Exercise and Marfan, LDS, and VEDS: The Latest Research 27:26-34:46 OK, Siddharth, that was outstanding, very, very informative and to summarize the animal model studies of genetically programmed Marfan-like mice, aorta's benefit from, fro…

Exercise and Marfan, LDS, and VEDS: The Latest Research 26:05-27:22 And then after they completed the protocol we would survey the individuals about their experience. Half of them said they were more confident in their ability to safely co…

Exercise and Marfan, LDS, and VEDS: The Latest Research 25:22-26:02 We, we also looked at the aortic dissection subgroup. I mentioned that was a minority of patients but we wanted to make sure that was safe and effective for them. We did n…

Exercise and Marfan, LDS, and VEDS: The Latest Research 17:48-25:19 So our group has for the last two years studied the safety of exercise for our patients who come to clinic with thoracic aortic disease of all types and we started to do t…

2022年12月8日 マディソン・モーリン 慢性疾患によって障害を負った人々は、インターネット上のコミュニティを求め、病気の理解を広める。誰に知られることもなく、心の裡に秘められた経験は、ソーシャルメディアの力で現実世界へと浮上する。 2003年、当時…

Exercise and Marfan, LDS, and VEDS: The Latest Research 15:15-17:26 Thank you so much, Alan. That was for that excellent introduction. As, as we mentioned there are, there's some growing body of evidence that exercise is actually not only …

Exercise and Marfan, LDS, and VEDS: The Latest Research 13:45-15:14 Finally moving on to the guidelines in competition again intense activities for high schools, college and professional athletes competitive sports when you have an underly…

Exercise and Marfan, LDS, and VEDS: The Latest Research 12:16-13:44 You can kind of get a sense about the blood pressure and heart response to exercise depending upon the level of exercise. The metabolic equivalent of task or MET is one wa…

Exercise and Marfan, LDS, and VEDS: The Latest Research 11:01-12:04 Here's a schematic showing somebody who's doing a jog and you can see the systolic blood pressure, the top number, so at rest is constant. When you have onset of this jog …

Exercise and Marfan, LDS, and VEDS: The Latest Research 9:07-11:00 And those may differ again depending on what condition one has. Imagine somebody with significant eye features versus somebody with skeletal features, so exercise activity …

Exercise and Marfan, LDS, and VEDS: The Latest Research 8:16-9:06 So here are some of the questions that come up commonly about and, and what I think the simple answer is to say is we don't really have great answers for all these things. I…

Exercise and Marfan, LDS, and VEDS: The Latest Research 6:04-8:15 So as a bit of background this is a cartoon of a blood vessel wall like the aorta or another blood vessel and if, the thin lining layer is called the intima an endothelial c…

Exercise and Marfan, LDS, and VEDS: The Latest Research 3:45-6:02 This is kind of an overview of what we're going to share tonight and we'll try to get through. There's a lot of material, so we'll cover some of it more quickly and try to s…

Family Planning and Pregnancy: US and Europe Perspectives 1:05:26-1:07:51 Q: Do you have any women with Marfan who have also received a mechanical heart valve and are on blood thinners carrying a baby to term? You want to take that? Julie …

Family Planning and Pregnancy: US and Europe Perspectives 1:02:51-1:03:32 In summary most women with all connective tissue disorders have favorable outcomes in pregnancy, however, the diagnosis prior to pregnancy, proper surveillance, and …

Family Planning and Pregnancy: US and Europe Perspectives 1:01:15-1:02:49 Now another important thing is that postpartum you have multiple mom and baby so we're going to shift our attention to include the well-being of the child and their …

Family Planning and Pregnancy: US and Europe Perspectives 59:11-1:01:14 But one, one area of risk that has been focused upon is breastfeeding, so oxytocin and is a chemical released endogenously in each person that stimulates both labor an…