Can "complementary therapies" such as yoga help the lung problems for people with Marfan syndrome?
Many patients with Marfan syndrome go into the general world where they have a sense of being different and having a sense that the differences are very noticeable.
マルファン患者の多くが一般社会へ出て、他人との違いを自覚し、かなりの注目を集めていると感じます。
And what I love about kind of a yoga or yoga type environment is that it's not judgmental and I think that that actually allows kind of a therapeutic encounter that might not happen in almost any other kind of body work type environment and what I would love for our community is to try to look into some of what's called these alternative kind of strategies to see if they might, in fact, have therapeutic benefits for Marfan patients.
ヨガやヨガが行われるような環境について私が非常に気に入っている点は、決めつけないということです。ヨガのような体験には、体を使う他の大部分の活動では見られない癒やしの側面があります。患者団体には、ヨガのような代替療法ともいえる方法を探し出し、それらが実際にマルファン患者さんに利益があるのかを確認しほしいと思っています。
This issue of shortness of breath is an incredibly important issue for Marfan patients because they confront a medical system that typically is not very sophisticated and understanding their disease and they also confront a medical system that has the presumption that they will have a certain level of disability and so when they actually admit to a symptom as kind of nebulous as shortness of breath, there are many physicians who will respond, "Well, of course, you're short of breath. You have Marfan syndrome."
マルファン患者にとって息切れの症状は非常に重要です。というのは、患者さんはそれほどマルファンを扱った経験もなく、病気のことを理解していない医療機関にかかることになるからです。また、患者さんにある程度の身体障害があると決めてかかる医療機関もあります。実際に、息切れのような漠然とした症状を確認した後で、「そうですね、息切れがありますからマルファン症候群です」と診断するような医師はたくさんいます。
And what I like to do is to tell patients that they don't have to be short of breath and we actually can find an answer as to why they are short of breath and there's nothing that says that having Marfan syndrome can't make you kind of much more able to kind of understand your disease and to get yourself functioning at the best possible level that you can.
私は患者さんに「息切れとは断定できませんので、原因を見つけますからね」と言いたいのです。マルファン症候群になると病因の特定ができなくなるということはありえません。可能な限り患者さんが身体を動かせるようにしたいと思っています。
And unfortunately in order to do that you have to have physicians that are really strong, almost evangelical advocates of that and what I hope to do is under the umbrella of lung disease, under the umbrella of shortness of breath, dyspnea, to be that kind of advocate to tell patients, "You know, you don't have to have these limitations. Let's see what we can do about these." and there are so many options available for patients who have lung disease and we can use some of these in order to make you feel better.
ですが、残念ながらそれを実現するためには意志の強い啓発活動に熱心な医師が必要になります。私は肺の疾患や息切れのある患者さんと同じ目線で彼らに訴えたいのです。「我慢する必要はありません。一緒に何ができるか考えましょう」と。肺の病気を抱える皆さんには多くの選択肢が用意されており、これらを利用することで病状は快方へと向かうのです。
The Marfan Foundation did not participate in the translation of these materials and does not in any way endorse them. If you are interested in this topic, please refer to our website, Marfan.org, for materials approved by our Professional Advisory Board.
The Marfan Foundationは、当翻訳には関与しておらず、翻訳内容に関してはいかなる承認も行っておりません。このトピックに興味をお持ちの方は、Marfan.orgにアクセスし、当協会の専門家から成る諮問委員会が承認した内容をご参照ください。
