海外マルファン情報 | Global Marfan Updates

米国マルファン症候群患者団体The Marfan Foundationからの情報を中心に、マルファン症候群や関連疾患についての海外情報を翻訳して発信します。

Entries from 2025-07-19 to 1 day

標高の高い地域での活動について

Marfan Basics: Taking Care of Your Aorta 1:19:43-1:20:47 Q: We have somebody on who is 28 years old with Marfan and says he's fit. Um, he's going to be going to Machu Picchu, so he's wondering, um, is altitude pose a higher risk for Marfan…

マルファン症候群の基礎 〜運動のまとめ〜

Marfan Basics: Taking Care of Your Aorta 1:16:41-1:19:21 So, our studies have shown that athletic activity after diagnosis is possible. There are even people doing competitive athletic activities―these are not officially sanctioned, but th…