8:55-10:27
So in some other research that, that I did with the survey on the Marfan website, we kind of separated individuals by when their pain started or how their pain was experienced throughout the course of their illness.
その他に私がマルファンのウェブサイトで私が行った調査では、痛みが始まった時期や病気の経過に伴う痛みの変化に基づいて患者さんをグループ分けしました。
So to the bar on the far left, which is kind of a middlish-color blue, that's all the patients or participants in this survey and then the orange bars, the darker orange is that people who are reporting pain, the later green is showing the people who said that their pain started kind of at the beginning of when they had other symptoms of Marfan syndrome and then the very late blue on the far right is for individuals that said that pain spread from one part of their body to additional parts of their body.
このグラフの一番左にある青の棒グラフはこの調査の参加者、濃いオレンジ色は痛みを訴えた人、濃い緑はマルファンの症状と共に痛みが出てきた人、一番右の濃い青の棒グラフは体のある部分から他の部分へと痛みが広がった人を表します。
And the main takeaway from these graphs is that individuals with pain, those with pain at the onset of Marfan syndrome as well as those who report kind of that the pain is spreading to other parts of their body from the initial site tend to also report greater pain disability, kind of more worries about their pain, and decreased physical health.
これらのグラフから分かるのは、マルファンの症状と共に痛みが出た人、そして痛みが体の他の部分に広がった人では、痛みによる不自由度が高く、痛みについての悩みを抱えており、身体的な健康度も低くなる傾向が見られました。
Now in general, all individuals report kind of some lower level of mental health's quality of life, that's lower than the national average, so the national average would be the black dotted bars there and the lower scores mean kind of worse quality of life regarding physical or mental health.
全体的にみると、メンタルヘルスにおけるQOLの低下がみられ、米国平均（黒い点線）を下回っています。身体的、精神的な健康度が低下するということは、QOLが悪化するということを意味しています。
The Marfan Foundation did not participate in the translation of these materials and does not in any way endorse them. If you are interested in this topic, please refer to our website, Marfan.org, for materials approved by our Professional Advisory Board.
The Marfan Foundation は、当翻訳には関与しておらず、翻訳内容に関してはいかなる承認も行っておりません。このトピックに興味をお持ちの方は、Marfan.org にアクセスし、当協会の専門家から成る諮問委員会が承認した内容をご参照ください。
