海外マルファン情報 | Global Marfan Updates

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

Entries from 2025-03-16 to 1 day

vEDSの特徴について

Managing HTAD: Key Insights from the 2024 ESC Guidelines 45:34-51:49 Q: So this patient is a newly diagnosed with vEDS at 51 years of age and she's asking whether the condition lies dormant or has she had it since birth because she didn't …