Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine
29:03-32:50
So, I'm Mark Beidelman. As we kind of mentioned before my quick, just a quick little thing about my background because I will be probably talking about this a little bit through, through this talk and I want to be mindful of the time just so we do leave some time for questions so I might speed through some of this.
Mark Beidelmanと申します。Allen先生からもあったように、後半のQ&Aに時間を残したいので、自己紹介は軽く済ませます。
My background is actually quite mixed amongst pediatrics and adults including for a long time my focus was with veterans and working on PTSD, neuropsych testing in the veteran population and even a lot of neurogenic disease work. It's been the last, I don't know, 10 years or so I've been working within the pediatric neuropsychology population and a lot of my work probably 70, 80 percents of it is here in various aspects of, of cardiac or congenital heart disease programs, with also some just kind of general developmental behavioral pediatric stuff.
私は小児と成人両方の精神疾患に関わってきました。長期に渡り退役軍人のPTSDの治療を専門とし、そうした方々を対象に神経精神学的な検査をしていました。また、神経症の治療にも多く関わりました。その後、ここ10年ほどだと思いますが、小児の神経精神疾患の治療にあたってきました。その中の7～8割ほどが先天性心疾患プログラムに関係するものでしたが、一部は小児の一般的な発達障害に関わるものです。
So kind of piggyback, piggybacking off what Allen was saying, I'm not able to advance, there we go, so just Monday the psychologist Aaron T. Beck passed away at the age of a hundred. He was one of the two founders of what is sometimes referred to as CBT or Cognitive Behavioral Therapy, really the, the foundation for evidence-based modern psychotherapy.
Allen先生のお話に付け加えるような形になりますが、先日の月曜日に心理学者のAaron T. Beck先生が100歳でお亡くなりになりました。Beck先生は、二人いる認知行動療法（CBT）創始者の一人であり、エビデンスに基づく今日の心理学を築いた方です。
Now there's lots of tree branches that have evolved from there. CBT is still widely used and, and, you know, I often joke, it's kind of our evidence-based snake oil where it kind of cures what else, you know, it's like you got schizophrenia, if you got anxiety, if you got depression, you want to quit smoking here's some CBT and it does work pretty darn well.
CBTからは多くの治療法が派生しました。CBTは現在でも広く利用されており、統合失調症、不安障害、うつ病、禁煙などに非常に高い効果があります。
But what influenced Aaron T. Beck and his colleague Albert Ellis were the Stoic Philosophers and they're, I'm a big fan of the Stoic Philosophers and I think kind of talking about, about what Allen was talking about both in the context of DSM disorders but also in kind of this resiliency kind of way. I think something to keep in mind for me is mental health versus mental illness and I don't really like a distinction between the two.
Aaron T. Beck先生と同僚のAlbert Ellis先生に影響を与えたのはストア派の哲学者でした。私自身もストア派の大ファンです。DSM疾患とそれらの疾患からの回復について、Allen先生はお話されていましたが、私の場合、メンタルヘルスと精神疾患を対立させて考えることはいいことだとは思っていません。
I really kind of think of it as whatever kind of risk factors or situations we have might predispose this to kind of one of these categories but really for all of us it's about doing the work throughout our life and that's kind of a big, you know, thing that the Stoics kind of talked about.
リスク因子や状況によって、どちらかに分類されることにはなるのですが、誰もが人生を通して取り組んでいくべきことであり、これこそストア派の学者が主張していたことなのです。
Now just to be quickly clear the Stoic Philosophers, capital-S Stoic were not "button in your lip, express no emotion" people. They were actually quite a motive but what they really kind of emphasized at the core of what they talked about is it's how you relate to the world that dictates your inner, inner experience.
ストア派の哲学者について簡単に説明しておきます。Stoic（ストア派、ストイック）とは、禁欲的で顔色を変えない、という意味ではありません。強い動機があったことは事実ですが、彼らが最も主張したかったのは、内的経験を司る外の世界と、どのように折り合いをつけていくかということだったのです。
So just a few quotes from four of the big guys of the Stoic world. Marcus Aurelius is probably the most famous. "The world is nothing but change, our life is only perception," really like that one, "People are not disturbed by things but the views they take of them," it's Epictetus. He was born a slave. As long as you leave, "As long as you live, keep learning how to live," Seneca. Again kind of saying that this all this psychology stuff is going to be an ongoing process and Zeno kind of the the founder of all this thought, "Well-being is attained little by little and nevertheless it is no little thing itself," again kind of that ongoing process mentality.
ストア派の格言をいくつかご紹介します。
我々の人生とは、我々の思考が作りあげるものに他ならない
人を不安にするのは、物事ではない。物事についての意見だ
生きることは生涯をかけて学ぶべきことである
―セネカ
幸福は少しずつ得られるものではあるが、決して取るに足らないものなどではない
―ゼノン
マルクス・アウレリウスはおそらくストア派で最も有名な人物であり、エピクテトスは生まれながらの奴隷でした。ストア派の創始者がゼノンです。これらの格言に共通して言えることは、知性というものは、継続的なプロセスで獲得していかなければならないということです。
The Marfan Foundation did not participate in the translation of these materials and does not in any way endorse them. If you are interested in this topic, please refer to our website, Marfan.org, for materials approved by our Professional Advisory Board.
The Marfan Foundation は、当翻訳には関与しておらず、翻訳内容に関してはいかなる承認も行っておりません。このトピックに興味をお持ちの方は、Marfan.org にアクセスし、当協会の専門家から成る諮問委員会が承認した内容をご参照ください。
