What You and Your Healthcare Professionals Should Know About Marfan Syndrome - Webinar 13:46-16:22 So let's now turn to what I’m calling non-surgical therapies. The first category is what we call lifestyle interventions and theses include …

What You and Your Healthcare Professionals Should Know About Marfan Syndrome - Webinar 5:59-13:44 This is a diagram of the aorta, but how do we actually see it in the body? There are three main imaging modalities or tests we usually use. O…

What You and Your Healthcare Professionals Should Know About Marfan Syndrome - Webinar 3:30-5:59 So I have been tasked to tell you what you should know about cardiovascular health, genetic testing, pregnancy and reproductive health, vision…

Staying Healthy & Exercising Safely 44:56-46:03 Q: Someone’s asking whether Pilates, previously recommended exercises for those with connective tissue conditions, is still advisable in light of the work you’ve done? ピラティスは以前、結合…

Staying Healthy & Exercising Safely 43:27-44:47 Q: Should folks monitor heart rate during exercise, and are there general goal recommendations? 運動中に心拍数を測る場合、一般的な目標値はありますか？ A: That’s a great point, and a lot of pe…

Staying Healthy & Exercising Safely 42:13-43:24 Q: Someone is sharing that they're having a difficult time getting family and friends to understand what they can and can't do from a physical activity perspective. It makes them not want to …

Staying Healthy & Exercising Safely 40:29-42:07 Q: Someone wrote in saying that they are a year and a half post-dissection and always tired. They try to walk 30 minutes a day, but they see others post-dissection who are able to do more, an…

Staying Healthy & Exercising Safely 37:48-39:04 Q: For someone whose 15-year-old son does not have any cardiac issues―it does not specify their actual diagnosis― would it be okay to play a sport like volleyball? 15歳の息子さんをお持ちの親…

Staying Healthy & Exercising Safely 36:25-37:46 Q: For someone with VEDS and POTS, it's very hard to exercise with both conditions. Do you have recommendations on activities that might work? VEDSとPOTS（体位性頻脈症候群）の両方をお持ちの患…

Staying Healthy & Exercising Safely 34:56-36:22 Q: There are lots of questions around specific exercises. If you're willing, I'll try. Okay, the first one: for individuals with VEDS, are abdominal movement-based exercises like crunches, mo…

Staying Healthy & Exercising Safely 31:16-32:43 Q: This is a recurring theme, so um, there seems to be a lot of guidance around pre-surgery. What about post-surgery? Does surgery significantly reduce the likelihood of adverse events? 繰り…