海外マルファン情報 | Global Marfan Updates

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

Entries from 2025-08-01 to 1 month

The Marfan Foundation への質問フォーマット例

marfan.org 上記サイトから英語で質問する際のテンプレート例です。英訳は生成AIを使うことをお勧めします。 Subject: Inquiry from Japan regarding [Marfan syndrome / aortic disease / your condition] Question: Dear Help Center Team, My name is [Yo…

健康的かつ安全に運動するために 〜運動強度に基づく運動の分類〜

Staying Healthy & Exercising Safely 8:10-9:10 So this chart has traditionally been used to kind of break down sports activities by intensity. On the left side, you can see a static component―that is, the contraction of muscles that are req…

健康的かつ安全に運動するために 〜運動の種類と血圧反応〜

Staying Healthy & Exercising Safely 6:20-8:08 And we also know that not all exercises are created equal, so it may not make sense to put a blanket ban on certain types of activities. For example, blood pressure responds differently to diff…

健康的かつ安全に運動するために 〜大動脈イベント後の運動における課題と懸念〜

Staying Healthy & Exercising Safely 4:35-6:19 We know that anecdotal reports have linked some types of exercise, primarily heavy weightlifting, with aortic dissection. And as I mentioned, there isn't a lot of evidence about the safety of e…

健康的かつ安全に運動するために 〜トピックの紹介〜

Staying Healthy & Exercising Safely 1:53-4:34 Let me start over with a brief summary for those of you who are just joining. I'm going to be talking about exercising―exercise safety and the effectiveness of exercise for people with thoracic…

マルファン症候群の基礎 〜マルファン医師からのメッセージ〜

Marfan Basics: Taking Care of Your Aorta 1:21:47-1:27:09 So like Eileen mentioned, my name is Dr. Haniff. I'm a Physical Medicine and Rehab physician at the Cleveland Clinic, and then pursuing hospice and palliative training at the Univers…