Loeys-Dietz Gastroenterology and Allergy Q&A
32:43-34:24
Q:
When, when it gets to the point that a child would need a feeding tube like ages two or three because of the they're not able to gain weight should they expect to have that tube for life or is that something they might grow out of?
体重を増やすために栄養チューブが必要となる幼いお子さんは、一生チューブを付けたままなのでしょうか？成長すれば不要になるのでしょうか？
A:
Almost always they're going to grow out of it, so it's, it can be really helpful to have a feeding tube basically while you're growing but once you're done growing the the number of calories you need sort of proportionally for your body weight, right? so when you're first born you need like a hundred calorie, calories for every kilogram of body weight. When you're older you need 25-35, so the the total, well the total number of calories increases the amount you have to eat for your size goes down dramatically.
ほとんどの場合、チューブは不要になります。成長段階では、栄養チューブは非常に役立ちますが、成長が終われば、必要となるカロリーは体重に比例します。新生児は、1kgあたり100kcal必要ですが、成人では、2,500～3,500kcalほどが必要になります。必要な総カロリー数は増加しますが、体重に対して必要な食事量は劇的に低下することになります。
So of the people with Loeys-Dietz syndrome that I've treated who have needed a feeding tube, once they're done growing I think all of them have, yeah, all of them have had it removed once they're sort of done with their teenage growth spurt, so you know for girls that's about 15, 16, for boys that's a little bit older 17 or 18 but they've all had it out and they've done just fine.
私が担当してきた栄養チューブが必要なLDSの患者さんでは、10代の成長著しい時期が終わると、皆さんチューブが不要になりました。女子であれば、15～16歳、男子であれば17～18歳くらいの年齢です。皆さんチューブが抜けて、問題はなくなりました。
Yeah, I think we can say we've had a lot of patients that have needed the feeding tube and and there's always a lot of hesitation understandably. I think from the families when we put that in but I think once it's in and you see how well the child does and how much better they do with their surgeries and how much more quickly they recover. I think it's usually seen as a good decision.
そうですね。私たちは栄養チューブが必要となるたくさんの患者さんを見てきましたが、思い悩む方が多くいらっしゃいました。チューブを挿入される時のご家族の気持ちはよくわかります。ですが、挿入後はお子さんの体調も良くなり、外科手術も成功しやすく、回復も早まりますので、よい決断となるケースがほとんどだと思います。
The Marfan Foundation did not participate in the translation of these materials and does not in any way endorse them. If you are interested in this topic, please refer to our website, Marfan.org, for materials approved by our Professional Advisory Board.
The Marfan Foundation は、当翻訳には関与しておらず、翻訳内容に関してはいかなる承認も行っておりません。このトピックに興味をお持ちの方は、Marfan.org にアクセスし、当協会の専門家から成る諮問委員会が承認した内容をご参照ください。
