COVID-19 and Marfan, VEDS, Loeys-Dietz: Your Questions Answered 24:32-26:17 Q:Enid, you had said that pectus and scoliosis can cause restrictive lung disease in certain instances, but if you've had that corrected, do you still have the res…

COVID-19 and Marfan, VEDS, Loeys-Dietz: Your Questions Answered 39:58-40:43 Q:Are there any additional risk for people with dysautonomia? 自律神経障害の方では重症化リスクがありますか？ A:No, to my knowledge. Juan? 私の知る限りリスクはない…

COVID-19 and Marfan, VEDS, Loeys-Dietz: Your Questions Answered 26:18-27:06 Q:If you know that you have bronchiectasis that does that put you at a higher risk? 気管支拡張症がある場合、新型コロナウイルスに感染した際の重症化リスクはあるので…

COVID-19 and Marfan, VEDS, Loeys-Dietz: Your Questions Answered 50:31-51:13 Q:Enid, one more for you here. What about sleep apnea? Does that put people in increased risk for the virus? Enid先生、睡眠時無呼吸の場合には、感染による重症化リス…

COVID-19 and Marfan, VEDS, Loeys-Dietz: Your Questions Answered 41:00-43:10 Q:I have some questions for Dr. Morris. For those that have LDS and vEDS that have tortuous, tortuous arteries and fragile arteries, does the virus or the symptoms…

COVID-19 and Marfan, VEDS, Loeys-Dietz: Your Questions Answered 38:39-39:54 Q:There were some questions about people, you know, have already surgeries scheduled and, you know, their upcoming tests at different hospitals. Should they be con…

COVID-19 and Marfan, VEDS, Loeys-Dietz: Your Questions Answered 51:16-52:16 Q:This is for Shaine or Juan. Just having a Type B thoracic aortic dissection put you at higher risk? Shaine先生、Juan先生への質問です。胸部B型大動脈解離がある方で…

COVID-19 and Marfan, VEDS, Loeys-Dietz: Your Questions Answered 45:15-46:05 Q:So Shaine, Aaron wants to know if her child is at higher risk considering they have a higher Z-score and it is medicated. モリス先生に質問です。Zスコアが高く、薬…

Q:新型コロナウイルスでは症状が出ない日が長く続くこともあるようですが、感染しているかどうかは、どうすればわかりますか？発熱や咳などで病院を受診した時には、肺の50％が線維化しているというのは本当ですか？ A:違います。発熱や咳は単純に上気道炎の…

COVID-19 and Marfan, VEDS, Loeys-Dietz: Your Questions Answered 34:04-36:13 Q:There are sometimes some myths that go around or, or I call the myth, that when you have Marfan's syndrome that you have a lower immunity? Can you speak to that?…

COVID-19 and Marfan, VEDS, Loeys-Dietz: Your Questions Answered 16:47-18:08 I make another comment and based on that the vaccines. one thing just make clear. (Can you guys see me here? Now, Yes. I can't see myself.) So anyway and one comme…

COVID-19 and Marfan, VEDS, Loeys-Dietz: Your Questions Answered 14:06-16:37 And then now, what if you clearly have, you know, a problem and you have a dilated aorta but you really don't have any of those other complications. And many, many…

COVID-19 and Marfan, VEDS, Loeys-Dietz: Your Questions Answered 12:08-14:05 So anyone who with a genetic aortic condition is a higher risk if they have basically significant heart problems or significant lung problems. 重篤な心臓疾患や肺疾…

COVID-19 and Marfan, VEDS, Loeys-Dietz: Your Questions Answered 5:50-10:54 Hello everyone, and we are tasked to give you as much information as you could possibly want tonight. 皆さん、こんちには。今回のセミナーでは皆さんが知りたいと思って…

はじめに 重症化リスクの高い患者は？ 重症化リスクが高いとは考えられない患者は？ 薬について 予防策 インフルエンザ、新型コロナウイルス（COVID-19）、その他の重篤な感染性呼吸器疾患の治療法 はじめに The Marfan Foundation（TMF）は専門家委員会と連…

Managing Pain 52:41-53:36 Q:How about pain after surgery? 術後の痛みにはどのように対処すればいいですか？ A:So pain after surgery is common and one of my jobs I actually work in a post-operative clinic where we're addressing acute or chroni…

Managing Pain 52:13-52:33 Q:I'm going back to steroids now. I'm somebody's asking if steroidal shots are contraindicated with connective tissue disorders. 結合組織疾患では、ステロイド注射は禁忌でしょうか？ A:In general, not. And we have, I…

Managing Pain 50:00-50:53 Q:What about if you're also taking like an antidepressant or antianxiety medication at the same time, like something to worry about? 抗うつ剤や抗不安薬をオピオイドと一緒に飲んでも大丈夫でしょうか？ A:In general, n…

Managing Pain 43:38-45:08 Q:Where do you where do you start, I mean, if you, you know, what's the first doctor that you'd go to, Dr. Speed? If you have, if you have Marfan, you have, you have, a related disorder, and, you know, you have al…

はじめに COVID-19と遺伝性大動脈疾患 CDC情報 COVID-19の拡がり方 症状 予防法 マスク インフルエンザおよび上気道疾患の治療法 はじめに 米国での新型コロナウイルス（COVID-19）の拡大が予測される中、The Marfan Foundationは専門家委員会協力の下、米国…

Managing Pain 42:17-42:57 Q:Somebody, so they just started taking tramadol and receiving steroid chest, and their shoulders, hips, and lower back. Is this common? トラマドールやステロイド注射を受けている方がいらっしゃいますが、そういった方…

Managing Pain 41:33-42:11 Q:Here's another question about children. Is there any evidence to show that physical and occupational therapy can help children, particularly preteens, avoid, to avoid developing pain? That's a different kind of …

Managing Pain 40:24-41:30 Q:I also had some questions ahead of time about treating pain for dural ectasia in the Marfan population. So can you comment on that? マルファン症候群の硬膜拡張による痛みにはどのような対処法がありますか？A:Sure un…

Managing Pain 39:34-40:22 Q:How about peripheral neuropathy? Is that, you consider, that a pain problem I am a little bit familiar with it, is it more common in Marfan or something that, um a lot of people complain about who have Marfan sy…

Managing Pain 38:49-39:33 Q: Here's a question about managing chronic pain in children with Marfan syndrome. What are the best practices or what do you recommend to, to younger population? マルファン症候群の子供の慢性痛はどのようにして管理…

Managing Pain 34:00-32:28 So with that said, I'm just going to end with a few final thoughts and that is that pain is real and each individual's pain experience is unique and that's why we have to understand who a patient is and what their…

Q: 単一遺伝子検査と多重遺伝子パネル検査の違いは何ですか？ A: マルファン症候群の特徴の中には、他の結合組織疾患でもみられるものがあります。そのため、臨床評価のみで診断が確定しない場合には遺伝子検査（単一遺伝子検査、多重遺伝子パネル検査）を行…

Q: 自分の弁を残す大動脈手術（自己弁温存大動脈基部置換術）を行った場合、抗凝固薬を飲む必要はありますか？ A: 自己弁温存大動脈基部置換術の後、血液をサラサラにする薬（抗凝固薬）を飲む必要はありません。この術式では、ご自身の大動脈弁がそのまま使…