Entries from 2019-08-01 to 1 month
How is a posterior crossbite treated? You determine whether or not you want to go ahead and treat at a given time depending on how young they are. There's certainly a benefit to treating posterior crossbite to make it wider when the suture…
以下のページからマルファン関連資料のダウンロード(無料)ができます。 www.marfan.org 以下ダウンロードできる資料の一覧です。 基本資料 マルファン関連医療機関所在地(米国内) マルファン症候群および関連疾患のガイド マルファン症候群関連 マルファ…
What is posterior crossbite? Posterior crossbite refers to a relationship of the upper and lower jaw whereby the upper jaw, because it's too narrow, it doesn't relate in the position that it should, which is on the out the teeth on the top…
How is crowding of the teeth treated? So, extraction is actually an option used for many orthodontic patients when the crowding is so severe. If we think again of our arch form, per any given arch if you have crowding of more than, say, ei…
What causes jaw pain in Marfan syndrome? What is TMJ? So, the joint has something called a fossa or like a depressed area and then it has an eminence or an area that kind of comes down and as the joint functions by opening and closing, it …
Are people with Marfan syndrome more likely to develop cavities? It's interesting that in my interactions from my involvement with the Marfan Foundation and the annual meetings, that people have discussed their concern that maybe their tee…
When should a child with Marfan syndrome see an orthodontist? In general, any child, according to the American Association of Orthodontists, should visit an orthodontist at seven. The reason they pick that is not because we're anticipating…
When should aggressive eye treatment be considered? As a young baby, the eyes may be totally normal and you just don't see it often. There is absolutely nothing wrong under a child, maybe, five years old when they start to sit on top of th…
What dental orthodontic features are common in Marfan syndrome? The most striking facial features are having a long, narrow face that is probably more convex than the average face; we call that dolichocephalic. The other features include h…
The Marfan Foundationは、VIRTUAL MEDICAL SYMPOSIUM SERIES(オンラインセミナー)を提供しています。このオンラインセミナーでは、マルファン症候群および関連疾患の専門家が行ったプレゼンテーションがYoutubeで配信されています。 www.marfan.org 上の…
Why do so many children with Marfan syndrome have refractive errors? A refractive error is an aberration in the visual system in the focusing power of the eye. See? It's an error in coordination of the first lens, the cornea, or the lens i…
What is a retinal detachment and how is it treated? Retinal detachment means that the retina separates from its underlying layer. Under the retina is a layer that's called a retinal pigment epithelium and that the retinal pigment epitheliu…
What causes retinal detachment in patients with Marfan syndrome? The causes of retinal detachment in the Marfan syndrome are not 100% clear. There is no fibrillin in the retina and there is no fibrillin in the vitreous. The vitreous being …
www.youtube.com Maybe, 65-70% of the patients have lens dislocation, but it's a progressive disease. And by age 10, maybe only 50%. So, the number increases with time. Maybe by age 60-70, 70% will have the experience of lens dislocation. S…
In the Marfan syndrome, you're in a special situation. You don't have this ligament or healthy ligament around the lens. You don't have these fibers that hold the lens in space, so you're dealing with a structure that just doesn't have the…
What is a dislocated lens and how is it treated? So, there is fibrillin around cornea and then there's fibrillin around the lens. There is their little ligaments that hold the lens in space. Basically, you know, your lens has no realattach…
What causes the eye problems in Marfan syndrome? The issues really go from the front of the eye to the back. Basically every part of the eye is involved because fibrillin is in virtually every part of the eye and since fibrillin is the par…
2018年2月20日Rita McCrerey マルファン症候群やその関連疾患は、アスリート、特に一連の典型的な所見がない場合では、見落とされることがあります。 息子のニック・ボーゲルのお話をさせてください。サンディエゴ育ち、6.9フィート(2.10メートル)で高校、…
Can "complementary therapies" such as yoga help the lung problems for people with Marfan syndrome? Many patients with Marfan syndrome go into the general world where they have a sense of being different and having a sense that the differen…
What is pulmonary rehabilitation? What I advocate for many patients is going through what we call pulmonary rehabilitation and that is kind of a multidisciplinary practice where you learn ways of breathing that actually can reduce the sens…
How are wheezing and asthma connected to Marfan syndrome? Interestingly, we see a great deal of wheezing in both children and adults with Marfan syndrome and it's somewhat of a complex kind of symptom in Marfan syndrome because the cause o…
What is a "6 minute walk test" and why is it helpful for people with Marfan syndrome? One study that and I think more and more of the Mafan patients that I consult on are having is what I call an exercise study, which is a quantitative mea…
What is the appropriate treatment for restrictive lung disease? One of the aspects of restrictive lung disease that I encourage patients to really think about and discuss with their physicians is whether the surgical intervention that are …
What pulmonary tests do you recommend for Marfan patients? One of the things I actively encouraged and it almost becomes like a, like a broken record with me is I think anyone with Marfan syndrome should get a goodset of pulmonary function…
How are the lungs affected in Marfan syndrome? You know, the way I like to kind of discuss them are from the, the features that are the most common to the features, that are a little less common and a little more exotic. 最もよく見られる所…
Why does Marfan syndrome affect the lungs? Well, the striking aspect of lung function in Marfan syndrome is that it's so varied and it involves multiple different organ systems and the way that, I typically think about it, is that the the …
Did I do something to cause my child to have Marfan syndrome? So when parents come in and their child is the first person in the family to have Marfan syndrome, they start replaying in their head every drink they had, you know, what they d…
How can a child participate in their treatment? The one thing that I think that parents should take into consideration is letting their child be an active participant in the session. ご両親が考えておくべきことは、積極的に子供を治療に関わら…
Should I tell my child that he or she has the Marfan syndrome? I'm surprised when a parent doesn't want to use the word Marfan syndrome. We've had some instances where parents come in and before they've prepped us that they don't use the w…