Insights on Ocular Management for Marfan Syndrome 33:52-35:35 Q: Is it possible for me to have lens replacement surgery just for my right eye, which is a much weaker one. The vision in my left eye is not too bad, so I'd like to leave it al…

Insights on Ocular Management for Marfan Syndrome 32:10-33:38 So the goal in the end whatever condition you have is to maintain the excellent and equal vision in both eyes. では最後に、眼科管理の目標を説明して終わりたいと思います。まず、ど…

Insights on Ocular Management for Marfan Syndrome 29:27-32:08 Amblyopia, layman term is just lazy eye. This is specifically for children and when you're adult you have a lazy eye nothing we can do about it. You pass that developmental stag…

Insights on Ocular Management for Marfan Syndrome 26:07-29:26 Now we get into some quote unquote minor problems. Those can be visually significant as well, so do keep those things in mind. Myopia meaning being nearsighted and this is the n…

Insights on Ocular Management for Marfan Syndrome 21:45-26:05 Another really vicious threatening condition is glaucoma. This is again, is a schematic of the eye. Glaucoma by definition is optic nerve damage. Optic nerve is right here. It's…

Insights on Ocular Management for Marfan Syndrome 14:24-21:44 Detached retina, that is a very fearful condition. I hear this from Marfan patient all the time simply because the, this occurrence is much higher than the general population. G…

Insights on Ocular Management for Marfan Syndrome 8:51-14:23 We get into that a little bit more, so this is the real patient and they do have another condition not, other than dislocated lens. You can get this called a presenile cataract. …

Insights on Ocular Management for Marfan Syndrome 4:53-8:48 What are the Marfan conditions, ocular conditions, so this is a cartoon basically showing the diagram of the schematic of the eye. This is only the front part and if you will and …

Insights on Ocular Management for Marfan Syndrome 2:21-4:53 My plan is to go over the conditions and it's about 25 minutes or so. I hope I've have enough time, plenty time to answer some questions that you may have, so this is the list of …

Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 49:53-53:09 Q: We often hear about the CPAP masks they're not comfortable, they don't fit well but that's what insurance provides for me. Do you have any recommendations f…

Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 48:04-49:05 Q: For someone with a history of bronchiectasis and history of pneumothoraces as well if you're experiencing a lot of shortness of breath you use an inhaler wh…

Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 45:35-48:00 Q: Someone's asking if they're not given the green light by their pulmonologist for surgery what are the precautions or extra steps that they can take when it …

Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 41:44-43:05 Q: For parents and guardians how can they tell if their children have sleep apnea? 子どもが睡眠時無呼吸かどうかわかる方法はありますか？ A: Typically for kids t…

Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 40:27-41:41 Q: Does sleep apnea always occur with snoring? 睡眠時無呼吸では、必ずイビキがみられますか？ A: That's really interesting because we, one of the kind of almost …

Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 37:23-39:56 Q: How often should sleep studies be happening for someone with obstructive sleep apnea? 閉塞性睡眠時無呼吸の患者では、睡眠検査はどのくらいの頻度で受ければいい…

Investigation of Sleep Disorders and Lung Injury in Marfan Syndrome 36:26-37:20 Q: Is back bracing for scoliosis or kyphosis more detrimental to lungs if they are already compromised with lung issues? 肺に問題がある場合、側彎症や後彎症向け…