海外マルファン情報

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

Entries from 2021-06-01 to 1 month

開胸・開腹術による胸腹部大動脈の修復 ~マルファン患者で胸腹部大動脈の修復が必要なケース~

Open Thoracoabdominal Repair: Surgery Series (2/16/21) 15:35-16:48 Most of what I'm going to talk about tonight as I mentioned is really this area from the left subclavian artery down to the bifurcation of the aorta down to the iliac arter…

開胸・開腹術による胸腹部大動脈の修復 ~大動脈基部置換術~

Open Thoracoabdominal Repair: Surgery Series (2/16/21) 12:04-15:32 The idea of aortic repair in surgery is to perform a repair before the aorta gets so large or so weak that it does rupture, so you want to prevent the rupture and prevent t…

開胸・開腹術による胸腹部大動脈の修復 ~大動脈解離~

Open Thoracoabdominal Repair: Surgery Series (2/16/21) 10:23-12:03 The other problem that develops is the aortic dissection and that's where you develop a tear of one of these inner linings and then the blood gets between the layers create…

開胸・開腹術による胸腹部大動脈の修復 ~大動脈と動脈瘤~

Open Thoracoabdominal Repair: Surgery Series (2/16/21) 8:19-10:22 We're going to talk about the aorta tonight. The aorta is the large artery coming off of the heart that distributes the branches throughout the entire body and the arises fr…

開胸・開腹術による胸腹部大動脈の修復 ~マルファン症候群の概要~

Open Thoracoabdominal Repair: Surgery Series (2/16/21) 5:11-8:19 Tonight I'm going to talk about the thoracic, abdominal aorta and its involvement with Marfan syndrome, in particular. I'd like to just say up front that I'm not going to be …

大動脈手術後の生活についてのオンライン座談会 ~最後に~

Personal Perspectives Panel: Life After Aortic Surgery 1:01:13-1:05:14 For our last question and then we go back then we'll finish it up with some housekeeping, so today it's, in, Victoria, one year past surgery, the rest of you a little b…

大動脈手術後の生活についてのオンライン座談会 ~薬(医師の解説)~

Personal Perspectives Panel: Life After Aortic Surgery 58:58-1:01:07 So David, can you just talk a little bit about why people are taking medication before there's, before and then why they have to continue taking it afterwards? David先生…

大動脈手術後の生活についてのオンライン座談会 ~薬~

Personal Perspectives Panel: Life After Aortic Surgery 57:05-58:56 Let's go on to medications a little bit. So people with Marfan, Loeys-Dietz are what they know they have it, Lauren, are typically taking medications, you know, for their b…

大動脈手術後の生活についてのオンライン座談会 ~手術後の食事・栄養~

Personal Perspectives Panel: Life After Aortic Surgery 53:33-55:50 A lot of people also asked about, about diet and nutrition, so I'm curious who on here might be have had to change their diet maybe because of warfarin and oh, what they th…

ストーン一族

ストーン一族 ―― 不可解な謎に苛まれ、苦難を強いられた一族。苦しみは何世代にもわたって続き、幾多の専門家を訪れること数十年に及びました。ストーン一族の物語、それは一つの啓発の物語です。 大動脈解離 マルファンではない 真相から啓発へ 大動脈解離 …

大動脈手術後の生活についてのオンライン座談会 ~下行大動脈手術からの回復(医師の解説)~

Personal Perspectives Panel: Life After Aortic Surgery 51:52-53:30 David, is, is recovery harder for somebody who is, who has surgery for the descending aortic aneurysm than what, these folks have had, there's a similar experience? David先…

大動脈手術後の生活についてのオンライン座談会 ~手術後に助けてくれる人たち~

Personal Perspectives Panel: Life After Aortic Surgery 48:07-51:12 Somebody else asks us really, this really great question, they pre-submitted this. What would you say to your caregivers, I mean, there's a lot of people that are participa…

ベネット氏 70代を楽しむ

1950年代、ボルチモアの小学校に通っていたベネットさん。始まりは学校の身体測定でした。当時、学校に医師がいるのは当たり前の時代。校医に身体の異常を認められ、運良くジョンズ・ホプキンス病院のビクター・マキュージック医師へと紹介されることになり…

大動脈手術後の生活についてのオンライン座談会 ~入院時にあったほうがいいもの~

46:55-48:07 Dominga, did you have something to add? Domingaから何か付け足しはありますか? I did actually because this actually has reminded me of a lot of things having this conversation. The, the breathing apparatus that Victoria mentione…

大動脈手術後の生活についてのオンライン座談会 ~手術前に知っておいてもらいたいこと(医師の解説)~

Personal Perspectives Panel: Life After Aortic Surgery 45:01-46:53 David, is there anything else that you tell your patients ahead of time before they go into surgery? You're on mute. では、David先生、手術前に患者さんに知っておいてもらいた…

大動脈手術後の生活についてのオンライン座談会 ~手術前に知っておいてもらいたいこと(医師の解説)~

Personal Perspectives Panel: Life After Aortic Surgery 45:01-46:53 David, is there anything else that you tell your patients ahead of time before they go into surgery? You're on mute. では、David先生、手術前に患者さんに知っておいてもらいた…

大動脈手術後の生活についてのオンライン座談会 ~手術前に知っておきたかったこと~

Personal Perspectives Panel: Life After Aortic Surgery 40:44-45:01 So, so I don't know if everybody saw but Dominga wrote this great blog post on our blog about top five things that she wish she knew before aortic surgery. I wanted and I'l…

大動脈手術後の生活についてのオンライン座談会 ~術後の妊娠・出産~

Personal Perspectives Panel: Life After Aortic Surgery 38:51-40:43 I don't, I mean, I can give my personal story with it. So I was diagnosed at 16 and, you know, they always said that it would be, you know, a risk factor obviously to get p…

大動脈手術後の生活についてのオンライン座談会 ~手術後の妊娠・出産(医師の解説)~

Personal Perspectives Panel: Life After Aortic Surgery 36:33-38:49 There's something else a lot of people asked about and I'm going to go to David first and to you on this as well and we'll see if anybody else wants to comment. There are a…

大動脈手術後の生活についてのオンライン座談会 ~術後の体の不調への対処法②(医師の解説)~

Personal Perspectives Panel: Life After Aortic Surgery 34:18-36:28 Do you, do you prescribe like PT, cardiac rehab all that afterwards so they have like, like formal exercise after surgery before they get, let on their own and you get reje…

大動脈手術後の生活についてのオンライン座談会 ~術後の体の不調への対処法①(医師の解説)~

Personal Perspectives Panel: Life After Aortic Surgery 31:17-34:17 So David, some people actually asked, I mean, a lot of great questions but some people said, "Well what if you don't listen to your doctor's orders and what if you don't do…