How do you know when a child needs orthopedic surgery?
I would be a little apprehensive because I know what surgery's like and recovering from it, but I also know that it turns out well in the end and if you can see that goal in the end, you can be confident that you're going to get there. Then, you can whether what's in between and a lot of patients when they're in between,they don't really have confidence that they'll get better.
私なら手術がどういうものか、どのように回復していくかが分かっているので多少不安を感じるかもしれませんが、最終的にはうまくいく事がわかっています。皆さん最終的なゴールがわかっていれば、自信を持ってそこに到達しようとします。ですが、どっち付かずの場合もあるでしょうし、多くの親御さんはそのような状態では、本当によくなるのか確信が持てないのです。
You know, if I, if my child had Marfan syndrome, I would be try to balance, you know, what's a reasonable goal, what's worth putting them through versus, you know, what might be too much or what might be unnecessary, so there's a fine line especially in orthopedic surgery.
自分の子供がマルファンなら、現実的な目標や手術を受けることで得られるメリットと、手術の負担の大きさや本当に必要かどうかなどを天秤にかけて決めます。整形外科の手術では、特に微妙な線引きが必要となるのです。
Cardiac surgery is different in some senses because there's a life-or-death aspect to it and and so, that makes sometimes decision making easier. Orthopedic surgery is a little different because it has to do with quality of life and what can you expect from going through a surgery and is going to be worthwhile, is it going to help you in the long term to avoid arthritis and degeneration. So, that's where the judgment comes in and that's where you can see different, different points of view and different decision-making processes.
心臓の場合は生死が関わることから、手術を行うかどうかは判定しやすいこともありますが、整形外科の手術は、QOLや手術によるメリット、長期的に見て関節炎や症状悪化を回避できるかどうか等と関係しますので、心臓の手術とは多少異なります。ですから様々な観点から、異なる判断がなされる可能性があるのです。
So that's, that's what I, as a parent, would probably try to think about what's the goal that I might have for my son, is it worth it and, you know, then help to understand how to go through it successfully.
親の立場から言わせてもらえば、息子が目指すゴールはどこか、メリットはあるか、そして手術を成功させるにはどうすればいいかということを理解させてあげるということですね。
The Marfan Foundation did not participate in the translation of these materials and does not in any way endorse them. If you are interested in this topic, please refer to our website, Marfan.org, for materials approved by our Professional Advisory Board.
The Marfan Foundationは、当翻訳には関与しておらず、翻訳内容に関してはいかなる承認も行っておりません。このトピックに興味をお持ちの方は、Marfan.orgにアクセスし、当協会の専門家から成る諮問委員会が承認した内容をご参照ください。
