Entries from 2022-01-01 to 1 month
2020年10月22日 Elijah Williams 皆さん、これが私です。上半身の傷跡はマルファン症候群との戦いを繰り広げてきた栄光の証です。 25歳という年齢で幾度となく手術を経験してきました。 Fyfe医師には子供の頃から常に心臓と大動脈の太さを診てもらってきまし…
Living with Risk 7:10-8:08 There is also some other good news in 2020. This was a meta-analysis looking at the use of medications essentially showing that angiotensin receptor blockers like losartan and irbesartan slowed the rate of aortic…
Living with Risk 3:56-7:10 As, as Eileen and Michael both mentioned I'm a pediatric cardiologist and I've spent really my career in training with Dr. Denver Sallee and then developed an interest in aortic disease and have been involved in …
Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 56:52-1:00:18 What is the most important thing to consider when raising children with Marfan or Loeys-Dietz or vEDS? Marfan症候群やLoeys-Dietzs症候群、血管型Ehlers-Danlos症候…
はじめに マルファン女性の出産が身体や健康に及ぼす影響は? マルファン女性の妊娠はハイリスクか? 妊娠中の大動脈解離リスク因子 妊娠前にすべきこと・受診すべき診療科 妊娠中に避けるべき薬 妊娠中に服用してもよい薬 帝王切開を選択すべきか 授乳リス…
Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 51:12-56:46 So I think I have a question, I think this goes along with role modeling that you were talking about, Allan, where like a parent wants to, once, wants to know how …
Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 49:54-51:12 Mark, can you explain more about the visuospatial versus verbally you talked about? I think people want specific examples of what you mean by visuospatial. Mark先…
Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 47:22-49:53 So can we just talk a little bit about social development because people want to know, like when, when a child's diagnosed, then they transition into adolescence, …
Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 43:09-45:16 Now as also Alan kind of talked about there's very, very little in the way of studies on a group level looking at Marfan syndrome and so there's one good, there's …
Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 41:01-43:07 So more to the point of why we're here. As I said I work not just in the connective tissue disorder clinic here but also amongst the few cardiac populations and th…
38:10-40:58 So this is a fairly common task that both kids and adults would get in a neuropsych test. このスライドでは、子ども・成人問わず受ける可能性がある、ごく一般的な脳機能検査を紹介しています。 It's, we give them blocks like this. Tha…
Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 35:50-37:08 Now process of, if you're not familiar just and you're curious about neuropsych functioning or neuroscience testing we'll just go through it real quick. では、神経…