Entries from 2020-05-01 to 1 month
Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 33:23-36:04 Okay, so talking about anesthesia. So first I just want to say good anesthesia is key for safety if you have Marfan or Loeys-Dietz syndrome and I know it's sort of …
Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 31:31-33:19 And then talking about the baby. So, we want to do something called a level 2 ultrasound or that's a detailed scan where we look at all of the structures of the bab…
Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 29:55-31:30 So talking about protection of the aorta and then we're going to talk about how we watch the baby as well. このスライドでは、大動脈の保護と母体内の胎児の経過観察に…
Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 27:31-29:53 So talking about genetic testing, again, this is a really personal decision of whether to do this or not and if you, we do know, like we talked about previously, th…
Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 26:33-27:29 So assemble your team. So the next thing is that's important to do is sort of come up with a a multidisciplinary team that can be assembled by the captain of the sh…
はじめに マルファン症候群に多い肺疾患 拘束性肺疾患 突然の肺虚脱（自然気胸） 肺気腫 喘息 睡眠時無呼吸 マルファン症候群での肺疾患の治療法 拘束性肺疾患 肺虚脱（気胸） 肺気腫 喘息 睡眠時無呼吸 日常的にできること はじめに マルファン症候群および…
Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 24:14-26:32 So risks related to pregnancy, here's some of the things that the maternal fetal medicine specialists would talk about this, you know, that we need to consider, so …
Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 22:45-24:12 And then I'm going to talk a little bit about prophylactic aortic replacement before pregnancy. では、妊娠前に予防目的で行う大動脈置換手術についてお話します。 So th…
Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 22:45-24:12 And then I'm going to talk a little bit about prophylactic aortic replacement before pregnancy. では、妊娠前に予防目的で行う大動脈置換手術についてお話します。 So th…
Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 20:18-22:44 So plan ahead. This is preconception counseling so before you get pregnant, it's important to have conversations with your doctors. ではまず、妊娠前の準備についてお…
Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 19:03-20:16 So again we're going to move on now and just talk more about. Yes, there's this thing that's really scary in the aortic dissection but there's a lot of things we ca…
Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 17:56-19:02 So, how do we identify women who are at highest risk for adverse or bad outcomes during or after pregnancy? では、妊娠中あるいは妊娠後に高リスクで有害転帰となる女性…
Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 17:20-17:51 So what are the symptoms of aortic dissection? It can be chest pain, back pain, trouble breathing, stroke like symptoms, passing out or focal neurological sign and …
Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 15:17-17:17So we're going to just talk about this rare thing a little bit more. So we do know that this is a rare event. Look at all women, not just the women with Marfan or Lo…
Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 12:47-15:14 Okay, so just to talk about the timing and risk factors for aortic dissection in pregnancy, we know from previous studies just looking at large cohorts that we thin…
Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 10:12-12:41 So talking about Marfan, Loeys-Dietz syndromes, these are both connective tissue disorders that affect connective tissues in the body including the ligaments, bones…
Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 8:18-11:10 So first, if you're thinking about getting pregnant, you know, if a person like them, the most common question I get from a woman, if she has Marfan or Loeys-Dietz, …
Pregnancy Concerns in Marfan Syndrome and Loeys-Dietz Syndrome 7:30-10:11 So we're going to talk through just things to consider if you do want to have a pregnancy and tonight I'm focusing on Marfan, Loeys-Dietz. 今回のオンラインセミナーで…
COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 1:22:40-1:24:27 Well, actually the first question, we've already hit on some of those things that we, you know, we would recommend our community members tell their doctors about their d…
COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 1:17:37-1:22:22 "If one has one of the these disorders and as a health care provider, how can we protect their own safety?" 「マルファン関連疾患の医療従事者が感染から身を守るにはどうす…
COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 1:15:08-1:16:30 "Is there anything that we can do now to strengthen our lungs to prevent a worse outcome with this virus and in general just for us and our children?" 「COVID-19の重症化…
COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 1:11:34-1:12:27 The third question is "Will the use of a ventilator increased the risks of lung collapse and fragile lungs?" 「人工呼吸器を使用することで、気胸になったり肺が弱くなるリス…
COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 1:11:02-1:11:33 So the second question is "How will the lungs be affected if you already had COPD or another restrictive lung disease?" 「COPDなどの拘束性肺疾患がある場合、COVID-19に感…
The Marfan Foundationは、専門家委員会（PAB）の協力の下、COVID-19に関するニュースを継続的に監視し、マルファンコミュニティに最新の情報を提供したいと考えています。この度メディケア＆メディケイドサービスセンター（CMS）から対面診療の再開に関する…
COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 1:07:51-1:11:07 So these are questions that deal with lung issues and this virus, so Enid? このスライドの質問は肺に関するものですので、Enid先生お願いします。 Yeah, these we covered some…
COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 1:06:37-1:07:34 Ibuprofen, there's been some experimental work to again show that, that increases the production of the receptor for this virus. That, it's interesting. It's, it's a ver…
COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 1:00:44-1:06:36 So the next set of questions kind of deals with different medications that are usually used for patients with Marfan and these other related connective tissue disorders,…
COVID-19 and Marfan/VEDS/LDS: Your Questions Answered 58:54-1:00:40 And the last issue, "if you use an inhaler that contains a steroid can you still use it if you have COVID-19 symptoms?" では、このスライドの最後の「COVID-19の症状があって…
