海外マルファン情報 | Global Marfan Updates

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

Entries from 2025-10-12 to 1 day

大動脈解離後の疲労感について

Staying Healthy & Exercising Safely 40:29-42:07 Q: Someone wrote in saying that they are a year and a half post-dissection and always tired. They try to walk 30 minutes a day, but they see others post-dissection who are able to do more, an…

心血管系に問題がない場合の運動について

Staying Healthy & Exercising Safely 37:48-39:04 Q: For someone whose 15-year-old son does not have any cardiac issues―it does not specify their actual diagnosis― would it be okay to play a sport like volleyball? 15歳の息子さんをお持ちの親…