開発までの経緯~

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 46:34-47:56 I want to just comment on one one aspect of Enid's presentation that I think is, is relevant to us. 先ほどのEnid先生の説明に付け加えたいことがあります。 This, she …

Marfan関連疾患におけるCOVID最新情報 ~J&Jワクチン(3)~

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 43:12-46:14 So does that mean the vaccine is unsafe? No, that does not mean the vaccine is unsafe では、J&Jワクチンは危険かというとそうではありません。 So the number that you …

Marfan関連疾患におけるCOVID最新情報 ~J&Jワクチン(2)~

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 41:30-43:09 So many people who had already received the J & J vaccine or who were planning to receive the J & J vaccine were alarmed several days ago when the FDA asked for a …

Marfan関連疾患におけるCOVID最新情報 ~J&Jワクチン(1)~

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 38:53-41:27 So some people have asked, "Well, what makes the Johnson and Johnson vaccine different?" and I explained earlier that it was generated using a platform that we're …

Marfan関連疾患におけるCOVID最新情報 ~副反応・アレルギー反応・アナフィラキシーショック~

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 35:28-38:48 So one of the, the questions that constantly comes up is what type of response should one expect after they've gotten the vaccine and what is normal and what is no…

Marfan関連疾患におけるCOVID最新情報 ~ワクチンの有効性~

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 33:42-34:52 Now the other kind of aspects of these vaccines as you look in the literature and as you hear kind of various things in the media is to recognize that they all hav…

Marfan関連疾患におけるCOVID最新情報 ~ワクチンの種類~

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 31:05-33:41 This slide kind of depicts the current vaccines that are available and I want you to kind of look at the Moderna vaccine and the Pfizer vaccine as the two that wer…

Marfan関連疾患におけるCOVID最新情報 ~ワクチン接種が必要なもう一つの理由~

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 29:56-31:04 Well, thank you so much for kind of inviting us back to talk with this incredibly savvy community. The, the first thing that, you know, I want to mention is that o…

Marfan関連疾患におけるCOVID最新情報 ~回復期血漿の有効性~

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 27:58-29:30 We've also gone through the, the stages of asking how effective are convalescent plasma transfusions from individuals who've had the virus and volunteered to give …

Marfan関連疾患におけるCOVID最新情報 ~アジスロマイシン~

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 27:04-27:57 You know, we've gone through a lot in terms of therapeutics, haven't we? The whole hydroxychloroquine story was we went full circle and it turned out that hydroxyc…

Marfan関連疾患におけるCOVID最新情報 ~遺伝性希少疾患におけるCOVIDの影響~

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 25:33-26:59 This is a very interesting survey that the NIH did looking at the question, "Does it look like COVID-19 has a predilection to cause worse outcomes in individuals w…

Marfan関連疾患におけるCOVID最新情報 ~COVID感染後の心血管手術~

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 24:22-25:28 This is actually an important topic that came up in one of my patients recently, who was a young person with Marfan syndrome, who was preparing to have an aortic o…

Marfan関連疾患におけるCOVID最新情報 ~ACEI・ARBの服用~

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 23:11-24:19 As you know early on there was a lot of concern among individuals on ACEIs and ARBs about whether this might be a problem and the reason for that is that the, the …

Marfan関連疾患におけるCOVID最新情報 ~人から人への感染~

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 20:34-23:06 So I'm going to ask Dr. Kim Eagle to start discussing our first study, which is on transmission. では、Kim先生に最初のトピックの「人から人への感染」について説明し…

Marfan関連疾患におけるCOVID最新情報 ~トピック~

COVID-19 Update for the Marfan, Loeys-Dietz, and VEDS Community 19:36-20:33 Since our last webinar we're going to review some of the recent studies that have been published in areas that are specific for our community. このオンラインセミナ…

大動脈手術とCOVIDワクチン接種のどちらを先にしたらいいか?

Aortic Root Surgery in Connective Tissue Conditions - Surgery Series (2/10/21) 58:50-59:15 Q:If somebody's facing elective aortic surgery should they get the vaccine first or should they hold off getting having the surgery? 大動脈手術とCOV…

妊婦へのCOVIDワクチン接種について

Covid and Aortic Conditions: The Latest Research 1:21:13-1:21:56 Q:What about a vaccine for somebody who was pregnant? Have they been included in studies at all? 妊婦のワクチン接種について伺います。妊婦はワクチン研究の対象者に含まれていた…